Peach - The Gut Health Network

🍑 Empowering conversation around #guthealth and bringing awareness to #inflammatoryboweldisease #crohns #colitis Account Amy Griffin

[Peach - The Gut Health Network @peachygut]

#IBD is not a weakness. “Those with IBD are incredibly strong. They never look for pity. And hardly ever seek help. But, just remember that even if they don’t say it out loud, they are likely battling much more than you know” https://t.co/ms0lofrCBR

[Peach - The Gut Health Network @peachygut]

@Morrisons going above + beyond this Xmas🎄thanking Wimbledon staff member who saved family tradition of porkpie Xmas breakfast😅I now have 3 pork pies! After 8wks of 3 ops, sepsis, family Covid, furlough + now self isolation, this is the best present!🎅#christmasisnotcancelled

[Peach - The Gut Health Network @peachygut]

@Londonfarmers I’m reaching a bit here! 😅 I have a weird family tradition of having a pork pie Christmas breakfast. It breaks my heart not to have one, but our house is now having to self isolate 😟 Anyone offering delivery service from the market? I’d give anything for one 😂🙏

[Peach - The Gut Health Network @peachygut]

@public_patient @bottomlineibd Same here! I find it mad that I was studying neuroscience 4 years ago and now I really struggle to get my head around complex problems. I can very easily loose the train of thought particularly during a flare.

[Peach - The Gut Health Network @peachygut]

@tomasthestoma I have this atm so really understand the worry 💗 comments like that don’t help too 🤦‍♀️🙄 my 1st fistula surgery was done by a general surgeon & it failed. I was then referred to a colorectal surgeon specialising in perianal fistula. They are out there! Happy to DM their name 😊

[Peach - The Gut Health Network @peachygut]

@bottomlineibd My memory, motivation & mental stamina is getting worser younger than friends. As I’m only 26, I think it’s Crohns. Flare ups take their biggest toll, compared to remission. I’m awake for the 7th night in a row with a flare and sleep plays a huge part in mental well-being 🤦‍♀️

[Peach - The Gut Health Network @peachygut]

@bottomlineibd Work stress 🤦‍♀️But also Crohns found a new path around humira 👎 (kinda creepy) work stress just accelerated it. I had abscess surgery 6 & 3 weeks ago so fairly new to the seton. I have 10cm rectum remaining, I’m praying Stelara stops it 🙏 is your perianal disease in remission?💜

[Peach - The Gut Health Network @peachygut]

@ibdnurse Yes - is that who I’m supposed to ask? 😂 I couldn’t work it out 🤦‍♀️

[Peach - The Gut Health Network @peachygut]

Stop and think 🧻🧻❌ How stockpiling toilet roll screws over people with #ibd #crohns #crohnsdisease #colitis #ulcerativecolitis #inflammatoryboweldisease

[Crohn's & Colitis UK @CrohnsColitisUK]

We're highlighting to the general public the profound impact stockpiling essentials like toilet roll can have on people with Crohn’s and Colitis. Hear what we and people living with the conditions have to say about it in the Metro 👇

https://t.co/lGoGyHHHB3

[Peach - The Gut Health Network @peachygut]

@Empoweringpts9 @DCharabaty @HealioGastro @aboutIBD @CrzyCreoleMommy @ownyourcrohns @nataliesparacio @lplung4 @DrTiffTaft @Sahara88uk @louisehelenhunt @bottomlineibd Maybe this is just a UK thing, but my experience with combined clinics is that you still have 1 dr in charge of your care, but decisions are spread across the team in weekly GI meetings. This means I can see any GI dr in outpatients or hospital & they report back in the meetings

[Peach - The Gut Health Network @peachygut]

@louisehelenhunt @DCharabaty @HealioGastro @Empoweringpts9 @aboutIBD @CrzyCreoleMommy @ownyourcrohns @nataliesparacio @lplung4 @DrTiffTaft @Sahara88uk @bottomlineibd Completely agree! I also get arthritis symptoms and psorasis and I see different doctors, but I find there’s not really collaboration despite the relationship between the three 🤔 Also important to bring in the dieticians too! Often missed (I haven’t had one for 10 years)🤦‍♀️😅

[Peach - The Gut Health Network @peachygut]

Incredible! My flare ups are always hard to catch with traditional blood tests. The test often comes a week or two too late, as I struggle to detect the onset of a significant flare and then getting an appointment swiftly. This could be game-changing #IBD #infammatoryboweldisease

[IBDJournal & CC360 @IBDJournals]

Researchers @UT_Dallas have developed sweat-based wearable technology for detecting IL-1β and CRP in #IBD. This could provide real-time flares data. Could early detection and treatment prevent full-blown flares for patients? https://t.co/GhspahrKqm

[Peach - The Gut Health Network @peachygut]

Great questions! I could keep adding to this all day 😂 #IBD #inflammatoryboweldisease #crohnsdisease #ulcerativecolitis

[Aline Charabaty, MD, FACG, AGAF @DCharabaty]

📣 #IBD patients!

✅ What💬questions you wish your #GI asked you?

✅ What💭concerns you wish you could discuss?

✅ Any 💬you were too embarrassed/ not sure who/ to ask?

✅ How would your design your ideal #IBD team?

✅ How can we do better?
@HealioGastro #PatientExperience

[Peach - The Gut Health Network @peachygut]

@bottomlineibd @DCharabaty @HealioGastro @Empoweringpts9 @aboutIBD @CrzyCreoleMommy @ownyourcrohns @nataliesparacio @lplung4 @DrTiffTaft @Sahara88uk @louisehelenhunt 🙌 I thought it was just me too! My last 3 hospitals have all been combined clinics 🙄 (I’ve jumped around a bit haha) I still have never seen my dedicated consultant at my new hospital. Yet I was told 2 weeks ago he would be deciding next steps with my care?? Baffled me 😅

[Peach - The Gut Health Network @peachygut]

@DCharabaty @HealioGastro @Empoweringpts9 @aboutIBD @CrzyCreoleMommy @ownyourcrohns @nataliesparacio @lplung4 @DrTiffTaft @Sahara88uk @louisehelenhunt @bottomlineibd Also asking about plans for the future is important and not done often enough. Opening up this dialogue can reassure patients & make them feel more in control I.e I don’t want kids now, but I do want them in the next few years. When choosing next medicine, this matters to me.

[Peach - The Gut Health Network @peachygut]

@DCharabaty @HealioGastro @Empoweringpts9 @aboutIBD @CrzyCreoleMommy @ownyourcrohns @nataliesparacio @lplung4 @DrTiffTaft @Sahara88uk @louisehelenhunt @bottomlineibd When I enter my drs appointment, they ask “how are you?” I will always answer “I’m fine”. This is because it’s the way I answer to friends, family and colleagues. It’s a habit. It sounds silly but ask it a 2nd time, slightly differently, and you’ll get a more truthful answer :)

[Peach - The Gut Health Network @peachygut]

@Youcantmakethi4 I love that phrase ‘strong is the new beautiful’ 💜

[Peach - The Gut Health Network @peachygut]

#IBD is not a weakness. “Those with IBD are incredibly strong. They never look for pity. And hardly ever seek help. But, just remember that even if they don’t say it out loud, they are likely battling much more than you know” https://t.co/ms0lofrCBR

[Peach - The Gut Health Network @peachygut]

@bottomlineibd Very interesting!! Thank you @bottomlineibd 💜

[Peach - The Gut Health Network @peachygut]

It is well-documented by patients that #stress can trigger their #IBD to flare up, which can lead to feelings of #depression and #anxiety. Interesting read on the #generic correlations between #inflammatoryboweldisease,#stress and #depression! #crohnsdisease #ulcerativecolitis

[BioNews Central @bionewscentral]

Integrating #3Dgenomics with #GenomeWide #GeneticData, researchers uncovered genetic #correlations between #InflammatoryBowelDisease, #stress, and #depression.
#IBD #IBDrisk https://t.co/ltWYE5QfCX