Amanda Montagano

[Amanda Montagano @littlehoef]

Make ME/CFS learning mandatory for NHS staff - Sign the Petition! https://t.co/nhGge9kuWY via @UKChange

[Martin @pausedME]

#SevereME is a haunting.

It is a horrifying presence that never leaves you, not at night or during the day.

It torments you.

Until many vanish.

First, their personalities. Then, quite often - too often - their lives.

#MECFS

[Amanda Montagano @littlehoef]

@mhdksafa Hello,thinking of you

[Amanda Montagano @littlehoef]

@RDGravityME 10

[Amanda Montagano @littlehoef]

@hopefullizzy That’s awful

[Amanda Montagano @littlehoef]

@Talmandaniel Bless your heart,it is a hard road we travel

[Nele @NeleHelena]

I couldn't have said it better myself. My best friend posted this about me a month ago.

I'm too sick for euthanasia 🙃

By the way, I don't want it today. However, considering how progressive my illness is, it is something that needs to be prepared.

[Amanda Montagano @littlehoef]

@ahandvanish I struggle so much with hope

[Amanda Montagano @littlehoef]

@agy_lena So very very sad,it all just makes me so very angry
Rest in peace

[Amanda Montagano @littlehoef]

@DafoeWhitney I often feel as if I am disappearing.
Sending love and gentle hugs

[Amanda Montagano @littlehoef]

Nadine Dorries : Save the BBC: oppose the abolition of the license fee - Sign the Petition! https://t.co/vwHoyGUcOU via @UKChange

[Valerie Eliot Smith @ValeriEliotSmit]

May is #ME awareness month. A reminder for everyone who is unfamiliar with the long, torturous history of this illness, first documented in 1934:
"The history of ME remains one of the worst examples of unacknowledged institutional abuse in modern times" ~ Valerie Eliot Smith 2019

[Winston Blick @winstoncb]

It would be difficult to design a condition that causes as much suffering as #MECFS while demanding any less attention from policymakers & the general public.

I describe why in this open letter to friends & family that touches on my 6 year journey: https://t.co/VCp0AiUlg2 #pwME

[Amanda Montagano @littlehoef]

@resiapretorius @artistemme @polybioRF Thank you so very much!

[Amanda Montagano @littlehoef]

Boris Johnson: Don't scrap free covid testing and isolation! - Sign the Petition! https://t.co/y2fygG0MXz via @UKChange

[Amanda Montagano @littlehoef]

@ME_AndMy_Island Thank you so much

[Amanda Montagano @littlehoef]

@ME_AndMy_Island Black boots, Mandy ,1989

[Amanda Montagano @littlehoef]

@eliistender10 My grandson’s born

[MT Girl @MTGirl4Good]

Thread with link to the full YouTube video below.
I hope you’ll watch and share.

#LongCovid #MECFS #MillionsMissing #NEIS

[Caroline Struthers @Healthy_Control]

#PublishThatGuideline @NICEComms #pwME