Proud to partner w top research-scientists at @NIH & #PIDTC to co-author a study on X-linked female carriers of #CGD, which was just published in the top, peer-reviewed medical journal for #Immunology@ClinImmSoc
Read more about it in @CGDAofAmerica
https://t.co/yi4opoiLIZ
Look forward to seeing everyone at the @IDFCommunity conference for this special dinner, hosted by @CGDAofAmerica! RSVP at info @ https://t.co/PiIgzE2Da0.
Join us for CGD Association of America’s Zoom Meeting with Crystal Cruz to discuss her son’s inspiring & innovative transplant journey, tomorrow, June 11th at 8 PM EST. Email us for the Zoom invitation at [email protected]
https://t.co/pJYHzPt2Qb
Excited to attend @IDFCommunity’s PI Conference in Chicago 6/20-6/22 to learn the latest in #immunology & #gene therapy from the world’s leading experts, such as this key session w/ Dr. Malech, Chief of Genetic Immunotherapy, @NIH
& moderated by Felicia Morton
@CGDAofAmerica
Presenting @CGDAofAmerica’s latest news& research @ the Primary Immune Deficiency Treatment Consortium, hosted by @EmoryUniversity in Atlanta; honored to be sharing our success helping PI patients w/ the 200+ top #immunologists across North America who help make it possible!
Thanks to all who came out to the J.McLaughlin event to support the @CGDAofAmerica. It was super fun & great to see everyone. Let’s continue to work together to raise awareness for #CGD and advance research!
Join Us in Chicago this Summer for @IDFCommunity PI Conference June 20 - 22, 2024
Scholarships for #CGD Patients & Families Available. Deadline is today! To register:
https://t.co/juyMXJaqt7
@Info4PI@CGDSociety
@SCIDAngels
@HyperIgM
Honored to be featured in Bold Journey Magazine; thanks to @lizziecarlile & @VoyageLAmag for the opportunity to show what women w/ a passion for making a difference in #raredisease can accomplish!
https://t.co/ZfDWgErwZ7
@remember_girls@Info4PI
@SCIDAngels
@angelaidcares
Join Brittany Hinman 12/5 @ 8 pm EST to learn about life after her son’s successful BMT & how she turned her trials w CGD into talent as a photographer. Email us at [email protected] for the Zoom invitation. All are welcome!
@CGDSociety@remember_girls@IDFCommunity@HyperIgM
Today is #GivingTuesday2023 and at the @CGDAofAmerica, we are stronger because of you! Take a look at what we’ve accomplished together, and with your support, we’ll continue to make a difference for #CGD: https://t.co/vrFvTOpkyd
#Immunologists: You're invited to participate in a survey by #UNC to help understand the #genetics resources you use, including #ClinGen, an #NIH -funded initiative that aims to improve precision medicine and research. https://t.co/9qVEcYZ722
Many thanks to @JeffGreeneFL for his personal tour of The Greene School! It was great to see the school's innovative design & forward-looking teaching methods first-hand.
It's a wrap! Heading back home after another productive experience at @GlobalGenes#Rare Disease Summit in San Diego. Many thanks to @HorizonNews for sponsoring this "rare opportunity" for nonprofit leaders in this space to come together, learn, grow, and get inspired!