The Kansas City Foundation for Pulmonary Fibrosis

We are a nonprofit dedicated to supporting patients with pulmonary fibrosis and rare lung diseases through education, technology, and research.

[The Kansas City Foundation for Pulmonary Fibrosis @kcfpf]

The KCFPF is proud to sponsor two (2) Travel Grants to the 2023 Pulmonary Fibrosis Foundation (PFF) Summit! 
Apply on our website today! https://t.co/VBVt2CKXUu

[The Kansas City Foundation for Pulmonary Fibrosis @kcfpf]

Don't forget to get your tickets!

[The Kansas City Foundation for Pulmonary Fibrosis @kcfpf]

Step into frame and strike a pose on the Red Carpet! Dress to impress in your glitziest Hollywood attire at this year's annual gala with The Foundation for Pulmonary Fibrosis. Tickets on sale now!

[EU-PFF @EU_IPFF]

“Although personalized medicine is not yet established in IPF with regard to genetic alterations, in the next years it could become a concrete perspective.” (Francesco Bonella) Read more here: https://t.co/lXCP4mK9mr
#PF #PFmonth #BreathingLife #pulmonaryfibrosis #qol

[Pulmonary Fibrosis Foundation @PFFORG]

Our next webinar will be held on August 25 at noon central. This month, we'll be joined by Genetic Counselor, Janet Talbert, who will talk to us about genes associated with PF, considerations of genetic testing, and overall guidance about testing.
💻 https://t.co/9sy2B1T2Mp

[The Kansas City Foundation for Pulmonary Fibrosis @kcfpf]

Latest column by Kevin Olson.

[Pulmonary Fibrosis News @pulmonaryfibros]

Columnist Kevin Olson details his pulmonary rehabilitation journey and the goals he had to meet before being discharged from the hospital. https://t.co/P53K9BCACf

[Larry Luxner @LLuxner]

What every #PulmonaryFibrosis patient must know about #COVID_19: Read my interview with #NYC's Noah Greenspan in #RareDiseaseAdvisor. @CardioPT @LungPT @IPFWarrior #CurePF @PulmWellness @RareDiseases @RareDisease_Adv @PFFORG @BillS_PFF @THE_CPFF https://t.co/AusJWC17Eu

[Bernie Williams @bw51official]

#Sponsored: Thanks @mlb for helping raise awareness of @boehringerus’s Breathless initiative, and idiopathic pulmonary fibrosis (#IPF), the rare lung disease that took my father’s life 10 years ago.
Learn more about IPF: https://t.co/ASaZXUdJPu

[Pulmonary Fibrosis Foundation @PFFORG]

Don't forget! Our latest webinar will be held next Wednesday at noon, central time. We'll be joined by the experts to discuss the latest in pulmonary fibrosis research. https://t.co/LxhyhWeCE1

[Anna Podolanczuk @AnnaPodolanczuk]

There is a need for studies and treatments that actually help our ILD patients feel better. Congrats
@KIAronsonMD @ATSBlueEditor
on this important work.

https://t.co/0kCIkWIs8A

[Bernie Williams @bw51official]

#Sponsored: I��ve been committed to bringing awareness of #idiopathicpulmonaryfibrosis (#IPF) in honor of my dad’s memory since 2017. Most recently, I traveled to the @MLB All-Star Game to spread the word! Learn more about what Breathless means to me: https://t.co/g20RPSoCMA

[Pulmonary Fibrosis News @pulmonaryfibros]

📣 Shout Out to Kevin Olso, our Pulmonary Fibrosis News columnist 📣
In his column, he aims to awareness for those traveling on their PF journey.

👉 He also provides awareness through his local Pulmonary Fibrosis Foundation
https://t.co/2MkomuUbix

#PFwarrior #PFadvocate

[The Kansas City Foundation for Pulmonary Fibrosis @kcfpf]

This is Kevin Olson’s latest column on PF News. Ideas for September Awareness Month!

[Pulmonary Fibrosis News @pulmonaryfibros]

New Post: Individual Actions That Can Generate Pulmonary Fibrosis Awareness https://t.co/Q2Eixfvpsc

[The Kansas City Foundation for Pulmonary Fibrosis @kcfpf]

I want to welcome Rachel Wolf to the KCFPF Media Committee as a volunteer. She is instrumental in the redesign of the newsletter and the development of the About KCFPF Brochure.

July 2021 Newsletter
https://t.co/ee84P4Gk5f

About KCFPF Brochure
https://t.co/26jKIbC2Xh

[Katie Lee @cathryntlee]

A couple of important firsts for me this week-my first first-author original research publication came out in @journal_CHEST ! Ask all of your ILD patients about exposures, not just HP patients!

https://t.co/W6UwXFCA7S

[Pulmonary Fibrosis Foundation @PFFORG]

According to a survey we published last year, nearly 9 in 10 Americans do not know the symptoms of PF. In this article, we explain why early diagnosis is so important and how Americans can pinpoint PF. https://t.co/EQ4JsJh7SU

[Pulmonary Fibrosis Warrior @PFWarrior]

Vitamin D and pulmonary fibrosis: a review of molecular mechanisms from the NIH #CurePF #PFWarriors https://t.co/5vCsFu9o21

Pulmonary fibrosis is a serious interstitial disease characterized by initial diffuse alveolar inflammation, fibroblast proliferation, ECM accumulation, an