lori caref

Seeking data and hope for HR+/HER2- MBC

[lori caref @lor8ena]

@MBCadvocate @drsarahsam Thank you so very much. This community has given me so much information and so much hope. 😘

[lori caref @lor8ena]

@MBCadvocate @RNAoncology @BriaCell She asked her doctor about histotripsy several months back but I think there were too many mets. I think they like it for someone who has maybe a few large ones. Not sure but apparently there is a lot of criteria to meet.

[lori caref @lor8ena]

@MBCadvocate @drsarahsam she's already had whole brain radiation for two weeks for the LMD, but thank you!!

[lori caref @lor8ena]

@BearroristJodi I'm so very sorry for your loss. I'm going to soon lose my sister to cancer. Sending you virtual hugs. Sisters are precious. xoxoxo

[lori caref @lor8ena]

@MBCadvocate @RNAoncology @BriaCell I emailed CureTeq and asked about right to try. I'm sure it's a dead end, but have to try. Cannot believe there is a potential cure out there that cannot be accessed.

[lori caref @lor8ena]

@Dr_RShatsky My sister was just diagnosed with this and we can’t even get her a bed with her primary onc team let alone begin treatment.

[lori caref @lor8ena]

@marctate10 he really was. I felt so much hope reading his posts. he seems like a really kind and intelligent person.

[lori caref @lor8ena]

has anyone heard from Dirk the Cancer Fighter/Rushmorealum? I hope he and his wife are ok. He gave me so much hope and is the reason I joined X.

[lori caref @lor8ena]

@marctate10 I don't know his name. I assume the worst has happened. I just wanted to tell him how important his information was to me, but I don't want to intrude. thanks for replying!

[lori caref @lor8ena]

@DanaFarber why aren't MBC patients offered whole exome sequencing to evaluate whether immunotherapy would be effective?

[lori caref @lor8ena]

@frannie_clark @Dr_RShatsky my sister was recently diagnosed with ONJ. I assume you had surgery? how are things now? so sorry, what an awful experience!

[lori caref @lor8ena]

@Dr_RShatsky great question! my sister now has this! what are we doing to these women? she has had more issues from MBC meds than from MBC.

[lori caref @lor8ena]

@KristinaRevay my sister was just diagnosed with this. how is your friend doing?

[lori caref @lor8ena]

@RidenourCecilia @katievscancer @NinaWil83565015 @ThanksCancer my sister is on Enhertu now and having such a hard time. are you on something different now? searching for hope!

[lori caref @lor8ena]

@dr_yakupergun @PTarantinoMD how is this the holy grail when it stops working after 7 months? there is essentially nothing left to try for my 52yo sister.

[lori caref @lor8ena]

@CancerCanuck He was so unique, in all the good ways. It's gut wrenchingly unfair for a human so stellar to not live a long life. I'm so sorry for your loss.

[lori caref @lor8ena]

@fvalstounge @conni_t212 @BriaCell Is BriaCell actively recruiting?