Meriam Rllb

PharmD, 26, Long Covid March 2020 | ME/CFS | POTS | Personal IG : meriamrhallab | Chronic illness IG : lowbatterydreams

[Meriam Rllb @lowbatterydream]

2 years of Long Covid today. I'm 24.
I was naively happily then. Now I've aged 20 years mentally and physically. Please keep protecting yourself, you can't imagine how hard this is. #LongCovid #MECFS #TreatLongCovid

[Meriam Rllb @lowbatterydream]

@chydorina Okay, thank you!

[Meriam Rllb @lowbatterydream]

@32Sfc46582 @DeryaTR_ Merci bcp 🙏

[Meriam Rllb @lowbatterydream]

@32Sfc46582 @DeryaTR_ Je suis vraiment dsl Romain, je t'envoie plein de courage, je suis alitée ça ft 5 ans c horrible😢
Est ce que ça te dérangerait que jte dmd plus d'infos sur qui te suit en France?

[Danilo.Buonsenso_Surf4Children @surf4children]

“We Can’t Do This Alone”: A Doctor’s Plea for Support in Caring for Long COVID and ME/CFS Patients

https://t.co/CpFguXznBW

[Meriam Rllb @lowbatterydream]

@alexandrite113 Face is still tea tho😏

[Meriam Rllb @lowbatterydream]

@talibruel @AndrewG76201347 Nk, cd4, cd8, lympho and mono all normal. IL-6 and IL-12 normal. No known viral reactivation

[Meriam Rllb @lowbatterydream]

Is trying Rapamycin worth it? Would love some support and info please🙏 esp about sleeping and insomnia
#MECFS
#LongCovid

[Meriam Rllb @lowbatterydream]

@spoonfulofhan 💚

[Meriam Rllb @lowbatterydream]

@useless_priest Yes I'm severe and I have bad headaches but thankfully that's it

[eIisa @mildTin]

The results from DecodeME are significant because they give scientists a roadmap to uncovering the disease mechanisms behind ME/CFS, and more confidence for funders, regulators and industry partners to get involved.

[Meriam Rllb @lowbatterydream]

@spoonfulofhan 💚💚

[Meriam Rllb @lowbatterydream]

@Mrsloulizzy @Brie_FI Thank you

[Meriam Rllb @lowbatterydream]

@Mrsloulizzy @Brie_FI May I ask what dose did you reach?

[Meriam Rllb @lowbatterydream]

@Mrsloulizzy @Brie_FI I agree you should do your research carefully and have a doctor follow your trial. Rapamycin is an immunosuppressant and a dangerous drug.

[Meriam Rllb @lowbatterydream]

@klmatter Oh yes I will start prob at 0.25 mg per week. Not taking any chances

[Meriam Rllb @lowbatterydream]

@klmatter Hopefully yes i could use a sleep boost

[Meriam Rllb @lowbatterydream]

@klmatter Yes I know tried both but they're not strong enough for me haha

[Meriam Rllb @lowbatterydream]

@klmatter It is but not on its own, i'm on quetiapine too😒

[Meriam Rllb @lowbatterydream]

@S2less_monkey Interesting, I don't seem to respond to antihistamins but never tried the antivirals but they're on my list. And thank you much😊

[Meriam Rllb @lowbatterydream]

@klmatter That's good news honeslty, yes I take quivivq (daridorexant) for sleep it's the EU version of dayvigo