Carla Ingham

Creative & random

[Carla Ingham @Lala_Buttons]

So our Gov in UK still refuses to invest in ensuring the most severe people with #MECFS are able to be treated in hospital. Meaning their only option becomes being incorrectly sectioned & deteriorating faster until death or going home & starving to death.

[ME Research UK @MEResearchUK]

"There are currently no plans to develop a separate specification for severe and very severe ME/CFS." Government rejects developing a NHS England-wide template service specification revealed in parliamentary answer. https://t.co/FpMWhyrcZI

[Carla Ingham @Lala_Buttons]

@sml_thms @johnpringdns The DWP dont follow the law either when making decisions. They often overturned tribunal decisions at review when theres been no change or even deterioration which theirs a precedent case law against

[Carla Ingham @Lala_Buttons]

@johnpringdns The assessors they already hire woth years of experience often don't have the necessary knowledge & understanding of complex conditions & how they affect claimants so a DWP worker doesn't stand a chance. Appeals are going increase even more putting even more lives at risk.

[Carla Ingham @Lala_Buttons]

@DisRightsUK Exactly, the process shouldn't cause more stress & deterioration in peoples severity of their symptoms/condition which often it does & often this deterioration can be permanent when going through lengthy appeal processes for people with ME/CFS

[Carla Ingham @Lala_Buttons]

@PlanetEarth_HD @grouch_bag Exactly this too!! To even enjoy some of the boring things like doing grocery shopping in the shops, its certainly not a life worth stopping working, if getting my health meant working again i would take it immediately no questions asked!

[Carla Ingham @Lala_Buttons]

@PaulGadsden82 Same i never saw this future for me, my health took dramatic turn for worse that turned my entire life upside down & goodbye all future hopes & dreams I had wanted. Then the system is really a shock to deal with when you have never dealt with it before.Was a massive eye opener.

[Carla Ingham @Lala_Buttons]

@PaulGadsden82 Uk, I would pay for my own meal i qaz raised to be independent & dont think its right to expect some guy in just met to pay for me. Even in a relationship both should be putting into everything financially, in home chores, raising children etc % would depend on situation factors

[Carla Ingham @Lala_Buttons]

#MEAwareness week & my thoughts on this-people have been sick for 40 years & still no treatment available, medical professionals still aren't upto date & following NICE guidelines, hospital still unable to provide care for severe patients, sufferers still treated under the MH act

[Carla Ingham @Lala_Buttons]

Petition: Require all AI musicians and songs to have a visible AI notice https://t.co/V3NVaKcwbK

There needs to be more transparency overall in everything where AI is being used

[ALDTU aldtu.bsky.social @LDTradeUnionist]

DWP refuses to say who will lose out in £2 billion cuts to disability benefits, six weeks after budget
https://t.co/hI5vNZiUPJ
@SteveDarlingMP @johnpringdns @MarishaRayLD @DisabilityLD @DavidBuxtondc @UniteEqualities @mariecgoldman @TUCEquality @sarahwoolley01 @GFTU1

[Carla Ingham @Lala_Buttons]

@DRDisabilityReb This could bring to light so many really important areas that aren't often well discussed openly & giving people the ability to give their experiences privately puts more chance of them willing to open up. Its great

[Carla Ingham @Lala_Buttons]

@RachelCDailey Guessing specialist training would also need to be done on site too which for most people wouldn't be located anywhere near where they lived most likely cities.

[Carla Ingham @Lala_Buttons]

@johnpringdns Safeguarding. HA! That doesn't exist within the DWP, you could ring & tell them you won't make your appointment because you are killing yourself & all they would do us warn you that you could lose your benefits for not attending

[Tom Kindlon @TomKindlon]

A big thank you to everyone who did anything, big or small, for the Myalgic Encephalomyelitis / Chronic Fatigue Syndrome +/or Long Covid cause in 2025 (including simply sharing messages on social media). 👏

Together we can make a difference. 👍

#MEcfs #LongCovid

[Carla Ingham @Lala_Buttons]

@BrophyJed Nothing beats having that time with family,Time well spent, i have to agree its definitely been a year even at the otherside of the world, Turning off all socialmedia & news & enjoying some of the more simpler things like it was when we were younger is definitely the way forward.

[Carla Ingham @Lala_Buttons]

@mecfsskeptic Patients really dont see the point of wasting limited energy going to drs to be told theres nothing they can do, as most drs have less current up to date knowledge if any knowledge than the patient of the condition. It tends to be at the first stages of diagnosis they see drs.

[Ror Preston @RorPreston]

NIH research funding for ME/CFS for has been dramatically lower for many years than other comparable diseases with lower total disease burden in the U.S.

ME/CFS has the highest estimated burden (in DALYs) of those shown, and yet funding is barely off the floor.

#MECFS

[Carla Ingham @Lala_Buttons]

If only medical professionals actually read the guidelines & followed them but they don't

[ME Association @MEAssociation]

Parliamentary Question: To ask the Secretary of State for Health and Social Care, what assessment he has made of patient safety risks, including those relating to malnutrition, among people with severe and very severe ME/CFS in England.

https://t.co/RIZ9FPJFtG

#MECFS #Nutrition #Malnutrition

[Carla Ingham @Lala_Buttons]

@MEAssociation @MalnutritionME Well all those medical guidelines are totally pointless when its not compulsory for them to be read and abide by, this is why we are still having patients treated as mental health patients & refused feeding. Some Drs won't let go of outdated and scientifically disproved info.

[Carla Ingham @Lala_Buttons]

Im not even surprised by this especially with how many sufferers have been treated in hospital in the past 2 years & right now being refused help & treated as by mental health drs. Its diabolical #mecfs

[EndMalnutritioninME @MalnutritionME]

2021: NICE guidance states:
"Refer people with severe or very severe #ME/CFS for a dietetic assessment by a dietitian with a special interest in ME/CFS."
2025: The govt has has no information that such #dietitians exist.
@BDA @BAPENUK #EndMalnutritionInME