nik

✰ 19, trans & chronically (not ch)ill, artist, he/him, bi bi bi ❀ #chronicallyill #actuallyautistic #pots #eds #adhd

[nik @nikissick]

@PlayChoices ngl i’m already feeling like bella trying to choose between these two hot guys fighting over me :’) love it already

[Anna Severwright @AnnaSeverwright]

Just heard on the radio 'I don't think we'll ever see the Queen in a wheelchair' she wouldn't give in. Can we all (including the media) stop this idea that using a wheelchair is giving in or so awful that we couldn't possibly see a 95 year old use one if she needed.

[nik @nikissick]

@afromaterialism is it not both? i think it’s both.

[hijade2madre @HijaDe2Madre]

Idk who needs to hear it but identifying w/“Disabled”, “Autistic”, “Chronically Ill” doesn’t mean it’s all you are.

No where in the fine print does it say that’s all that there is about you. They literally just mean you are aware that its one of the parts that makes you, you.

[nik @nikissick]

@HannahntheWolf also didn’t know the top one had a name. i thought it was an adhd/ocd related behavior but not necessarily it’s own disorder. learn something new everyday i guess

[nik @nikissick]

not sure what i’ve done but boy do i feel like sh*t
#pots #erythromelagia #chronicillness #EDS #chronicallyill

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

Still reading thru a bunch of articles & will add more to 🧵 but my initial impression is there’s a lot more focus on harms of action rather than harms of inaction which is line w capitalist medical systems’ worldview but not w that of patients being gaslighted & left w/o care

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

I’ve been thinking abt the concept of “do no harm” in medicine & I’ve been wondering how they’re actually teaching this in medical training & how they’re defining harm & who is defining harm?

Most docs I’ve met seem to have v diff ideas abt this than patients do & that’s not ok

[nik @nikissick]

@LostToFollowUp i’m not on either. :/ sorry

[nik @nikissick]

sharing these again to see if anyone knows what’s causing it. trying to see a rheumatologist after not testing “positive” for mcas. #lupus? #MCAS #pots #raynauds #erythromelagia

[nik @nikissick]

@LostToFollowUp i’ve never had this happen before. i do have mild arthritis in my hands and toes. i also get raynauds that sometimes happens at the same time as an em flare (freezing finger tips, burning hands—also in my feet).

[nik @nikissick]

does anyone with pots/erythromelagia and raynauds have trouble wearing compression garments? like, i’ll be having a pots or erythromelagia flare and put gloves or socks on and then i’ll have a raynauds flare lmao i hate it here #pots #raynauds #erythromelagia

[nik @nikissick]

@LostToFollowUp i’m not sure how to describe it. em only flares when i’m already doing something triggering. foods/working to hard or pushing myself (not necessarily exercise tho). i feel sick a lot, like malaise. get chills, temp dysregulation, anxiety, GI issues, severe brain fog, etc.

[nik @nikissick]

@LostToFollowUp so, i already know that i have erythromelagia, but i think something may be causing the ‘em flares. possibly autoimmune related or mcas related? i get it in my hands and feet mainly, sometimes my face or on the tips of my ears. it’s separate from the face rash though-

[nik @nikissick]

@glee_writes cinnamon roll

[Andrew S. @andrewzspencer]

Bridgeton returns tomorrow 🙏🏾 I’ve longed for this show to grace me with its presence on the steaming service of netflix

[nik @nikissick]

i literally hit ‘send tweet’ then overthink til i delete it

[nik @nikissick]

it also sucks that i feel guilty about asking for respect from them. if they do something unfair or treat me wrongly they can forego an apology and just say that i’m ungrateful or spoiled for having boundaries.

[nik @nikissick]

this isn’t to sound ungrateful, as i’m very lucky my parents support me at all, but i feel like i will never truly “own” anything that’s mine.

[TheBachBabes @TheBachBabes]

My reaction to literally everything Clayton and Susie have posted on social media
#TheBachelor