AP families received justice, now Telangana waits. 🙏 Requesting @PawanKalyan Garu to grant the ₹15,000 caretaker allowance for TS Muscular Dystrophy patients. @JanaSenaParty#tmda
@PawanKalyan Sir implemented ₹15,000 Caretaker Allowance for Severe Disabled patients in AP, giving life & dignity to thousands evry month. As @JanaSenaParty starts its journey in Telangana, we request d same justice 4 Telangana patients under the RPwD Act 2016 🙏@JSPshankargoud
On this Rare Disease Day, we honor the strength, resilience, and courage of all those living with Spinal Muscular Atrophy (SMA). Your journey is one of extraordinary determination, and your perseverance inspires hope and progress in the fight against rare diseases.
Dear @revanth_anumula sir we sincerely urge you 2 address d urgent needs of the Muscular Dystrophy community by providing caregivers or allowance at the earliest.Dis support is crucial 4 improving the quality of life 4 patients and their families,who face daily challenges #TMDA
#TMDA organized a MUSCULAR DYSTROPHY awareness day campaign at the Press Club followed by a rally to raise awareness. We earnestly request Honorable CM to address our needs & provide much-needed support for the Muscular Dystrophy community.
@TelanganaCMO@revanth_anumula
Just hit 17,000 levels in Candy Crush! Crushing those candies and loving every moment, this journey isn’t stopping anytime soon!
❤️ @CandyCrushSaga
❤️ @King_Games
#SMAawarenessMonth
Day 31: Meet Ishan, a 6.5 yr old #SMArtWarrior ! In 4 yrs with #Spinraza he's made incredible progress from a weak, non-sitter to achieving milestones like head control, rolling, sitting, improved leg & hand movements, and better swallowing! #BattleAgainstSMA
#SMAawarenessMonth
Day 30: Meet Vriddhi, a 3 yr old #SMArtWarrior! With 2 SMN2 copies, she started Risdiplam at 8 mos. In 2 yrs 6 mos, she's gone from a floppy child to achieving milestones: head control, rolling, sitting, improved leg & hand movements, and better swallowing! 💪
SMArtCon2024: A Resounding Success! 🎉
Thrilled to announce that our event exceeded expectations! Dynamic discussions, empowering sessions & unforgettable connections made. Heartfelt thanks to esteemed guests & panelists 🙏
Let's keep the momentum going 💪 & make a difference !
Exciting news! #SmartCon2024 has been accredited by the Delhi Medical Council as an approved CME credit program for medical students! Enhance your knowledge & skills with us! For more details on the event, check: https://t.co/q5bfJOdkXh
@rocheindia@NovartisIndia@ImpactGuru
Join us for an in-depth session on the neurological aspects of Spinal Muscular Atrophy (SMA), where experts will explore the condition’s impact and latest advancements in treatment. Expand your understanding and connect with the community!
@rocheindia@NovartisIndia
#SMAawarenessMonth
Day 22: Boost your physiotherapy sessions with the right equipment! Stretching bands, bolsters, wedges, parallel bars etc support posture, balance & mobility. Exercise balls, resistance bands enhance strengthening & stretching. #Physiotherapy#Rehabilitation
Discover the latest advancements in navigating disease-modifying therapies for #SMA.
Empower your journey with insights into cutting-edge treatments and personalized care strategies. #SMAtreatment#SMAresearch#futureofSMA
Register at: https://t.co/q5bfJOcN7J
Enhance your skills at our Free Physiotherapy Workshop with our expert panel—exclusively for students and professionals.
Join us to learn specialized techniques for SMA care and treatment! #physiotherapy#SMA#workshop
Register at: https://t.co/q5bfJOcN7J
#SMAawarenessMonth
Day 20: Empowering #SMA affected at work: Provide accessible facilities, flexible arrangements, disability awareness & equal opportunities. Inspired by #SMArtwarriors like Dr. Archana Vijayan, conquering dreams while battling #SMA! #Inclusion#BattleAgainstSMA
Join SMArtCon, the 2nd national conference on SMA organized by @curesmaindia, on Aug 24-25 at Hotel Lemon Tree, Gurgaon. Experts, researchers, and families unite to share groundbreaking research, compassionate care & collaboration. Register at : https://t.co/q5bfJOcN7J
Healthcare professionals! Join the Clinical Care Symposium at #SMArtCon2024 to discuss the latest #SMA management strategies, standards of care & innovative treatments. Engage with experts, share complex cases & enhance patient outcomes. Register at https://t.co/q5bfJOcN7J
#SMAawarenessMonth
Day 17: Discover the healing power of aquatherapy for #SMA ! Water-based therapy can Improve mobility & strength, Enhance flexibility & range of motion, Boost cardiovascular health & Reduce muscle spasms & pain!
Amazing progress in #SMArtWarriors like Anfal!
#SMAawarenessMonth
Day 18: Meet Divyesh, a 5yr old #SMArtWarrior from Chennai! Despite single-parent struggles, he's receiving @SPINRAZA treatment! With the medical team and @curesmaindia support he is showing promising improvements! Let's support his hopeful future! #SMA