Special thank you to @PalliativeMed_j for publishing this work. Thank you to our co-authors Natalie Field (@DukeMedSchool), Nikhita Nanduri, @HCGlassMD, Dr. Kathryn Pollak, Simran Bansal (@harvardmed), Blyth Lord (@CourageousCPN) and my incredible mentor Dr. Monica Lemmon! /end
Excited to share our publication in @PalliativeMed_j "A Seat at the Table: Family Conferences for Infants with Neurological Conditions" is available online! Learn a little more about this work below: /thread
https://t.co/Vxp6kok3sE
This study would not have been possible without the parents who took the time to share their stories in the hopes of helping other families and the medical community. Our group is very grateful for their insights!
Honored to be a part of this work characterizing the longitudinal experience of parents and ways to enhance support! Led by star classmate and future child neurologist Natalie Field!! @pedneurojournal@DukeMedSchool
🔍 Field et al. studied parental experiences in the Neonatal Seizure Registry. Challenges highlight need for enhanced parent support. https://t.co/mXjNRWkQYX @RShellhaasMD 🧵
An absolute privilege to work with the Neonatal Seizure Registry investigators and parent partners!
Parents reported persistent challenges of care were mitigated by joy and fulfillment in their role as a caregiver and witness to their child’s progress.
https://t.co/WlQ5p8qhV7
Since Travis founded the TRF in 1996, you have contributed $19M+ to his work. Thousands of paralyzed people are living more independent lives. Profound advances have been made in research. Prior to his death, Travis shared his gratitude, and we want to share his words with you.
While I may be the first woman in this office, I will not be the last—because every little girl watching tonight sees that this is a country of possibilities.
Travis was truly the best. He spread love wherever he went and brought so many people along with him on his mission with warmth and kindness. He was my hero and I will miss him very much. Sending love and healing to his incredible family ♥️