Kristine Carandang

Rheum Arthritis Patient, OTR/L, PhD - Collaborate with patients in your research! Co-Lead of Young @yp_area

[Kristine Carandang @kmc5k]

@Dr_K @eular_org @yp_area we made it to Barcelona!

[Dr. Kaleb Michaud @Dr_K]

So proud and impressed w @kmc5k Plenary here at #EULAR @eular_org Congress 2025 Let’s make it easier for our younger patients to shape research!

[Kristine Carandang @kmc5k]

@CreakyJoints @GHLForg @eular_org @SethSaidSo I heard you were in Vienna but we never ran into each other. I think that means let’s meet in Barcelona? #eular2025

[Kristine Carandang @kmc5k]

Okay #occupationaltherapy friends this looks like a study we can build off of!? @realcc

[David Liew @drdavidliew]

Bold conclusion from Japan:
laughter improves function in RA.
I like it

Feel like it might be partially a correlation/causation link but if an hour of laughter can push down IL-6 levels in RA patients, time for reimbursement for stand up comedy?

#EULAR2024 POS1029 @RheumNow

[Kristine Carandang @kmc5k]

@PresLupusWP @sammy_ainsworth This was an awesome talk! Looking forward to more collaboration with Sammy. @carrainc transition group let’s make this happen :)

[Kristine Carandang @kmc5k]

@DrAiLynTan @eular_org @DrAiLynTan Absolutely it was interesting! Thank you for all the tips. Podcasts scare me but you made it approachable. Can’t wait to share my next paper on one.

[Kristine Carandang @kmc5k]

I don’t use Twitter/X much but @DrAiLynTan just suggested if I don’t post that I went to @eular_org Congress - then it may not have really happened.

[Shelley Fritz @shelley_fritz1]

These friends inspire me. Thankful we were able to spend some time together during #ACR23. @kmc5k We didn’t solve all of the problems with rheumatology tonight but we tried.

[Kristine Carandang @kmc5k]

@realcc @Dividivigirl such a great photo!

[Young Patients' AREA @yp_area]

Learning from Kimberly Seals Allers & Ebony Boulware about how the foundations of the US health system were built in a racist way & how the tiering needs to be dismantled for improvement. Thanks @PCORI for this session addressing racism and discrimination. #PCORI23

[The Patient-Centered Outcomes Research Institute @PCORI]

Thank you to our keynote speakers Suzanne Schrandt and Catherine Ames for their fantastic discussion and an invigorating way to start #PCORI23!

[Young Patients' AREA @yp_area]

“I look for a time where we get beyond survive to thrive in wellness and affirmation...I can’t train people to have empathy to give a damn for people who aren’t like them... We are not checkboxes, we are human beings seeking care.” - Mason Dunn #PCORI23 @PCORI

[Young Patients' AREA @yp_area]

“We train researchers to look at the literature and come up with questions in their head… but we know that the literature is bias... We need to start from the communities.” - Rupa Valdez @PCORI #PCORI23 —> Questions need to be from the COMMUNITIES that are being impacted.

[The Patient-Centered Outcomes Research Institute @PCORI]

Suz Schrandt outlines her insights on the two “types of patient engagement”.

Type A is personal engagement = “How am I managing my engagement with my diagnosis, condition, shared decision making.”

Type B “system level” patient engagement = “how am I using my personal experience to become a leader to help shape and direct research.

#pcori23

[Young Patients' AREA @yp_area]

@PCORI Suz Schrandt, YP AREA's former advisor -- Type A patient engagement (things you do to take care of yourself as a patient!) needs to be built on Type B patient engagement (eg patients on research teams helping to build programs in the healthcare system!). #pcori23

[Young Patients' AREA @yp_area]

@pcori So proud of Council Member Catherine Ames for giving the keynote at #PCORI23!! --> Currently talking about how we want to learn research from incredibly smart academics, but we cannot because they're behind paywalls!

[Kristine Carandang @kmc5k]

Thanks for another #creakychats @CreakyJoints ! We talk about seasonal and life transitions a lot at @yp_area! So important but overlooked. Until next time-

[Kristine Carandang @kmc5k]

@CreakyJoints @LAlupusLady only with @IAmEddie75 & @fritz_shelley who both couldn't make it to today's chat 🍵

[CreakyJoints.org @CreakyJoints]

@kmc5k @LAlupusLady Spill the tea Kristine 👀 #CreakyChats

[Kristine Carandang @kmc5k]

A4) Be open to people and schedules that don't exactly fit the syllabus. #creakychats