#tysoncook - Twitter Hashtag

about 4 years ago

From outside our communities, people don't see the losses. Part of why @thekattdazzle does this is #TysonCook who passed at 21 with a week-old baby. We still see his face tho we never met. HE/SREAT & many non-rare but rarely dx conditions take lives. #CureGP please. 💚

Melissa VanHouten @melissarvh

about 4 years ago

A beautiful young woman in our #Gastroparesis community has passed away. Condolences and prayers for her loved ones and our community. #CureGP

melissarvh's tweet photo. A beautiful young woman in our #Gastroparesis community has passed away. Condolences and prayers for her loved ones and our community. #CureGP https://t.co/vW7PZanFoU

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The KATT Dazzle @thekattdazzle

about 4 years ago

@buttahflyk @dazzle4rare A6. We lost a young man #TysonCook in 2016 right around the time my Mum & her twin died. We also had a young woman #FreeDerya who was essentially medically kidnapped. No one would respond to my emails, calls, & outreach so #Dazzle4Rare was born. #SarcChat #SarcDazzle

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The KATT Dazzle @thekattdazzle

about 6 years ago

This is the cause that helped start #Dazzle4Rare with the convergence of #HEFamily not getting the help or attention they need and with the passing of a very young man #TysonCook It's so hard for any community to get the volume they need for the rest of the world to take note.

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The KATT Dazzle @thekattdazzle

about 6 years ago

Left is mum + me, middle is Aunt Helen (mum's twin) & right is #TysonCook - all passed within a span of weeks. All share a birthdate - Today. All affected by autoimmune conditions. All passed too young. Never forget. This week is for you, too. #Dazzle4Rare #HEAwareness #EDS

thekattdazzle's tweet photo. Left is mum + me, middle is Aunt Helen (mum's twin) & right is #TysonCook - all passed within a span of weeks. All share a birthdate - Today. All affected by autoimmune conditions. All passed too young. Never forget. This week is for you, too. #Dazzle4Rare #HEAwareness #EDS https://t.co/86Dgm1CdsZ

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The KATT Dazzle @thekattdazzle

about 6 years ago

#Dazzle4RareChallenge It took 38 years to dx a genetic condition, #hEDS #EhlersDanlosSyndrome I didn't start @dazzle4rare for myself but for #TysonCook #FreeDerya #HEAwareness #HEFamily and everyone who struggles to reach the people they need to reach with their msg.

thekattdazzle's tweet photo. #Dazzle4RareChallenge It took 38 years to dx a genetic condition, #hEDS #EhlersDanlosSyndrome I didn't start @dazzle4rare for myself but for #TysonCook #FreeDerya #HEAwareness #HEFamily and everyone who struggles to reach the people they need to reach with their msg. https://t.co/t8uLFuc29m

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dazzle4rare @dazzle4rare

about 6 years ago

@Robin_Lexi That is 100%. We carry their memory with us and we never forget them. We'll never forget #TysonCook #FreeDerya (alive but still battling hard) and our @AutonomicRN. Also missing so many friends who were rare but died too young of complications. 🌈

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dazzle4rare @dazzle4rare

about 6 years ago · Prescot

We (@DAZZLE4RARE) do this for so many reasons. We do this for the people we have lost like #TysonCook in the HE/SREAT community in 2016. We do this for young women like #FreeDerya and for #PANS and #AntiNMDAR We do… https://t.co/P38teqzQBH

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The KATT Dazzle @thekattdazzle

about 7 years ago · Kansas

Couldn't find this pic yesterday on their birthdays. Left is mum and me, middle is my Aunt Helen (mum's twin) and right is #TysonCook - they all passed within a span of weeks of one another and all share a birthdate… https://t.co/BGbVNne9tl

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