ginge

Equality, diversity, inclusion, accessibility & safety professional; since 2013 I've sometimes made life with chronic illness look easier than it is. She/Her

[ginge @jeff_ginge]

Currently choosing my audiobooks based on the fact that @mattgreencomedy is the narrator. His voice cheers me up, even when reading about horrible murders.

[ginge @jeff_ginge]

@IEDPorguk follow your emails this morning re membership fee, please DM me.

[Action for ME @actionforme]

Post-viral illness isn't new. We could learn more about #LongCovid if we recognised the knowledge & experience we already have from post-viral illnesses like #MECFS, & research has a key role in this.

We need a global increase in research funding to #LearnFromME in this way.

[Action for ME @actionforme]

For this #WorldMEDay, we want to highlight the devastating impact of post-exertional malaise (PEM) on people with severe and very #SevereME.

[Julia Marie @julia_doubleday]

So the @WHO announced 1 in 10 COVID infections result in post-COVID health problems, and HUNDREDS OF MILLIONS of people will need longer term care (so, a significant slice of all humanity), the same week they announce we’re leaving the emergency phase of the pandemic ? Ok 👍

[Catherine Stubberfield @CatherineUNHCR]

UNHCR is aware of recent public statements suggesting that refugees wishing to apply for asylum in the United Kingdom should do so via the United Nations High Commissioner for Refugees’ respective offices in their home region. Our statement here:

[ginge @jeff_ginge]

@exceedhergrasp1 Reminds me of the time I was asked to review a 200page document in 24hours when I work part-time cos disabled and it would have taken many more hours than I was meant to work in any 24hrs. Did I mention it was an Equality Impact Assessment they wanted me to review?

[Raven Cozens-Hardy @RaveCozensHardy]

One rule for the 'new elite' - another rule for UK Citizens.
A UC claimant would have to declare their partners financial interests.
https://t.co/sfsOGHwMaL

[Laurie Garrett @Laurie_Garrett]

This is the kind of study likely to fuel anti-masking screaming. But note that it's based on early 2020, when few civilians could obtain effective N95 masks, the study area was under lockdowns that offset the need for masks...
Little relevance to #COVID19 now.

[Mik Scarlet @MikScarlet]

Disgusting. The minister for disabled people focusing on fraud rather than fighting for disabled people? This has made me furious. We will never gain a fair go with this as our spokesperson. Reinforcing the myth of disability benefit fraud? Honestly I'm spitting!

[ginge @jeff_ginge]

One of the hardest things about living with my ME right now (I'm almost entirely bedbound and have about 90mins a day maximum where I can use my brain) is that it has stolen most of my ability to talk on the phone. Which was my main way to receive empathy. https://t.co/HqpmG33BDk

[LBC @LBC]

'If you had the hypothesis that the government was seeking to destroy the NHS... all the data are consistent with that.'

Professor Sir @MichaelMarmot accuses the government of 'maliciously undermining' the NHS on Tonight with @AndrewMarr9.

[Eliza Charley | Actress on Pause @ElizaCharley]

It is hard living with the most-hated disease in medicine. It really is. We don’t only encounter neglect, mistreatment & stigma, we legitimately encounter hatred from the very people designated to help us. #MECFS #MEAwareness

[Katie's on the patio @SockFoam]

So not only is NIH spending on ME research down 25%, but some of the money supposedly spent on ME was actually spent on studying cancer-related fatigue. Which is a very worthy thing to study, but nothing at all to do with ME. #pwME

[ginge @jeff_ginge]

Good for him. Though it's a lot to have on his shoulders, feeling the need to represent his whole community like this. I suspect trainee officers from majority-backgrounds don't think about representing their community anywhere near this much. https://t.co/LApH9s5GUr

[. @CateOwen]

Why do I, a cis woman, speak up about trans people's rights so much? Because it's us cis women that transphobes say they're trying to protect. They're trying to weaponise us and I don't consent to that. I refuse it.

And us cis women who don't fit white lady norms? We're next.