Top Tweets for #upmovement
To read more about Angharad Wightwick and her experiences living #Lifelong with #CerebralPalsy visit our website : https://t.co/LCZ4lV5d59
#CPIsForLifeNotJustForChildhood
#LiveWell
#PreparingChildrenForAdulthood
#UPmovement
@welcometoshook

To read more about @PaulDexter and his experiences living #Lifelong with Cerebral Palsy, visit our website: https://t.co/LCZ4lV5d59
#CPIsForLifeNotJustForChildhood #UPmovement #AgingWell @WelcomeToShook

To read more about Valerie and her experiences living #lifelong with Cerebral Palsy visit our website https://t.co/LCZ4lV4FfB #LifeLong #CPIsForLifeNotJustForChildhood #UPmovement #AgingWell @WelcomeToShook

See this moving film by a member of our CP community, @bryony_moss1 . What is the impact CP can have on your mental health, and how you can find ways to meet those challenges?
https://t.co/FGu99FPOn8
#HiddenDisabilities #CerebralPalsy #UpMovement #MentalHealth
If you are a business owner or manager, we are encouraging you to get involved in #PurpleTuesday.By making even small changes to your business, you can make a big difference in the lives of people with physical disabilities. #CP #UpMovement #AccessablityForAll #DisabilityTwitter

Arrived in Ljubljana!!
‘What do we mean by Cerebral Palsy?’ discussion @EACDtweet hosted by @mackeithpress
Plus, looking forward to presenting with our international colleagues again at our 4th EACD conference.
#EACD2023 #UpMovement
European Academy of Childhood Disabilities


Thank you @CarrieALightley
for your ongoing support and inspiring words
#worldcpday #upmovement #42pCampaign
#cerebralpalsyawareness
Happy #WorldCerebralPalsyDay! I'm using today to signpost to the work of @upmovement_cp - so that we can come together as a community, share our lived experiences, and make our voices heard.
https://t.co/9UZGr1iUgJ the @RoySocMed re-shared my blog on the @upmovement_cp’s event Medicine and me: time for a new approach to adults with cerebral palsy #upmovement #cerebralpalsy #disability #medicineandme
We think the voices of adults with #CerebralPalsy have been ignored for too long!
UP-The Adult Cerebral Palsy Movement together with you, will make sure we "speak up" about what we need to "#livewell" with #CP.
#APPGonCP #UPmovement
#cerebralpalsyawareness
#inclusion

Adults with #CerebralPalsy need, want, and deserve specialist services. The sheer WORK I have put into educating my GP now has to start again. I’m lucky to have a neurologist, but via the stroke clinic. Ditto for neurophysio, who if I’m lucky I see once a month. #UPmovement

Fantastic closing comments from Emma Livingstone after a fascinating and informative event, launching the evolution of the Adult CP Movement - "We are no longer gonna take no for an answer" #UPMovement @RoySocMed @upmovement_cp #MedicineAndMe
Our founder Emma emphasises the importance of ensuring adults with CP have access to #coordinatedcare from clinicians who understand our needs.
It’s time for change.
Thanks for joining us today @RoySocMed with @samanthaTVnews
#MedicineandMe #UPmovement

“Loss of function and chronic pain are NOT things people should have to put up with”
Baroness @StephanieFraser explains tackling this in the policy landscape is critical - the APPG plays an important role in this
@CpScotland @RoySocMed #MedicineandMe #UPmovement
Mr Michail Kokkinakis highlights the need for all individuals with CP in the UK to receive orthopaedic treatment before they transition - this #earlyintervention will reduce problems in adulthood
@EvelinaLondon
@KingsCollegeLon
#MedicineandMe #UPmovement

@lilycollison talking about the importance of information on the individual's CP type. "Not knowing what to expect" is a common theme - the provision of accessible and accurate information about specific CP types is absolutely necessary. @upmovement_cp @RoySocMed #upmovement
Author @lilycollison reflects on what it is like to have a son with spastic diplegia
Research on sub-types of CP needs to be accessible to families so that they can make meaningful decisions
@RoySocMed
#MedicineandMe #UPmovement

The transition period makes many feel #isolated & #overlooked
@dipeshepatel and @Liz_Keenan_ from @ucl explore the relationship between the healthcare professional and the individual with CP through the transition period
#UPmovement #MedicineandMe
Talking about #innovation in securing access to healthcare for adults with CP in Norway @ERodbyBousquet from @lunduniversity
@RoySocMed
#UPmovement #MedicineandMe

Meaningful personal stories shared by Natalie, Dr Kirsty & Jean on their patient experiences
“We know our bodies better than anyone”
@colki1983 @RoySocMed @samanthaTVnews
#UPmovement #MedicineandMe

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