Amelia C. Valvano

Mom of James Valvano at #WeHaveAFace advocating for Huntington's disease!

[HDSA @HDSA]

This Week In #HuntingtonsDisease Research!
Read the latest post at https://t.co/AXP8l8CkTt

THIS WEEK
- HD Advocate Testifies on #HDParityAct
- @Help4HDI Podcast
- @WeHaveAFace Interview with HDSA's President & CEO Louise Vetter

#LetsTalkAboutHD #HDSAFamily

[🦋 WendyMarie 🦋 @WendyMarie7121]

@JasonRitter @carlyritter @NancyMRitter

[HDSA @HDSA]

#LetsTalkAboutHD with @WeHaveAFace & HDSA's Jennifer Simpson! To learn more about the #HDParityAct, please visit https://t.co/VnO9toPyZ3

🔊https://t.co/o8Ww9VPNnv

#HuntingtonsDisease #HDSAFamily

[HDSA @HDSA]

@WeHaveAFace 💙#LetsTalkAboutHD #HDSAFamily #HuntingtonsDisease

[HDSA @HDSA]

It is #BrainAwarenessWeek so #LetsTalkAboutHD with #WeHaveAVoiceRadio
https://t.co/IldvLzSWuo

#HuntingtonsDisease #HDSAFamily

[Kevin Jess @DJKevinJess]

#CHDI #TEVA #UniQure

[Kevin Jess @DJKevinJess]

Fantastic WeHaveAVoice Radio show lineup for March. #HuntingtonsDisease #CureHD @WeHaveAFace https://t.co/8AZxskDVVt

[Kevin Jess @DJKevinJess]

@WeHaveAFace @RochePharmaDK @TevaUSA @uniQure_NV #HuntingtonsDisease #JuvenileHuntingtonsDisease @WHAFCanada @

https://t.co/YGFtwIusfD

[HuntingtonStudyGroup @HuntingtonSG]

Interested in being a sponsor at our annual meeting #HSG2019 in Sacramento this November? We've posted the available packages and opportunities for organizations to engage with our network of members and the HD community at this year's meeting. https://t.co/6TCKv9Ch2T

[kaylee & daisy 🌼 @borderline_babe]

I’m in the UK going to look into this Thankyou for this post. Someone close to me has Huntington’s

[HDYO @HDYOFeed]

Productive first call today organized by @HuntingtonSG working to bring many HD advocacy groups to one table to start collaborating together more strategically! RT if you’re in! @Help4HDI @HDReach @HuntingtonSC @HDSA @WeHaveAFace @EHDN_GRANTM #AllinTogether #HuntingtonsDisease

[Kevin Jess @DJKevinJess]

Listen to "James Valvano talks with Kevin about his climb in Scotland" by WeHaveAVoice via #spreaker https://t.co/v3fbz9Hs9N

[CM Moore @moore179952]

#WeHaveFace #Canada 3rd Annual #HuntingtonsDisease and #JuvenileHuntingtonDisease Walk! Join us! https://t.co/O7JqyLkzMP

[Kevin Jess @DJKevinJess]

https://t.co/dTPhVlellj Nova Scotia premiere of The Purple Road.

[Katy @katy_scarletta]

@DrEdWild @WeHaveAFace So brilliant.

[Jayne Innes 🌹 @JayneInnes]

@DrEdWild @WeHaveAFace How lovely - congratulations Ed 😊

[Dr. Jan Nolta @jan_nolta]

Thank you to @WeHaveAFace for the excellence in research awards for our work in #huntingtonsdisease and Juvenile HD!

[Dr. Jan Nolta @jan_nolta]

James Valvano interviews @DrEdWild at the @WeHaveAFace Annual Convention in Orlando. Discussing the important clinical trial of the Gene Lowering DNA Drug for #huntingtonsdisease from Ionis & Roche. First time the HTT protein has been lowered. Much Hope! 💙💜

[CM Moore @moore179952]

Roche and AAN Huntington's Community Statement https://t.co/M3j4AQxZT4

[Kevin Jess @DJKevinJess]

Roche and AAN Huntington's Community Statement
https://t.co/OpPC3L29Yz