Sara

[Sara @ManagingChronic]

@FndRecovery @disciplejenni @FndPortal @jonstoneneuro @TomPlender @FndLifewith @ConnectFnd @FndFightback Feel free to send me a DM

[Sara @ManagingChronic]

@FndRecovery @disciplejenni @FndPortal @jonstoneneuro @TomPlender @FndLifewith @ConnectFnd @FndFightback I'm that friend!🙂 I'm always open to sharing my experience. I've had all of my babies after my FND started and each pregnancy and postpartum have had similarities and differences in relation to my FND symptoms.

[Sara @ManagingChronic]

@osteospoonie Yes, acceptance allowed me to stop putting my life on hold until I got better and start living life with my current body.

[Sara @ManagingChronic]

@FndRecovery @FndMarc I was going to say the same thing. :)

[Sara @ManagingChronic]

Check out my latest article: 8 Things You Should Know When Working with a Chronic Illness https://t.co/EZArd7rRl4 via @LinkedIn

[Sara @ManagingChronic]

@atomicaceso @GNielsen_Physio This problem occurred when I relapsed 6 yrs in, but not when I was on benzos, which was during my first two years.

[Sara @ManagingChronic]

Check out my latest article: My Journey Working with a Chronic Illness https://t.co/iAKjTiZdyY via @LinkedIn

[Sara @ManagingChronic]

@chronicmom1 I did the same thing with getting a counter height foldable chair for the kitchen. I told a friend I should have gotten it 3 years ago when I first thought about it. I also catch myself doing this when I think about purchasing an Alinker.

[Sara @ManagingChronic]

@FndPortal Practicing self-compassion has been a game changer for me. Dr. Kristin Neff has some great guided practices at https://t.co/cHsk97O5HC

[Sara @ManagingChronic]

@PerezMGHLab @IbaiDiezPalacio @SepulcreLab @ErinDunnScD @BensonHenry @Tim_R_Nicholson @MGHNeuroSci @MGHMartinos @MolPsychiatry It's unclear to me from the press release and the abstract, but did all 51 participants, the 30 FND patients and the 21 control group, have early life adversity relationships? Thanks.

[Sara @ManagingChronic]

@FndPortal Jon Stone's presentations on youtube, FND Hope, FND Hope's interviews on youtube and Facebook support groups. The neurosymptoms website others have mentioned. This is probably one of the best explanations of FND that's I've seen: https://t.co/OHqgeeCcRH

[Sara @ManagingChronic]

@FndPortal In addition to that, my trigger days (once as a toddler and then again as an adult) both occurred during or directly following a bad infection that required antibiotics. As an adult, it was 3 rounds of antibiotics.

[Sara @ManagingChronic]

@FndPortal I hope more research is done on this. I did an elimination diet for 30 days and when I reintroduced gluten it triggered my dystonia almost immediately and within an hour I had brain fog.

[Sara @ManagingChronic]

@isobel_anne @FndPortal What about psychological distress patients experience bc their symptoms aren't believed or dismissed as "just stress?"

[Sara @ManagingChronic]

@jonstoneneuro @explanimate @FNDAus Great video but I wish we had a universal definition on what "improve" means. As a patient, when I first heard I can get better I thought that meant 100% better. After almost a decade with FND, I have improved but it's never been back to 100%. I still have symptoms daily.

[FND Portal - is no longer on X @FndPortal]

mmm brain-gut-microbiome axis

[Sara @ManagingChronic]

While Carrie Ann Inaba feels shame, I feel guilty when I'm in a flareup. It takes courage to share these feelings so thank you, Carrie Ann! #chronicillness #invisibleillness
https://t.co/z2KuQmZuV4

[Sara @ManagingChronic]

I've been researching food as medicine and this post conveniently popped into my inbox today. :) #foodasmedicine #chronicillness https://t.co/UbYkVBkeSW

[Sara @ManagingChronic]

Have you ever thought your life could be so much easier if you worked from home? In my latest blog post, I explore 30 different job boards that post legit remote/work from home jobs. #chronicillness #remotejobs https://t.co/MFReICPdRv

[Sara @ManagingChronic]

#chronicillness needs more awareness in general but Functional Neurological Disorder (FND) is one that is more common than MS but barely any medical professionals know about it. Let's change that and become #FNDaware.

[FND Hope International @FNDHope]

@lorraine is #FNDaware are you? https://t.co/tlpCQBoKLj
Thank you @reallorraine for your support for World FND Week April 7-13