Mat Edick

Director, Center for Strategic Health Partnerships, MPHI & Midwest Genetics Network. Parent of a child w/ Down Syndrome. All tweets are my own opinion.

[Mat Edick @mjedick]

Can we move away from the phrase “dumb it down” - why not call this translation. Patients, clinicians, researchers, etc all speak different languages - I don’t need a dumb version, just a version spoken in my language. #PCORI2018

[Mat Edick @mjedick]

Everyone has a role to play in the prevention of Adverse Childhood Experiences!

Join me at the 2023 #MIACE Initiative Conference to learn about local & national #ACE Prevention Initiatives & inform strategies to improve the lives of Michigan's children. https://t.co/vweu3UQZXX

[Amy Gaviglio @agavig]

Such an easy way to spread holiday cheer to children & families facing complex care and rare conditions over the holidays. If you are able, check out the adorable wishlists below and help make the holidays a little more joyful for these families! Please retweet to your networks!

[National Coordinating Center for the RGNs @NCCRCG]

NCC is excited to celebrate Genetic Counselor Awareness Day! We want to thank all the genetic counselors who assist in our efforts to increase the utilization of genetic services for underserved populations. #GCChat #IAmAGeneticCounselor

[WSRGN @WSGSC]

#GeneChat, look what will eventually be coming down the line!

[CDC Genomics & Precision Health @CDC_Genomics]

The CDC Genomics and Precision Health Weekly Update spotlights our November 14 webinar on family health history in medically underserved populations, a new blog post on preeclampsia and genomics, CDC information on hemophilia, and more https://t.co/y2bUFvvgov

[Jen Brown @JenBrownARCC]

🔥final #PCORI2022 panel. Particularly appreciated @sinsipuede's right-on comments on addressing racist systems, centering community voice, & rejection of resilience- 'resilience doesn't protect from structural racism'.

[Janice Tufte @Hassanah2017]

Landscape review discussed currently #PCORI2022 @pcori https://t.co/vAWcOn9sH0

[Mat Edick @mjedick]

Who are the stakeholders that know and understand how to collect cost of health care utilization data…and how does a research team attract them to collaborate? Listening to experts from @RTI_Intl, @NPAF_tweets, @PAHumanServices, and @pcori at #PCORI2022

[Mat Edick @mjedick]

@SusanLinOT I agree @pcori EA awards have truly moved the needle in relationship building. They are not so great for maintaining relationships though, and research funders other than PCORI are still quite tight-fisted on $$ for this critical aspect of our work.

[Mat Edick @mjedick]

As #PCORI2022 is winding down, I am left wondering if @PCORI’s methodology standards are sufficiently broad to handle the increasing complexity of addressing root causes of health inequities in #PCOR. What about evidences bases for CER? Thoughts??? #CSHPAtWork

[Mat Edick @mjedick]

@HighDesertGems @JenBrownARCC @CSHPatWork @PCORI @Region4Genetics @MPHIhealth @Hassanah2017 @Poorcountryboy2 @mike_mitt wow, thanks @HighDesertGems! This is hard work that truely never ends, but it is insurmountable without partners like you, the rest of the team, and all my colleagues at @MPHIhealth. #CSHPAtWork

[Mat Edick @mjedick]

@CSHPatWork is developing a workshop with @PCORI funding for researches to practice building trusting relationships with communities that historically don’t trust research and medical enterprises. Without relationships there is no trust. Listening to KBibbinsDomingo at #PCORI2022

[Mat Edick @mjedick]

Maybe this is obvious,but it’s also profound. Speaker after speaker at #PCORI2022 is highlighting the importance of trust and relationships to improve health outcomes. Funders take note - this takes a long time with many intangible deliverables & we need room for this in budgets.

[Jen Brown @JenBrownARCC]

Incredibly powerful storytelling from Ashley Valentine
@SickCells. Appreciate her sharing her family's experience as well as the historical context & legacy of racism on #SickleCellDisease patients & families. #PCORI2022

[Mat Edick @mjedick]

Individuals with #RareDisease face crushing economic burden. For individuals with #SickleCellDisease, the burden is multiplied by systematic racial inequities faced by black and brown people. #PCORI2022. Listening to Ashley Valentine @SickCells at #PCORI2022.

[Susan Berry @BerryS730]

Proud and honored to be recognized. @UMNPeds @Region4Genetics @mnaap

[Amy_Lang @Amy_Lang]

#pcori2022 Advice to health researchers seeking to engage underserved communities: Building trust is the step one in building relationships between community and researchers. Trust is built when researchers show deference to community voices.

[Mat Edick @mjedick]

@JenBrownARCC @CSHPatWork @PCORI @Region4Genetics @MPHIhealth @Hassanah2017 @Poorcountryboy2 @HighDesertGems @mike_mitt @JenBrownARCC indeed! I look forward to connect with you soon.

[Jen Brown @JenBrownARCC]

@mjedick @CSHPatWork @PCORI @Region4Genetics @MPHIhealth @Hassanah2017 @Poorcountryboy2 @HighDesertGems @mike_mitt ARCC & partners developed an Anti-Racist Reflective Practice Tool for Community-Academic Researchers & Partnerships: https://t.co/VcM5xLqeRD It would be great to see if there are any opportunities for collaboration on this related work... #PCORI2022

[Jessica V Smith (she/hers) @JessicaVSmith1]

#PCORI2022 talking about the transition from community-engaged to community-partnered to community-LED research prioritization and how this will impact our systems of power. It's such an exciting time to be a research trainee!

[The Patient-Centered Outcomes Research Institute @PCORI]

Join health experts from @UIHealth and @MAHECwnc as they discuss challenges and successful strategies for the expansion and diversification of the maternal healthcare workforce to address the #maternalhealth crisis.
https://t.co/6R7nmXPzKv
#PCORI2022