Cher Noreen

ME/CFS sufferer. Functionality creator. Disability advocate. And dog mama.

[Cher Noreen @CherNoreen]

@Bannons_WarRoom Translation: The peasants are angry! Quick, make laws that give us the authority to do the illegal shit we've done. If we don't take absolute control of the government now--& out of the hands of democracy--we'll lose our oligarchy.

[Laura N. Rodríguez Presa @LAURA_N_ROD]

More street vendors taken by ICE today, according to rapid response team & neighborhood reports.

Masked men arrested one of Pilsen’s longtime tamal vendors near Damen and 21st Pl, by Chase.

Those ladies are very loved by the community. I bought tamales from her many times.

[Pablo Manríquez @PabloReports]

SOUTHSIDE CHICAGO — Windy City residents run off immigration agents to save a man mid-abduction at 63rd and Kostner Ave.

[Cher Noreen @CherNoreen]

@HermansBigshoe @dipsMUFC Just assume it was originally created for someone with a disability. Like remote controls, sidewalk ramps, automated doors, keyboards, bendy straws, and audiobooks. Then maybe you won't need to complain about fun being accessible for everyone

[Cher Noreen @CherNoreen]

@AmyLeMesmer

[Solve ME/CFS Initiative @PlzSolveCFS]

Sign & share the @PlzSolveCFS open letter asking @SenSanders & the Senate HELP Comm. to include #IACCIs to proposed #LongCovid Moonshot legislation & help 73M+ Americans impacted by IACCIs like #MECFS #POTS #Dysautonomia #Fibromyalgia #Lyme #MCAS. https://t.co/U2TQlj52Xh

[Cher Noreen @CherNoreen]

@Alina_MSN_RN @sunsopeningband It looks like they are intentionally trying to give PR head pats to pwME, while hiding valuable data behind an abstract that future researchers will interpret as evidence for the biopsychosocial model. This paper could match the PACE trial papers for its ethics

[Cher Noreen @CherNoreen]

@sunsopeningband @mediumwhite Hell, there's a better paper that came out of the same study!! But they isolated it from corroborating info that they hid deep in the paper, while denying its existence in the abstract and discussions section. Hiding all the good data behind this awful abstract is unethical.

[Cher Noreen @CherNoreen]

@mfairma Absolutely!!! I waited years bc I didn't know how, didn't have the medical support, and was actively discouraged by my doctor. Even if you have other financial support, apply!!!! If you can ask anyone for help, get assistance with this!!!

[Cher Noreen @CherNoreen]

@dancingstrheart @renesugar @oslersweb @JanetDafoe Can you point me to the original drafts?

[Cher Noreen @CherNoreen]

@jenbrea I'd like to understand why medical professionals dismiss so many of these diagnoses. Why does my POTS neuro only care about POTS and not MECFS, EDS, or MCAS? What's the politics in health care that drives this - apathy or narrow mindedness?

[Cher Noreen @CherNoreen]

@Angry_Staffer It isn't throwing it away. It's letting the DNC know that they need to do better. If we didn't have those elections that were lost by 3rd party candidates, the DNC would assume people are happy enough with their politics. Clearly they aren't. Change the DNC. Don't guilt voters

[Cher Noreen @CherNoreen]

@Angry_Staffer For many the difference btwn the DNC & GOP is negligible, esp wrt how they toady to corporate and wealthy interests. They aren't voting for the GOP but against an entire system that has failed them. Saying they "let the GOP win" misses the point that the DNC fails them too

[dSavannah = #disabled #MEep (#pwME) @dSavannahCreate]

It's #MEAwarenessMonth, and tomorrow (May 12) is #WorldMeDay. So how am I "celebrating"? Not by doing advocacy, not by sharing a bunch of other posts, not by writing for my blog. I can't. I'm too tired. (Except for this post, of course.)

I am one of the #MillionsMissing

1/

[Cher Noreen @CherNoreen]

@eattattooedchef The oven baking instructions on your sheet pan veggies are off. My veggies came out charred all the way through.

[Cher Noreen @CherNoreen]

I hope @RepMGP @SenatorCantwell @PattyMurray will join in supporting the #CAREforLongCOVID Act 2023. Help us fund research, education, and support services for people with infection associated chronic illnesses like #LongCOVID and #MECFS #StopTheLongHaul https://t.co/2tvmjRi29b

[Cher Noreen @CherNoreen]

@PolarGlobal When using Polar Beat zones, if I go above my upper limit for zone 5, does that get counted as time in zone 5? Or is it not counted at all? #Dysautonomia #disabilityhack

[Cher Noreen @CherNoreen]

@dysclinic Patients fantasies

[Cher Noreen @CherNoreen]

@KunstJonas @Dr_M_Guthridge Yes please!!! Right now I'm just trying to turn it into an easy to read printout I can give my medical providers. It would be so much better as an official review paper.

[Cher Noreen @CherNoreen]

@SenMarkey @SenatorCantwell @PattyMurray Please find ways to actively assist with and support this!! The medical care from most Drs in WA state is outdated and harmful. We need better.