myositis australia

Myositis Association Australia (MAA)

[myositis australia @myositisau]

@RareVoices Our Myositis patient support group’s objectives generally reflect the 3 pillars. It’s great to be guided by such a clear model.

[Rohit Aggarwal @docrota]

#MyositisPearls for Pts 56

In a pt with ILD, your doc may suspect myositis if any of the following are seen:
💫Raynaud's phenomenon (fingers becoming numb&pale in the cold)
💫Skin rashes
💫Mechanic's hands
💫Muscle weakness
💫Joint pains
Lab tests may be done for enzyme levels.

[Rohit Aggarwal @docrota]

#Myositispearls 54: Special focus should be on screening and monitoring of patients with high risk antibody for ILD in #myositis.
- Anti-Synthetase Ab (80-90% ILD)
- Anti-MDA5 (50% ILD in US)
- Overlap Ab (PM-Scl, Ku, Ro52/SSA and U1RNP - 40-70% ILD)

[Rohit Aggarwal @docrota]

#MyositisPearls 55
Rapidly progressive ILD is a rare manifestation in #myositis, with fast progression over weeks to months.
💫Common in pt with anti-MDA5 & occasionally in Anti-Synthetase & overlap Myositis.
💫Associated with palmar papules, amyopathic DM & poor survival.

[myositis australia @myositisau]

@docrota Such important symptoms and consequences for doctors to recognise. Thank you for highlighting.

[Cure IBM—Inclusion Body Myositis @CureIBM]

People with inclusion body myositis (IBM) who are hospitalized are at risk of complications caused by difficulty swallowing, which can lead to aspiration pneumonia, and falls.

https://t.co/iHinYtywo0

[Dutch Myositis Network @DutchMyositis]

Retrospective multicentre study & literature review @RheumJnl on clinical characteristics of anti-SAE+ dermatomyositis:
- typical skin rash
- mild myopathy
- ILD: organising pneumonia
- cancer risk 5x that of general population

https://t.co/VNdVZjO0iP

[Rohit Aggarwal @docrota]

Excellent Study By Chris Mecoli and Hopkins group about yield of CT scan in Myositis screening. Highly recommend doing Pan CT in high risk Myositis patients at diagnosis like DM, TIF 1 gamma antibody, age > 40 and other risk factors. https://t.co/vWbY1xczHY

[LisaChristopherStine @DrLisaCS]

Image in Clinical Medicine just published today in @NEJM with @CaoilfhionnMD

[Rohit Aggarwal @docrota]

#MyositisPearls for Patients 44- Doctors should consider Myositis and order Myositis Antibodies in patients with shortness of breath or cough due to ILD because ILD alone can be the first sign of Myositis; especially in Anti synthetase syndrome (a type of Myositis).

[Rohit Aggarwal @docrota]

#MyositisPearls 44 -
Skin biopsy may not be required in a typical DM case with classical rashes. However,in case of less typical DM rashes, it may be used for confirmation. Note lupus and DM skin biopsy looks a like.

[Rohit Aggarwal @docrota]

#MyositisPearls for Patients 43-
Skin biopsy is required for the rashes of DM - where it is used for confirmation of the diagnosis & rule out other skin problems. However it may not be required in a classic DM rashes with classical symptoms.

[myositis australia @myositisau]

Events are happening across Australia during Myositis Awareness Month in May to celebrate our 20th Anniversary.

[myositis australia @myositisau]

@MyoDiscovery @EmilyMcLeish994 @MerrileeNeedham Congratulations and thank you to Emily and the rest of the MyoDiscovery team for this step forward in understanding IBM.

[Myositis Discovery Programme @MyoDiscovery]

Congratulations to our very own @EmilyMcLeish994 on her recent publication on the significance of expanded CD8+ large granular lymphocytes in inclusion body myositis.

Check it out here:
https://t.co/WFBG9pNFXt

#InclusionBodyMyositis #Myositis @myositisau @MerrileeNeedham

[Australian Dept of Health, Disability and Ageing @healthgovau]

#BowelCancer claims the lives of around 100 Australians every week. If found early, more than 90% of cases can be treated successfully. That’s why it’s important to complete your free #BowelScreening kit when you receive it.

For more information visit💻https://t.co/0lUFkkFxBo

[NHMRC @nhmrc]

📣 Tracker is out now! Read about NHMRC-funded research, upcoming grant application deadlines and more in the latest edition: https://t.co/QfY0UOIR6G

[Australian Dept of Health, Disability and Ageing @healthgovau]

Reduce your risk of severe #COVID19 illness by:
✅getting a COVID-19 booster if you're due
🧪testing if you’re unwell
😷wearing a mask in crowded areas
🧼practising good hygiene
🩺asking your doctor about oral treatments.

More💻https://t.co/c7u7IrBAkY

[Rheumatology & Rheumatology Advances in Practice @RheumJnl]

NEW: @jessicaaliceday @DrLauraCoates @LatikaGupta_ et al. identify factors impacting women’s advancement to positions on rheumatology journal editorial boards.

Top 3 factors:
▶️Lack of opportunity
▶️Lack of recognition/support
▶️Existing gender imbalance

https://t.co/Yg3vRwWGeI

[myositis australia @myositisau]

@aihw @ArthritisAust Hospitalisation from falls is a major issue for Myositis patients and other neuromuscular conditions too. Where are Neuromuscular and rare diseases like Myositis in the AIHW glossary? Evidence (data & information) for better decisions and improved health and welfare for us too.