Sara Blazar Sharpe

#RareDisease patient advocate, #disabled dreamer, former #schoolpsych, mama to two NICU grad, bibliophile & pro napper LIVING w/ #EDS #POTS #MCAS #CVID. She/Her

[Sara Blazar Sharpe @zebrawrites]

@SpeakerCupp - Here’s why we need #OhioHB135! #PatientsCantWait #AllCopaysCount @DarrelRowland #poweredbyplasma #raredisease #healthcare #healthequity

Health insurance co-pay accumulators little known, costly for patients https://t.co/XJgJeLo2pf

[Sara Blazar Sharpe @zebrawrites]

@sharpe56 @SickosCommittee Only until the good meets start at 7 😝

[Sara Blazar Sharpe @zebrawrites]

Not to mention dangerous for students and staff with impaired immunity…

[National Organization for Rare Disorders (NORD) @RareDiseases]

Don’t forget to hop onto Twitter for NORD’s #RDDChat22 tweetchat session featuring @TheRealDoctorT & other experienced physicians talking #RareDisease, the patient/physician relationship, & more. Tune in on February 28 @ 6:30pm ET!

[Sara Blazar Sharpe @zebrawrites]

Nothing makes you feel like more of a hero than when your baby claps when you bring in his lunch 😆

[Sara Blazar Sharpe @zebrawrites]

@zarqawiyyah Be difficult when it comes to accommodating students with disabilities.

Brownie points if you’re an educational psychology department that preaches all day long about inclusion in K-12 schools and commitment to diversity.
By all means don’t recognize the hypocrisy.

[Sara Blazar Sharpe @zebrawrites]

@HemingwayMuse @MyrandaWilson2 Try here (not sure about whether she can see patients entirely virtually, but think she can): https://t.co/Aort6dJTnX

[Sara Blazar Sharpe @zebrawrites]

Also shout out to @sharpe56 who is on baby duty for most of the weekend, and just went to pick up our dinner from @Panegyri 2021. Apologies for the strange looks you're getting for parenting your baby as a male, especially earlier alone in the wilderness of @Target (sarcasm) 😝

[Sara Blazar Sharpe @zebrawrites]

Feeling ALL the #raredisease love & learning this weekend - toggling between sessions at @RareDiseases #LivingRareForum @TheEDSociety's #VSC2021 & #IDF2021PIConference #ThinkZebra #ZebraStrong #ThisisRare - Making my nerd ❤️so happy!

[Sara Blazar Sharpe @zebrawrites]

@InsomniaDoodles @RareAction Yes! Let’s do it (also fully vaccinated)

[Sara Blazar Sharpe @zebrawrites]

@metraux_julia Lack of insurance coverage for medical nutrition, forced participation in copay assistance accumulator policies for specialty medications when copay assistance doesn’t count towards out of pocket maximums

[Sara Blazar Sharpe @zebrawrites]

@DrKaraAyers @metraux_julia Yesssssss ☝🏼

[Sara Blazar Sharpe @zebrawrites]

@PanickedFoodie OMG this....For me it is #IVIG/#SCIG & #Xolair to modulate my nutty immune system & #Migraine, and then there is consequence of these things, Secondary Adrenal Insufficiency, which basically means I need a third thing to stay alive - more steroids....
#MHAM #CVID #MastCellDisease

[Sara Blazar Sharpe @zebrawrites]

@RepTimGinter @CincySeitz @DonJonesOhio @AbramsforOhio @EmiliaSykesOH @scottoelslager @PhilPlummerOH40 @K_Boggs18 @reprichbrown @LippsforOhio @phh4Toledo @SusanManchester @RepThomasWest @OHRGOPcaucus
@OhioHouseDems @SedrickDenson (My Rep)

[Sara Blazar Sharpe @zebrawrites]

@SpeakerCupp - Here’s why we need #OhioHB135! #PatientsCantWait #AllCopaysCount @DarrelRowland #poweredbyplasma #raredisease #healthcare #healthequity

Health insurance co-pay accumulators little known, costly for patients https://t.co/XJgJeLo2pf

[Sara Blazar Sharpe @zebrawrites]

@LingonberryPie @bennessb Have you had a sleep study?

[Sara Blazar Sharpe @zebrawrites]

Just posted a photo https://t.co/w2aAlRzPPn

[Sara Blazar Sharpe @zebrawrites]

@_nick________ But was it fun?

[Sara Blazar Sharpe @zebrawrites]

Just posted a photo https://t.co/id4HCeT8ry

[Sara Blazar Sharpe @zebrawrites]

Just posted a photo https://t.co/kuQZnTV4kK