Jeff de La Beaujardiere

I support truth, justice, feminism, science, Medicare for all, gun control, huge taxes on billionaires, climate research, and FAIR data. ALS diagnosis 5/2022.

[Jeff de La Beaujardiere @jeffdlb]

@leanne_yacyshyn All the aforementioned, plus Lifeboat

[Jeff de La Beaujardiere @jeffdlb]

@fightwithjuan Good idea. I’ve had one since April.

[Jeff de La Beaujardiere @jeffdlb]

@KickenALSAss @ScottsFight My caregivers are not through an agency. The agency I first spoke to would have charged me $42 and paid the caregiver only $17 - an outrageous markup! Also, the agency people were not allowed to do my feeding tube, which is the most essential task.

[Jeff de La Beaujardiere @jeffdlb]

@KickenALSAss @ScottsFight I have been fortunate to find several good caregivers in the Boulder/Denver area.

[Jeff de La Beaujardiere @jeffdlb]

@_jhamman If your data are already in Zarr in the Cloud, can you add ArrayLake functionality without modifying the data?

[Jeff de La Beaujardiere @jeffdlb]

@MIT_CSAIL @markrendle 1987 via NSFNET @ University of Colorado.

[Jeff de La Beaujardiere @jeffdlb]

@alsassociation @US_FDA @BrainstormCell ALS Association, your conduct has been shameful.

[Jeff de La Beaujardiere @jeffdlb]

@alsassociation No thanks for your lack of support for Nurown. You should dissolve. I'll be donating to other ALS organizations in my will, not you.

[Jeff de La Beaujardiere @jeffdlb]

@BrielmaierL @alsadvocacy Perhaps the stock price has fallen because the f'n FDA has not approved Nurown under Expanded Acces

[Jeff de La Beaujardiere @jeffdlb]

@alsadvocacy I get the impression you are not in favor of FDA approving Nurown. As an #ALS patient I find that position morally reprehensible.

[Jeff de La Beaujardiere @jeffdlb]

@Locati0ns ISO 8601 is the only sensible format: YYYY-MM-DD

[Jeff de La Beaujardiere @jeffdlb]

@MinoSean I prefer seeing people despite #ALS. I had 30 over for my 60th bday last month despite barely being able to speak. At my mom's memorial service and I will see people for first time in years. Whenever someone leaves I wonder whether it is the last time I will see them.

[Jeff de La Beaujardiere @jeffdlb]

@SteveGMedia What mask is that? Is it comfortable on the bridge of your nose?

[Jeff de La Beaujardiere @jeffdlb]

@RunningMama0522 Those NCS/EMGs are not pleasant!

[Jeff de La Beaujardiere @jeffdlb]

@sarahkarpar Sorry that happened. I've had a couple of big falls at home, and never go out without the wheelchair now.

[Jeff de La Beaujardiere @jeffdlb]

@mawson_lee @sarahkarpar @DParton61 What is a standing lifter - same as a Hoyer lift?

[Jeff de La Beaujardiere @jeffdlb]

@middleageriot

[Jeff de La Beaujardiere @jeffdlb]

@srk908 @DecodingFoxNews I believe the exact quote is "Brownie, you're doing a heck of a job."

[Alex Cole @acnewsitics]

Full letter here: https://t.co/csIes8GvmW