Megan B. Miller

Neuroscientist, advocate, runner, traveler, mom. Tweets are my own.

[Megan B. Miller @megbmiller]

What would it look like if more companies decided to "go purpose"?

[Patagonia @patagonia]

Hey, friends, we just gave our company to planet Earth. OK, it’s more nuanced than that, but we’re closed today to celebrate this new plan to save our one and only home. We’ll be back online tomorrow.
https://t.co/fvRFDgOzVZ

[Milken Institute Strategic Philanthropy @MIPhilanthropy]

CSP's Giving Smarter Guide on ALS is live. The guide identifies 6 scientific barriers and ways philanthropy can change the trajectory of ALS. We hope to inspire and further align researchers, funders, or anyone in the ALS community eager to find answers.

https://t.co/FWetRbDYQG

[I AM ALS @iamalsorg]

Hey #ALS Research Community - @ChanZuckerberg is currently accepting applications from research teams for 4-year projects that will advance the science and understanding of rare diseases. Awards total $2,000,000 USD for four years for each project. https://t.co/JbqnZkcARB

[I AM ALS @iamalsorg]

The @CDMRP recently released 2022 @DeptofDefense funding opportunities. An Amyotrophic Lateral Sclerosis Research Program is on the list awarding work on clinical trials, biomarkers and therapies. Learn more here: https://t.co/kXs2sqnebm

#ALSFunding

[Megan B. Miller @megbmiller]

AMX0035 is both safe and effective. Tell the FDA what the data mean to you. #2points6months #fda #als

[I AM ALS @iamalsorg]

YOUR INPUT NEEDED! @US_FDA is hosting an Advisory Committee meeting on ALS promising treatment AMX0035. This is an important next step in the approval process and you can help inform their decision. Read more info to prep & submit by this Wednesday (3/16): https://t.co/t0evutis8g

[Megan B. Miller @megbmiller]

@thompsontweach @boaflouncer Love this! And happy birthday Katrina, you are so loved!

[I AM ALS @iamalsorg]

Today we submitted a set of community-centered ALS research priorities to the @NINDSnews Request for Information. We commend NINDS for engaging the ALS community early in the process and urge them to continue collaborating with those most impacted by ALS. https://t.co/gYmby2ZAYE

[Megan B. Miller @megbmiller]

@iamalsorg @jenniferA86 @PaustDeb @augiesquest @ALSTDI I could not love this more! So much love and respect for these beautiful people, separately and together :)
And what is this gorgeous photo from?? 😍😍

[Sen. Lisa Murkowski @lisamurkowski]

My heart and gratitude go out to Brian Wallach and Sandra Abrevaya.

Their advocacy within the ALS community will impact many going forward—and I was proud to work with Senator @ChrisCoons on the ACT for ALS bill (now law) with their help.

[I AM ALS @iamalsorg]

People living with ALS deserve access to safe and effective treatments. ASAP. We are calling on @BrainStormCell and @US_FDA to work together to urgently move NurOwn, a promising treatment, through the regulatory process. Join us and sign this petition: https://t.co/e74LJsbJOr

[I AM ALS @iamalsorg]

"But, remarkably, he and Abrevaya have galvanized what is likely the most successful patient advocacy campaign of the 21st century."

And we're just getting started! Thank you @levfacher and @statnews for this incredible piece.

[The White House 46 Archived @WhiteHouse46]

President Biden signs the Accelerating Access to Critical Therapies for ALS Act into law. https://t.co/lzwFvJliff

[President Biden Archived @POTUS46Archive]

Today, I signed the Accelerating Access to Critical Therapies for ALS Act. Thanks to a movement led by patients and caregivers and bipartisan members of Congress, we are finally closer than ever to new treatments, and hopefully a cure.

[I AM ALS @iamalsorg]

Never question if you are making a difference. After tens of thousands of you relentlessly took action to change history, #ACTforALS was signed into law.

Thank you, @POTUS for giving tangible hope to every person impacted by ALS today.

[Megan B. Miller @megbmiller]

You're up, @POTUS!

[Megan B. Miller @megbmiller]

I am so incredibly happy for the ALS community tonight! I have never known a more passionate, capable group of humans. Well done, folks, and thank for letting me be a part of this movement! #ACTforALS #EndALS #ResearchFunding

[Brian Wallach @bsw5020]

BREAKING NEWS: #ACTforALS has just passed the Senate and is on it’s way to @POTUS. Hope is real for ALS patients thanks to you. The impossible is possible. #NeverGiveUp

[Megan B. Miller @megbmiller]

@thompsontweach @lisamurkowski @SenCoonsOffice YOU DID IT!! Thank you for your leadership in this movement, Christa -- its been amazing to watch!

[I AM ALS @iamalsorg]

BREAKING NEWS: ACT FOR ALS JUST PASSED IN THE SENATE

[Megan B. Miller @megbmiller]

@sandymorris333 CONGRATULATIONS to you and all of the amazing advocates who made the impossible happen! I am so freaking amazed