Top Tweets for #zebraproblems
Today in Living with EDS:
"Oh, I'm just going to cross my legs, and scoot just liiii--ack, no, bad knee! You get back into joint and think about what you've done!" #EDS #ZebraProblems
If I win the lottery, I'm going to have a PT share. Like a nanny share, but where you have a physical therapist you get to share to put you back together when you actually need them... #zebraproblems #EhlersDanlos
@JGjanegreen Itβs a literal pain if you have faulty connective tissue as itβs everywhere in your body. #ZebraProblems
@DownsideUpKat @H2OhTwist The struggle is real! I read a rather heavy hardcover book for about a month and I inflamed the ligaments in my hand and subluxed my thumb. #ZebraProblems
Part of me thinks it'd probably be better for my longterm health to yeetus the uterus and any endometrial tissue I'm pretty sure is floating around in there.
However I also have violent, full body convulsions when I come out of anesthesia.
#NEISvoid #hEDS #ZebraProblems
Me after getting painful sacral injections: How long should this last?
Doc: For most people, it's 6 months but for you I'd bet 3 - 4.
#EhlersDanlosSyndrome #ZebraProblems
I could go for a youth hockey parent absolutely berating me right now #ZebraProblems
The scientist in me wants to insist doctors are the experts. The reality? Doctors are utterly clueless on Zebras and make bad calls more often than not in my health.
Blindly following doctors would have killed me many times over by now. #ZebraProblems
If someone could bring me a pain free tmj and additionally, the baked cheesecake from the local pub. Iβd be eternally grateful #ZebraProblems #EDS
Of course the wind picks up and the snow starts coming down when I have to ref a game outside at Rosemont. SHIT. #ZebraProblems
When you have to skate this weekend but your foot is a turnip......π«ππ#bruisewatch #Teamstripes #whoneedstwofeet #hockeylife #zebraproblems
Dear doctors,
If you want your patients to stop trying to figure out what is wrong with them on Google get better at diagnosing zebras.
#Afflicted #ZebraProblems
Just causally hyperextending my elbow while parked #zebraproblems
Thought we played well. Deserved something out of that game. As Rosehill said, officiating stopped this from being a good one. Canβt say Iβm blaming it on the officials but they didnβt help. #Stop #Start #ZebraProblems
Drink 5 or 6 or 7??!, who's counting lol probably the not what to do for someone on the hypermobility syndrome spectrum but what the hell, you only live once!! Happy Holidays!! #zebraproblems
When you canβt tell if you have the aches or if your body is just still pissed that you fell and subluxed a bunch of joints yesterday #chroniclife #chronicillness #EhlersDanlosSyndrome #zebraproblems π¦ππ
Why can't I have the tech wisdom to match my very youthful appearance??!! #zebraproblems #itsonlyanapp
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