Lauren Brown

I have EDS & POTS. Vlog brings comfort,information & awareness sprinkled with humor to those suffering with an invisible chronic illness.

[Lauren Brown @potszebra]

@DailyMailUK exactly why I have a YouTube Channel, “Invisibly Illin” to support those of us with chronic illnesses. You have no idea how much we suffer and spreading misinformation doesn’t help! #hsd #EDS #POTS #EhlersDanlosSyndrome #invisibleillness https://t.co/LPYsk2FSV6

[Ehlers-Danlos Support UK @ehlersdanlosuk]

Managing Brain Fog 😶‍🌫️

Many people with #EhlersDanlosSyndrome or #HypermobilitySpectrumDisorder also suffer with brain fog.
They may find themselves feeling confused, being unable to process information, or forgetting things for no apparent reason. https://t.co/9dLY4CRqZO

[The Ehlers-Danlos Society @TheEDSociety]

"If it wasn’t for The Ehlers-Danlos Society, I would still feel scared, and alone, and still wouldn’t understand why I am the way I am." https://t.co/r5psRPRz5E #EhlersDanlosSyndrome #POTS #HypermobileEhlersDanlosSyndrome

[Lauren Brown @potszebra]

With chronic illness you have to have boundaries #CovidIsntOver #EhlersDanlosSyndrome #POTS #zebrastrong https://t.co/3clTnkKcTc

[Lauren Brown @potszebra]

#edsawarness #POTS #invisibleillness https://t.co/AcXaoV0CGX

[Lauren Brown @potszebra]

New Episode https://t.co/L497ToniCP #adhdtwitter #POTS #MedTwitter #Dysautonomia #EhlersDanlosSyndrome #ADHD

[Lauren Brown @potszebra]

100%!

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

Most of my patients have seen dozen of doctors before. They're not interested in me recommending increased fluid and salt intake: they've already tried it, and it's not enough. They want symptomatic relief. They want regaining their ability to work. They want solutions! 2/🧵

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

Many patients with severe symptoms won't improve with fluids, salt, diet, exercise. Many need pharmacotherapy, they don't have months or years to waste! Don't withhold meds because you think in 6 months, patient will miraculously improve if they haven't improved in years! 4/🧵

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

We have beta blockers, Florinef, midodrine, Mestinon, Corlanor, stimulants, antihistamines, neuropathic pain/migraine meds & LDN to choose from. If you're not comfortable starting a med for #POTS, refer them to a specialist who is. Not using medications is a disservice. 5/5 End

[Lauren Brown @potszebra]

Seriously! #MedTwitter #eds #EhlersDanlosSyndrome #hypermobility #invisibleillness https://t.co/AVx1iOKZin

[Lauren Brown @potszebra]

@nicosuzz https://t.co/aOKJyI4pHT

[Lauren Brown @potszebra]

@nicosuzz Just started a YouTube channel for support and information because I needed to feel like I was connecting with others like me

[Professor Lara Bloom @LaraBloom]

Thank you @billieeilish for sharing your story of living with #hypermobility and the issues you faced with #Gaslighting
You can reach out to us at @TheEDSociety at any time for info and support ❤️
https://t.co/AGSAhv0TDA

[The Ehlers-Danlos Society @TheEDSociety]

Thank you @jameelajamil for raising awareness and sharing some of your symptoms living with #HypermobileEhlersDanlosSyndrome. https://t.co/IDhqNaBGvI @buzzfeed #EhlersDanlosSyndrome

[The Ehlers-Danlos Society @TheEDSociety]

#Hypermobility spectrum disorders (HSD) are connective tissue disorders that cause #JointHypermobility, instability, injury, and pain. Other problems such as fatigue, headaches, GI problems, and autonomic dysfunction are often seen as part of #HSD. https://t.co/IwXx7M6TFM

[Sujana Reddy, DO @sujana94]

The day I got my diagnosis of Ehlers-Danlos syndrome was a big sigh of relief. I finally knew what was going on with my body after decades of dealing with various symptoms. @TheEDSociety thanks for sharing my voice! #EhlersDanlosSyndrome #MCAS #POTS #LongCovid #immunocompromised

[Lauren Brown @potszebra]

@aspoonielife When my cardiologist put me on Mestinon for POTS I got so much energy back, life changing!

[Lauren Brown @potszebra]

New Episode https://t.co/SuX3sE9id8 #invisibleillness #EhlersDanlosSyndrome #POTS

[Lauren Brown @potszebra]

New Episode https://t.co/R1G3Ro9RMK #ehlersdanlos #EDS #EhlersDanlos #ehlerdanlossyndrome #hypermobility #jointpain

[Eric Feigl-Ding @DrEricDing]

Happy #Halloween. I know this is a scary outfit for some #COVID deniers and minimizers… but hey, COVID has been used by the grim reaper to claim 20+ million lives worldwide. #BringBackMasks

#SpiritHalloweenMeme #CovidIsNotOver
HT @not_quantum

[Lauren Brown @potszebra]

I got this! #DysautonomiaAwarenessMonth #Dysautonomia #pots #saltintake #spoonie #InvisibleDisabilitiesWeek #selfadvocate #EDS #HEDS