We would be very grateful for your support through donations or participation in our Piedmont Pulmonary Fibrosis Walk - Striding for a Cure. https://t.co/xth5B6bsTq
Dr. Amy Case @ahajaricase deftly highlights some of the challenges encountered with Clinical trials and how they affect observed outcomes.
Engaging broader enrollment, more accessible sites, and more diverse participation is key!
#PFF2023@PFFORG#CurePF
Opening session of @PFFORG - Nurse and Allied Session - compelling patient talk on her journey to remind all of us on “our why”followed by outstanding talks by ILD nurse experts. 👏👏👏
There's a concept called the "Four Stages of Competence" that I refer to when learning something new.
It was first created by Matthew Broadwell in 1969.
It says we progress through stages when moving from total novice to expert at a given craft.
The stages are as follows:
The word “pulmonary” means lung and the word “fibrosis” means scar tissue— similar to scars that you may have on your skin from an old injury or surgery. So, in its simplest sense, “pulmonary fibrosis” means scarring in the lungs.
A survey conducted by the Pulmonary Fibrosis Foundation in 2020 revealed that 86% of Americans do not know the symptoms of pulmonary fibrosis. Despite the overall lack of awareness of PF symptoms, 82% of Americans consider PF to be a serious disease.
Reopening thread to our patients 1/8 (relevant also friends, neighbors, family, peers, all) - many years ago, a veteran of many wars told me that the days of ceasefire were very dangerous. This was because precautions were lifted but risk was still there (see next) #COVID19