Mad Price Ball

Exec Director @OpenHumansOrg • Alum @ShuttleworthFdn • open (health|data|science|humans) • they/them 🏳️‍⚧️ • spouse of @cjbprime, parent, mad scientist

[Mad Price Ball @madprime]

Hi, I'm Mad! Welcome to my blockchain rant. Specifically: for genomes, health, and personal data.

"Why aren't you using blockchain?" they ask me. I'll tell you why!

Maybe you can RT this – or quote specific points – to inoculate other folks against fuzzy-brained BS 😞 1/16

[Mad Price Ball @madprime]

@descieth 👋 I'm going to be busy hosting a weekly chat at the same time today, but I'm interested to hear what people are thinking about 🙂

I'd love to be pointed to anything I can look at later (e.g. notes)! 🙏

[quantifiedself @quantifiedself]

It's out! A careful description of building a community research project using highly personal information, including self-report of symptoms and wearable data, based on principles of participatory knowledge making and individual control of data.

[Dana M. Lewis | #OpenAPS 🤖 @danamlewis]

I had the opportunity to speak this morning at #ADA2021 about who (open source) closed looping is for.

My take?

It's for everyone who wants to use it, although not everyone will choose to do so. But those who choose to use it should be able to access it. Here's why:

[Mad Price Ball @madprime]

In particular, to Mysterious Reviewer #2: THANK YOU!

It was thoughtful and constructive. It took time for you to do that! I really like the updates it prompted. 🙏

[Research - Learning Planet Institute @research_lpi]

Check out the latest preprint by our @FIREPhD student @k_kloppenborg with support by @madprime and @gedankenstuecke to learn about how peer production is practically implemented in citizen science platforms.

[Mad Price Ball @madprime]

@ShuttleworthFdn @gedankenstuecke Thanks!

You might want to quote retweet @k_kloppenborg’s original — it threads some more details about the paper, and she’s first author (did the most work!)

[Mad Price Ball @madprime]

@mmillions happy birthday!

I'm not even going to try to be pretentious. pharrell williams' song still works for me, and the kids like it too ;)
https://t.co/2S8N9PLNo6

[Mad Price Ball @madprime]

"Peer production" describes things like Wikipedia & open source - can that exist for science, too?

@k_kloppenborg uses three case studies to see how "citizen science" projects stack up!

[Felix Reda @Senficon]

Germany is on the wrong side of history on this, valuing profits over human lives. Shameful stance. Even France supports the #TRIPSWaiver now. https://t.co/nViE057fKg #PeoplesVaccine

[Mad Price Ball @madprime]

School reopened today! After more than a year, and two diagnoses of ADHD... 😓

What next?

For today at least, I felt like this scene: https://t.co/yghzyV10dW

[yo yehudi stays away from humans! 🏳️‍🌈 @yoyehudi]

Help fund trans-led research into the trans healthcare issues. Please donate if you can and share onwards so this amazing team can get to the full optimal finding target 👇👇

[Dr. Malin Sandström / @[email protected] @msandstr]

Looking for a cause to support on #InternationalWomensDay ? I know some of the people involved in this one, great scientists and humans both.

[Amanda Palmer 🎹 @amandapalmer]

TRANSBIOME - a crowdfund for transgender health @ £4k of their goal already. new platform to me, too, nice to meet you @goteofunding. support & share! https://t.co/8w5oVN45W6

[Shuttleworth @ShuttleworthFdn]

An important contribution to the health of transwomen and MtX folks from @OpenHumansOrg, @LehenaffClara and @gedankenstuecke, with h/t to Shuttleworth alum
@madprime.

Contribute here: https://t.co/XGIYAgy27A

[low effort biotech @swabsession]

Transbiome: A project to better understand the neovaginal flora #Transgender #WomensHealth #CitizenScience
https://t.co/LRTlmf2AKc

[Jonathan Sobel @JonathanSobel1]

Today, I’ve donated to the #Transbiome project. Why?
(a short thread)
https://t.co/lB2ZNvowqG
#openscience

[quantifiedself @quantifiedself]

You can join the Keating Memorial Self Research weekly chat, Thursdays at 10 am Pacific time, to get help for your Quantified Self projects from an experienced group of peers: https://t.co/JMD5DmauQL

[Mad Price Ball @madprime]

Gene drives are a profoundly interesting governance challenge: the power to play god, to change ecosystems.

Please share with anyone that might be interested!

[Cinnamon Bloss @CinnamonBloss]

Come work with us! New #postdoctoral job opening @UCSanDiego to work on public #engagement for #GeneDrive #Technology. Position supported via new NIH/NCATS R01 - retweets appreciated! Find out more here: https://t.co/5QjmbLLNLw #science #ethics

[Mad Price Ball @madprime]

@scottleibrand in self-research chat today he described the regime – fasting until a "lunch" of test ingredient – no real food until response is done ("dinner!")… not easy!

but he's interested if others want to try! and notes it's harder for folks wo/ diabetes to do this research

[Mad Price Ball @madprime]

Really amazing self-research by Steven Kaye on food ingredients and blood glucose w/ T2D! https://t.co/ZCDXoGiTbe

Highlight: "insoluble fiber" blood glucose impact ranged from 76% to 0.4% of glucose IAUC (!!)

ingredients that are treated the same on nutritional labels D:

[Mad Price Ball @madprime]

@scottleibrand Maybe reach out to Steven Kaye directly, if you haven't. :) Not on Twitter AFAIK, but in addition to the blog he posts this stuff in Reddit: https://t.co/jwtzcaNSNy

Fully agree it's concerning that some "insoluble fiber" is actually digested and producing glucose responses.