Aimee Renee

Swinger of birches, #patientadvocate, vain and foolish mortal woman. 七転び八起き #pheochromocytoma #paraganglioma. Tweets my own.

[Aimee Renee @momofallthings]

If you’re curious about what I do in my real life, if you’re dying to hear my voice (😂) — or of you’d like to learn about #paraganglioma — please check out my recent conversation with @Brizee59 :

https://t.co/PJ3KHRK7Oa

[Aimee Renee @momofallthings]

Do you remember when you joined X? I do! #MyXAnniversary

[Pheo Para Alliance @PheoPara]

10% bilateral? 🚫 That's bunk, pal!
Overall, about 20% of #pheochromocytoma disease is bilateral (in both adrenal glands) . . . that number is almost 40% in children!
#pheoparaphearless #MysteriesofPheoPara #PheoParaAwarenessWeek #paraganglioma

[Aimee Renee @momofallthings]

Pheo Para Awareness Week also marks the anniversary of the last week my brother John was with us. Proper follow-up after his 1st surgery would have made a difference for him. #AwarenessMatters

#PheoParaAwarenessWeek #paraganglioma #carotidbodytumor

[Lauren Fishbein @LMFendo]

Take the quizzes and see if you know #pheo #para as well as you think you do and/or to learn something new.

5th annual PPGL awareness week.
@PheoPara

[Pheo Para Alliance @PheoPara]

Lifelong monitoring is critical! All #pheos #para tumors can recur even after many years of remaining tumor-free and cause serious health problems or even metastasize if left untreated. #MysteriesOfPheoPara #PheoParaAwarenessWeek #FollowTheClues #SolveTheMystery

[Pheo Para Alliance @PheoPara]

#pheo & #para are rare but serious tumors that can produce excess hormones. Non-specific clues they leave (#headache #hypertension #sweating) can make a detective’s job tough. You can help us become better detectives by raising awareness.
https://t.co/V0GZpfWOZ8
#MedicalMystery

[Pheo Para Alliance @PheoPara]

The 5th Annual #Pheo #Para Awareness Week is underway!! Are you ready to hit the streets, gumshoes?
We've got you covered with our toolkit of profile images, social media posts, captions & more! Help spread the word about those slippery perps #pheo #para:
https://t.co/V0GZpfWOZ8

[Pheo Para Alliance @PheoPara]

TODAY!!
Learn about the curious case of Mina Roll in "#Pheo
#Para Detective Case File: An Unsolved Mystery from History," premiering LIVE ON YOUTUBE today, August 26th, 2024, at 4 PM PDT/7 PM EDT!
🔍https://t.co/MBhFMzfsqC
#MysteriesofPheoPara #PheoParaverse

[Pheo Para Alliance @PheoPara]

Think you have the chops to make Ace Detective, or are you a Gumshoe detective? Take our HCP quizzes to find out.
Don't forget to post your scores online and tag us!
Gumshoe Edition: https://t.co/TPJz1jhpde
Ace Detective Edition: https://t.co/Fl0iaC8kSh
#SolveTheMystery

[Aimee Renee @momofallthings]

#PheoParaPhearless #PheoPara #pheo #PheoParaAwarenessWeek

[Aimee Renee @momofallthings]

Thank you @DebbieCohenMD for your great presentation at today’s @PennCancer Focus on NETs & mentioning @PheoPara & @PennMedicine’s designation as a Center of Excellence. The PPGL community appreciates you!! #pheochromocytoma #paraganglioma #pheopara

[Pheo Para Alliance @PheoPara]

Good to see plasma metanephrines 💉🩸 included in the algorithm for management of resistant #hypertension, and a mention of pheochromocytoma in the article as a potential cause of secondary hypertension. 🙌👏🩺
#pheo #para

[Pheo Para Alliance @PheoPara]

Our volunteer Medical Advisory Board consists of the top #pheo #para experts in the world! 🌎🌍🌏 Their expertise provides guidance on how we assemble & disseminate accurate & up-to-date info about this challenging disease. ❤️❤️❤️
https://t.co/pyk3eaNVaF

[Pheo Para Alliance @PheoPara]

Thank you, Dr. Chauhan, for being so generous with your time & your willingness to share your #NETs knowledge. Your #pheo #para PHriends appreciate you! 🙌❤️
@netcanceraware

[Pheo Para Alliance @PheoPara]

Today is #InternationalChildhoodCancerDay 🌏
Check out our kids page for #pheo #para resources.
https://t.co/52mRYBCvIq
@PedsEndoSociety @AcademicPeds @AmerAcadPeds @ACPeds @AmerPedSociety

[Pheo Para Alliance @PheoPara]

So happy to see a session on "Management of #pheo #para" on the #ICE2024 program! 🙌

[Pheo Para Alliance @PheoPara]

If you treat #pheo #para, then we bet you're an #adrenalphile! ❤️
The XIXth Intn'l Adrenal Meeting will feature updates by experts in this complex disease:
🔸Patricia Dahia, MD, PhD, Mays Cancer Center
🔸Rory Clifton-Bligh, MD, PhD, University of Sydney

[Aimee Renee @momofallthings]

Having lost two family members to a rare neuroendocrine cancer, I'm grateful to @ahylton26 for helping spread awareness about NET cancers. Not all colon, pancreatic, adrenal or head/neck cancers are the same! #pheochromocytoma #paraganglioma #LetsTalkAboutNETs @pheopara @LACNETS

[Antonia Hylton @ahylton26]

Never thought I’d talk about this kind of thing on national TV 😅 but I felt like I had to pay it forward. Hearing @craigmelvin talk about his brother & the risks of colon cancer may very well have extended my life.

[Aimee Renee @momofallthings]

November is #PancreaticCancerMonth. It's important to note that some #PancreaticCancers are #NeuroendocrineCancer, like those of #SteveJobs & @mariamenounos. Tests, best imaging & treatments differ from those for #ExocrinePancreaticCancer! @CBSNews @billdahutmd #LetsTalkAboutNETs

[julia reinstein 🚡 @juliareinstein]

pretty sure I snapped the world’s most beautiful photo of a bodega cat this morning