Keagan Lynggard-Hysell (she/her/hers)

Patient. Advocate. Public Speaker. Engagement Consultant. #IBD #Ostomy
"Speaking up & raising awareness for those silenced by the stigma."

[Keagan Lynggard-Hysell (she/her/hers) @keaganml]

I had #ostomy surgery ~17 years ago, but various health conditions (chronic and acute) have arisen since then. It's important to keep in mind that medical changes as well as aging may impact your ability to self-manage your #ostomy routine; whether it be now or in the future.

[UOAA @UOAA]

Aging or medical changes may someday affect your ostomy self-care. UOAA has a new checklist to help you understand the components of ostomy care and determine if you may need help.
https://t.co/YdSz76IGxz

[Don Portocarrero @GIDrDon]

The need is great. The support can be non-existent in some parts of the country or by specialty. Let's all lend a hand. Diversity and inclusion will benefit us all! #GITwitter #MedTwitter #Medstudenttwitter

[Keagan Lynggard-Hysell (she/her/hers) @keaganml]

"Ostomy Advocates Point to Research to Demand Better Patient Healthcare" https://t.co/3eyr61T9HL via @PRWeb

[UOAA @UOAA]

Do you get monthly news, events and info from UOAA? Text OSTOMY to 22828 to catch up and sign up. #ostomy #uoaa

[ASCRS_1 @ASCRS_1]

#WorldOstomyDay aims to increase public acceptance of ostomy surgery. Quality ostomy care must be provided to all regardless of race/ethnicity, age, gender, religion, place of birth, health or other status. Visit @UOAA to see how you can help drive change. https://t.co/EbVlwMnYe4

[Keagan Lynggard-Hysell (she/her/hers) @keaganml]

Check it out!! @UOAA Animated Series outlining the Ostomy and Continent Diversion Patient Bill of Rights! #ostomy #patientrights #uoaa #UOAApbor #ostomysurgery

[UOAA @UOAA]

Bringing your rights to life. Introducing the new Ostomy and Continent Diversion Patient Bill of Rights Animated Series! Patient rights start before you ever have surgery, learn more in part 1 of this series as we lead up to #WorldOstomyDay #OstomyRights https://t.co/J35bGPMde3

[David T. Rubin, MD @IBDMD]

Today is #WorldIBDDay! I want to raise awareness about the mental health impact of #Crohns and #ulcerativecolitis.
We now recommend screening for depression/anxiety in our patients with #IBD.
Ask about it and don't suffer or let others suffer in silence.
https://t.co/KEvJMj0WmA

[ACG @AmCollegeGastro]

TONIGHT! COVID-19 Vaccine Update
8-9:30pm EDT

Listen for allergy/safety recs & considerations in #IBD patients, J&J vaccine info, uptake disparities in underrep. minorities &more

➡️Register: https://t.co/9t8dHChSZw

@dr_fcalderaibd @FarrayeIBD @IBDMD @PascaleWhite1 @dagreenwald

[Keagan Lynggard-Hysell (she/her/hers) @keaganml]

@bottomlineibd And still, you look absolutely fabulous! I'll send a few recs that I know to be available beyond the states 😘 otherwise I will have to send you a little hair-care-package!

[The Bottom Line IBD @bottomlineibd]

⭐️ Best sexual positions with an #IBD fistula ⭐️ Does penetrative sex with a rectovaginal fistula have infection risk? ⭐️ Is receptive anal sex with a seton possible?

The straight-talking colorectal maestro, Mr Andy Williams breaks it down for us! Coming soon on
@IBDOnDemand...

[The Bottom Line IBD @bottomlineibd]

The lowdown on sex and #IBD from leading fistula and colorectal surgeon, Andy Williams. Fantastic, no-nonsense info for patients and HCPs.

Here's a short audio clip from my interview with him yesterday. Keep an eye on @IBDOnDemand for the full video.

➡️ https://t.co/hN5wjop3VJ

[The Bottom Line IBD @bottomlineibd]

*NEW VIDEOS*

⭐️ Three videos on perianal disease, rectovaginal fistulas and sex in #IBD are now available via my new @IBDOnDemand channel. https://t.co/ljTbm0HUrI

I am very grateful indeed to the perianal maestro, Mr Andy Williams for donating his time to help educate us. ⭐️

[The Bottom Line IBD @bottomlineibd]

An advisory note on these videos about sex and #IBD... they are very direct in their approach. If explicit detail offends you, they may not be suitable for you.

Mr Williams isn't known for pulling his punches (neither am I!), which is exactly why he was the right interviewee! ⭐️

[The Bottom Line IBD @bottomlineibd]

Talking sex in #IBD.

3 great new educational videos on perianal disease in IBD. Surgeon Andy Williams shares his top tips with me on communicating sex in IBD.

🔸Overview of perianal disease
🔸Overview of rectovaginal fistulas
🔸Sex and perianal disease

https://t.co/ljTbm0HUrI

[Keagan Lynggard-Hysell (she/her/hers) @keaganml]

Recently learned a bit about #HERVs and now I'm curious 🤔 Do these "viral fossils" have any potential use in relation to #phagetherapy ? Maybe @chngin_the_wrld can weigh in on this

[Keagan Lynggard-Hysell (she/her/hers) @keaganml]

@OWCalifornia "With or without traffic?"

[Keagan Lynggard-Hysell (she/her/hers) @keaganml]

Just posted a photo https://t.co/JEEsmKdb7i

[Keagan Lynggard-Hysell (she/her/hers) @keaganml]

Have you been diagnosed with a rare or unusual condition in addition to your #IBD (Crohn's or Ulcerative Colitis)? Have you been told your conditions are related? If so, share your experience with @bottomlineibd

[The Bottom Line IBD @bottomlineibd]

I'm on the hunt for people with Crohn's or ulcerative colitis who have unusual or rare other conditions that have been proven to be associated with their #IBD.

If this is you and you are happy to chat, please DM me. Thanks.

[Keagan Lynggard-Hysell (she/her/hers) @keaganml]

@louisehelenhunt @bottomlineibd @MondayNightIBD @Empoweringpts9 @DCharabaty @ibdseb Severe mouth ulcers were actually my first symptom long before I was ever diagnosed and they still persist. Most of my skin challenges have been the result of medications/steroids including acne and melasma. Would also like to include atopic dermatitis from various ostomy product

[Keagan Lynggard-Hysell (she/her/hers) @keaganml]

@bottomlineibd @GI_PharmD Currently on methotrexate injections. No nausea that I notice specifically from the methotrexate, didn't know fatigue was a possible side effect. I often find the side effects of the meds are so similar to IBD symptoms....it's often hard to differentiate between the two??