Bringing awareness to the @CF_Foundation with today’s lapel pin. This ELITE group dedicates their time and energy to improving the daily lives of people with cystic fibrosis!! #RTB#HYPRR#SkiUMah
This is Joziah.
In April, his dad was killed in a car crash on his way to work as a detective.
His fellow officers didn't want Joziah to be alone on his first day of kindergarten.
So they did this.
https://t.co/48z0RXMyJH
The data being presented at #NACFC beginning this week reflects our progress in investing in groundbreaking #cysticfibrosis science with the aim of bringing medicines to people living with #CF. https://t.co/bh3o3tObWq #CFResearch
First Day of school for so many. Please,
Please,
Be Relentlessly Kind to Teachers and Administrators This Week.
EDUCATORS: WE SEE YOU.
WE CAN DO HARD THINGS!!!!
Today the Foundation announced it is committing $20M to a CF incubator with Longwood Fund, a biotech-focused venture capital firm, to accelerate innovative therapies for #cysticfibrosis. https://t.co/DauXEMktrw
While people with these mutations are already approved for Trikafta in the U.S., the results provide further evidence of the efficacy of the triple-combination therapy for this group and could help inform decisions about whether to switch modulators. https://t.co/07dh6E7h7l
Vertex released positive Phase 3 study results for Trikafta for people with #cysticfibrosis ages 12 years and older who have one copy of the F508del mutation and one gating or residual function mutation. #CFresearch https://t.co/07dh6E7h7l
One day this is going to be over- can you imagine that day? How we’ll come out into the sun and laugh and hug and sing and dance and hold hands? I’m living for that day. It’ll be like nothing we’ve experienced before.
Last week, more than 200 advocates made the #cysticfibrosis community’s voice heard at March on the Hill and advocates across the country sent more than 13,000 messages to lawmakers during our Online Day of Action. Check out the highlights! #CFadvocacy⚡️https://t.co/l5bfZzLWFw
Thank you to everyone who helped make the voice of the #cysticfibrosis community heard today! You are making a difference for those living with CF. Together, we will make CF stand for Cure Found. #CFadvocacy
Thank you to all the members of Congress who met with us yesterday and listened to our community’s stories and the important issues that affect people living with #cysticfibrosis. #CFadvocacy 👏