marissa🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸

28, socialist, 👩🏼‍🔬 molecular biologist 🧬, hEDS cursee, CCI/AAI fusee, OTC excisee!!

[marissa🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸 @marissabruner]

@kmaclean5 @JoshuamusicME sorry for the 3rd message, but to summarize the things that seemed to clear up were:

neurogenic bladder, fecal loading, dyspareunia, some leg pain, coordination in legs got better, MCAS, POTS, neck/headaches, nystagmus, facial twitching, blurred vission, i’m probably forgetting

[josh @yunggoonologist]

We really need to do something about the Ego problem in the democratic party

[onion person @CantEverDie]

american entitlement is so strong that americans think we should get a reward for starting and losing a war

[Chris Corney @ChrisCorney1]

Electrocuted for saving humanity 73 yrs ago today.

Astonishing and moving picture. Better to live life for a purpose and die young.

[Maia @maiamindel]

there's a michelle obama quote i can literally never find about how she went into a room with "the experts" and immediately was like, okay, where's the real room with the actual experts. these people are not smart

[marissa🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸 @marissabruner]

@j0ssyoursalad same thing happened to me at age 6 in 2003, didn’t meet a doctor who knew what POTS was until I was 21, who ordered a tilt table test, obviously got diagnosed then, then eventually had neurosurgery for CCI secondary to hEDS which rid me of the POTS symptoms. It was never anxiety.

[marissa🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸 @marissabruner]

@RLeeAtwood @j0ssyoursalad no it doesn’t. I started having all these symptoms + fainting at 6 years old, didn’t get diagnosed with POTS until I had a tilt table test at 21. It was anxiety from 6-21. things have improved drastically in the last decade.

[maddie @madsssagascar]

im genuinely intolerant of religion like in a way that even progressives probably think is problematic. you have this made up idea of existence from a story book and you reject the reality of the world around you to the point of hate and violence. while looking stupid as fuck

[marissa🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸 @marissabruner]

finished my bad bunny super bowl embroidery project after 4 months!! it turned out cute and perfect timing for the world cup

[marissa🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸 @marissabruner]

I used to think Nuzzi and Reingold were the same Olivia and it was such a relief to learn all that isn’t contained in a single individual. I thought the correspondence dinner space buns were psychological warfare against Cheryl Hines.

[bug girl @buggirl]

in nature if a monkey hoarded 1 trillion bananas the other monkeys would beat that monkey to death and take his bananas

[marissa🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸 @marissabruner]

and had the neurosurgery in March of 2024 and now my bladder works again.

[marissa🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸 @marissabruner]

I had to end my last attempt at therapy for this reason. I was seeking neurosurgery for occult tethered cord secondary to hEDS and I was getting frustrated by the lack of knowledge about OTC in the midwest, I had seen 3 neurosurgeons with no luck of them even knowing what I was

[Manuel Ruiz @manruipa]

⚠️ I think this is exactly the problem.

When patients with ME/CFS, fibromyalgia or Long COVID defend themselves, it is often framed as “protecting an illness narrative.”

But if your disease were constantly minimized, psychologized, ignored, and left without biological treatments, while patients are told they are exaggerating or inventing symptoms, this would not feel like protecting a narrative.

It would feel like defending the basic right to be taken seriously and treated with the same dignity as patients with any other disease.

These narratives do not only affect medical care. They affect families, friendships, work, disability support, and social isolation.

Patients are not protecting illness.
They are protecting themselves from being abandoned by a system that too often turns unexplained biology into psychology.

I invite you to read the full thread, because I do not think this is a fair defense of the article:

https://t.co/8s2ayDBGIR

[marissa🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸 @marissabruner]

asking them about. I knew I had to go to rhode island do evaluation and eventual surgery but I was frustrated by the entire process. My therapists contribution to this was to ask me to explore how I would feel if I actually did not have OTC and was wrong. Anyways I quit therapy

[Justine Barron @jewstein3000]

@tylerblack32 I haven’t seen death threats. I’ve seen lots of clear and cogent rebuttals. If those seem like death threats to you, then who are the hysterics?

[Camille ⚫ @CatRedFront]

I do not understand why mommy thinks dessert for dinner is impossible. She could totally bake a cake instead of cooking yucky veggies. There's literally nothing stopping her.

[marissa🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸 @marissabruner]

@AlanLevinovitz @justinmclachlan @WIRED Awesome, now delete your shitty little opinion piece!

[marissa🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸 @marissabruner]

@albertus3M @useless_priest it’s very insidious if you have a physical ailment and are wrongfully diagnosed with psychogenic symptoms. The harm caused by being wrong is never worth the risk of diagnosing someone with psychogenic symptoms. ALWAYS assume physical ailment.

[Nicholas M. Kimani @SankarasLawyer]

Incase people don’t connect the dots, he’s talking about helping Angola fight Apartheid South Africa.

[shri @shriiyasays]

bingo