Claire Deacon

lover and restorer of old buildings
Conservation Accredited MRICS Building Surveyor

[Claire Deacon @phoebebean]

Beautiful late afternoon swim with the #blackrockcrew in #dale yesterday, thanks Sophie for photo 💙🖤

[Claire Deacon @phoebebean]

@criminographer I am so sorry to hear this - I hope that your twitter family can bring you some comfort

[Claire Deacon @phoebebean]

@TimMeek8 Fantastic weavers windows

[Claire Deacon @phoebebean]

@alexeades1 Done x

[Charlotte's Battle Against Glioblastoma (BAG) @alexeades1]

I was Charlotte. I was born in Brighton on 18th Feb 1997. I loved handbags and fashion. I was looking forward to having a career. I was looking forward to getting married and having children. I was looking forward to a long and happy retirement. But none of that happened.

That’s why I write in the past tense.
I died when I was 19 years and 5 days old, on 24.2.2016.

Since I passed my mother and Miles, my older brother,
Have been raising awareness of brain tumours,
especially Glioblastoma.
That’s the one that took me.
It was a grade four and inoperable.
It was on the brain stem.
I had standard NHS treatment: 6 weeks radiotherapy to my brain and spine.
I also had chemotherapy.
Treatment abroad was too expensive.
It's the exception, not the norm. My mother tries to tweet daily about my journey, and now she is forced to tweet about her's.
I documented my journey on my YouTube channel.
https://t.co/AdhfiOjmvN

When I, Alex, Charlotte's mother, was diagnosed with grade two breast cancer earlier this year,
I was so, so glad that I went for my routine mammogram. Miles and Charlotte would never have forgiven me if I'd missed a free NHS breast screening appointment. Fortunately, it was caught early and I have had a lumpectomy and five days of preventative radiotherapy.
One day I will join Charlotte, but I want to be with Miles for as long as possible. Unlike Charlotte, I am able to fight my cancer because it was caught early. For Charlotte, that made no difference.

Fortunately, a lot of money is donated to breast cancer research, which is wonderful, as, hopefully, I will be able to live a long life. However, Charlotte was not so lucky, as brain cancer research receives virtually no funding.

If you would like to donate to a charity, please think of
https://t.co/Ox60Th4Z4V

A follow or/and a RT would help so much to raise awareness of two different types of cancer Brain & Breast.

[Claire Deacon @phoebebean]

@TufnellHenry @GWRHelp Well done @TufnellHenry so happy to have you representing us 🏴󠁧󠁢󠁷󠁬󠁳󠁿 🌊

[Claire Deacon @phoebebean]

Please make sure you attend your mammogram appointments x

[Charlotte's Battle Against Glioblastoma (BAG) @alexeades1]

I was 18 in this picture.
I would have been 27 now.
My name was Charlotte.
I lived in Brighton with my parents and my brother.
My brother is now an only child.
I was 16 when the headaches started.
Doctors said it was migraines;
I knew it was more than that.
I was right: A brain tumour.
I was diagnosed with a Grade 3 Anaplastic Astrocytoma.
I was only 16.
Less than two years later it mutated to a grade 4 Glioblastoma.
Incurable.
18.2.97 – 24.2.2016.
Age 19 years 5 days.

My mother and brother have spent the last 8 years raising awareness and funding.
So I don’t get forgotten, Mum tries to tweet daily.
They set up a charity in my name.
My mum misses me daily, especially now she has cancer.
She was diagnosed recently with stage 2 breast cancer.
Her tumour is very small and very manageable
They told her she wouldn’t have been able to feel it.

My mum had a lumpectomy on 14th June.
She now waits for results.
If she hadn’t attended her routine mammogram
Things could have been a lot worse.

On average, breast cancers double in size about every 6 months.
In addition to raising funds and awareness of my cancer,
She’s now raising awareness of the importance of attending a mammogram.
Fortunately, breast cancer is one of the most funded cancers.
Her priority for funding is still brain cancer
RT follow  Thank you
https://t.co/Ox60Th4rfn

[Claire Deacon @phoebebean]

@BarristerSecret 🙌

[Claire Deacon @phoebebean]

@CeliaRichards0n As it should be 👏👏👏

[Jonathan Pie @JonathanPieNews]

Election Special 4: The Conservatives.

[Claire Deacon @phoebebean]

@Toby_Driver1 @vangoghmuseum I walked round that museum and at the end went into the cafe to meet my friends and just burst into tears it was just so emotional the whole
place - truely inspiring 🌻🌾🌌🪑🛏️

[Charlotte's Battle Against Glioblastoma (BAG) @alexeades1]

Cancer vlogger's mum takes on walk in her memory https://t.co/7tObrJ3dgq

[Charlotte's Battle Against Glioblastoma (BAG) @alexeades1]

'I will make something good of having this cancer. I will show others that it is not all bad. I choose to live life to the full and love every second on this earth, good or bad.'
Charlotte Eades

Now that I have been diagnosed with stage two breast cancer I intend to live by Charlotte's words. I will always fund raise for brain cancer as it is so underfunded. I will certainly raise awareness of mammograms and the importance of going when called. If I had left this, my diagnosis could have been far worse.

I'm 12 days post surgery from my lumpectomy and ready to walk from KCH to Hove. We will be leaving at 9.00 am tomorrow. We aim to get back to Hove at 2.45 pm on Friday. This walk will be overnight with the only rest being a hot drink and a sit down.

I thank @bbc5live   for asking for another interview which will be live at 5.30 pm on Friday evening - hopefully I will be home then!

If you could donate I would be so grateful. A RT would be much appreciated.

With thanks Alex - Charlotte's mother
Our charity is special in that we self-fund. This means that 100% of your donation goes to research at King's College Hospital, London. We have no salaries, no overheads, no advertising, and no merchandise. We have no quirky gimmicks to draw you in, just the story of a wonderful and incredibly brave young woman. We pay our own expenses, including PayPal fees & PO Box fees. If you want to donate to a charity, please think of us. Please RT with thanks.

(It seems like the link will only accept PayPal if you would like to donate using a bank card please use the website)
https://t.co/tgE5CsAGju

[Claire Deacon @phoebebean]

@CeliaRichards0n Is that a herbal scone ?!

[Claire Deacon @phoebebean]

@Jeremy_Hunt I think taking a photo of this is illegal

[Claire Deacon @phoebebean]

@DavidTCDavies It’s not a blanket 20mph though is it.

[Claire Deacon @phoebebean]

@bbcnickrobinson Always stressful

[Monsieur Cholet @stugoo17]

#PostOfficeScandal #PostOfficeInquiry #StateScandal #MrBatesVsThePostOffice

NOT ALL HEROES WEAR CAPES !! 😢

WELL SAID @CastletonLee 👏👏👏

WE ALL SALUTE YOU RON & IAN - CHAPEAU! 🫡

@WarmingtonRjw @forensicgod @CastletonLee
@fujitsu_uk @Fujitsu_Global @DoughtyStreet @39EssexChambers @edwardhenry1 @FloraClairePage @innermigration
@samleek1 @DoughtyStreet @PaulMar72224296
@VictoriaPrentis @CommonsJustice @TimBushLondon @GouldsBlog @TheLawSociety

[Claire Deacon @phoebebean]

@MarinaPurkiss Nice 👌 🤦‍♀️

[B R O N W E N @BronwenLewis_]

For all the Swifties heading to #Cardiff today 💜 Here’s my own Welsh translation of my fave @taylorswift13 tune - the anti bullying anthem that is - Mean 🫶🏻 enjoy!

#TaylorSwift #TheErasTour

[Claire Deacon @phoebebean]

@Siani1971 @NoelHughie He’s a legend 👏 !