Mary Taylor

[Mary Taylor @MTaylpr]

@EurostarUK @Eurostar How do I get in contact with you? I’ve tried every contact path and no luck. I want to add children tickets to an existing adult booking. Will you honour the price below from 17/8 given delay to answer is on your side?

[Mary Taylor @MTaylpr]

@EurostarUK Please help- I need to add children to an existing adult booking. Can’t do it online, can’t get through on phone and no reply to email either. How do I do it? (Before the train gets full or prices go up???). @Eurostar

[Mary Taylor @MTaylpr]

@EurostarUK Please help- I need to add children to an existing adult booking. Can’t do it online, can’t get through on phone and no reply to email either. How do I do it? (Before the train gets full or prices go up???). @Eurostar

[Mary Taylor @MTaylpr]

My daughter takes around 40 tablets a day WHEN SHE IS WELL and more when unwell. It’s time to #reviewthelist for prescription charges @cftrust

[Mary Taylor @MTaylpr]

@marksandspencer when will you start doing more dairy free options in your cafe? There’s more M&S dairy free options in Costa than your own cafes!

[Mary Taylor @MTaylpr]

#cfmamachallenge #2022cfmamachallenge @cftrust Day 1 complete of a month’s daily exercise to raise awareness of #cysticfibrosis for this little one 💛. Today they set me a run around Cobham.

[Mary Taylor @MTaylpr]

Thank you for giving my gorgeous girl the chance of a better future 🥰 @NHSEngland @ChrisMRiches @cftrust #cysticfibrosis #kaftrio

[Mary Taylor @MTaylpr]

#kaftrio Thank you @MHRAgovuk for approving #kaftrio for 6+ from one very happy 6 year old and her family 🥰 #cysticfibrosis

[Mary Taylor @MTaylpr]

What about the rest of us? 😢@MHRAgovuk @cftrust #kaftrio #cysticfibrosis

[Cystic Fibrosis Trust @cftrust]

David Ramsden, chief executive of Cystic Fibrosis Trust, said: “We’re delighted that #Kaftrio will now soon be available to children aged 6 – 11 years old living in Northern Ireland." (1/3)

[Mary Taylor @MTaylpr]

Come on @MHRAgovuk Please give us the good news we need. Don’t leave us behind Europe! #cysticfibrosis

[#UK CF campaigner Sharon @CFno1LeftBehind]

The @EMA_News have finally rubber stamped the licence extension to @VertexPharma #kaftrio for 6-11 yr olds with #cysticfibrosis

We need the @MHRAgovuk to do the same NOW🙏🏻

Great news for @EU_Commission citizens but sadly not our #British kids🤷‍♀️
@cftrust @pmrleahy @NHSEngland

[Mary Taylor @MTaylpr]

When will you @MHRAgovuk approve #kaftrio for 6+. Europe has now and I thought brexit meant we could do things quicker. Don’t leave us behind. #cysticfibrosis

[Vertex Pharmaceuticals @VertexPharma]

@VertexPharma is excited to announce that we received approval from Swissmedic for the label extension of one of our #cysticfibrosis medicines for the treatment of specific patients with cystic fibrosis.

[Mary Taylor @MTaylpr]

Come on @MHRAgovuk What’s the reason for delay in approving kaftrio for 6+? It’s just a license extension #cysticfibrosis #kaftrio. Our children need this now 😢

[Gunnar Esiason @G17Esiason]

Trikafta: “Real-world data from more than 16,000 U.S. patients, unveiled at JPM, which show the drug cut the risk of lung transplant by 87%, led to 77% fewer pulmonary exacerbations and slashed the risk of death by 74%”

I’ll take it!

[Mary Taylor @MTaylpr]

Come on @MHRAgovuk please give us the Christmas present our little ones with #cysticfibrosis need so desperately

[Ali Dillon 💙 NHS @Alidilly]

It’s so upsetting for young families still waiting for a simple licence extension to #Kaftrio. Lots of our under 12’s are very poorly & will be in hospital for Xmas,these admissions cld hv been avoided! Come on @MHRAgovuk it’s just a rubber stamp we want for Xmas #CysticFibrosis

[Mary Taylor @MTaylpr]

@MHRAgovuk @cftrust @sajidjavid @ChrisMRiches This is Charlotte with #cysticfibrosis on her 6th birthday today. The birthday present we wanted was approval of #kaftrio to give her the #lifeunlimited she deserves. Imagine if that was your child ….. please approve it now!

[Mary Taylor @MTaylpr]

@MHRAgovuk Why is it looking like the #cysticfibrosis community has to campaign and fight for #kaftrio taking precious time away from caring for our children who desperately need this drug? Please give it the rubber stamp it should have had by now. @cftrust @sajidjavid

[Mary Taylor @MTaylpr]

@cftrust @Alidilly I’m really concerned this seems to be getting delayed with no news. We shouldn’t need to be fighting for this (again!) for a different age group when it’s available for 12+ @cftrust @ChrisMRiches

[Mary Taylor @MTaylpr]

@MHRAgovuk Please give us an update on #kaftrio to treat #cysticfibrosis in age 6-12. Our children need this desperately 😢. To know a drug exists but we can’t have it is 💔

[Vertex Pharmaceuticals @VertexPharma]

We’re pleased to share that today the Committee for Medicinal Products for Human Use (CHMP) adopted a positive opinion for the label extension of our fourth #cysticfibrosis medicine. Read more: https://t.co/f2uUU3wqQl

[#UK CF campaigner Sharon @CFno1LeftBehind]

When will the @MHRAgovuk approve this wonderdrug for kids in the UK
I thought #brexit meant we’d be able to be more flexible & get things approved quicker than the @EMA_News 🤷‍♀️

Our kids need #kaftrio too 🙏🏻
Please hurry up as with #omincron our #cysticfibrosis kids need it now😢

[Mary Taylor @MTaylpr]

@HammondsLtd Could someone contact me ASAP - my wardrobe fitter has not arrived due this morning and your customer service is non existent. What’s happened?!?

[Mary Taylor @MTaylpr]

Thank you! 💛

[Ali Dillon 💙 NHS @Alidilly]

Today’s countdown is a Thank You to @Daily_Express as well as u @blakeydark @MattHancock they took on our plight & promised 2 see it through, I can’t stress enough what a huge part of our campaign they hv been @ChrisMRiches is a true CF hero, thanks @g_maynard and Lee Madz too.

[Mary Taylor @MTaylpr]

@maisondumonde I’m so disappointed to find out my order that was due for delivery latest today hasn’t even left your warehouse in France and you’re now ignoring my messages on the chat and customer services phone number is switched off. Please provide a delivery date ASAP.