PROMOTUS

A global alliance of NGO’s representing people living with and affected by PSP|CBD. Providing a single voice for our members.

[CurePSP @CurePSP]

The 2022 Spring Venture Grant deadline is almost here!
Take a look back at what previous recipients have been up to, and what you have to look forward to!
#CurePSP #BecauseHopeMatters #PSP #CBD #MSA #Research
https://t.co/JC4zi609Tv

[PROMOTUS @promotusglobal]

Great funding opportunity for healthcare professionals and researchers in the UK.

Check out PSPA's website for more information https://t.co/MfC2qmVyTq

[The PSP Association @PSPAssociation]

Our Small Research Grants are open to all healthcare professionals with an interest in neuro-degenerative conditions, residing in the UK.

Learn more about the grants of up to £5,000 at https://t.co/G3ZjgFJydE @AMRC @NeuroAlliance @NeuroAlScotland

[PROMOTUS @promotusglobal]

"This new treatment has the potential to give patients back more time with their families and friends."

We look forward to seeing if Novartis research trial involving three patients in Southampton can successfully disrupt changes inTau.

https://t.co/NwUehio6zS

[PROMOTUS @promotusglobal]

The website is now up and running again!

Thank you for your patience!

https://t.co/EE9ZZ1ychI

[The PSP Association @PSPAssociation]

* Helpline hours extended *

We're pleased to confirm for a six month trial, the Helpline will now be available from 9am to 9pm to allow more families to access support and information.

To contact us, pls contact the Helpline on 0300 0110 122 or [email protected]

[PROMOTUS @promotusglobal]

Unfortunately, the Promotus website is down at the moment.

We're working hard to resolve the problem and will let you know as soon as it is back up and running.

Thank you for your understanding.

[Neuronet @IMI2_NEURONET]

Are you interested in the latest developments in 🧠 #neurodegeneration research in Europe and beyond?

Check out our Knowledge Base ⚙️ with access to over 400 research articles 🔖 from the Innovative Medicines Initiative's research portfolio ⭐️ @IMI_JU
⬇️
https://t.co/Yy7Ny0DLBf

[Gill D @GillDickson0611]

Brilliant +comprehensive update on diagnosing PSP -vital to reduce delays in a condition which is typically 3yrs in before diagnosis
@promotusglobal @NeuroAlliance @NeuroAlScotland @NeuroWales @naiireland @ABNTrainees @Ahpscot @theABN_Info @RCSLT @TheNeuroAcademy

[Cambridge FTD @CambridgeFTD]

Diagnosis and management of PSP - a new practical guide for healthcare professionals

Hints for early, confident diagnosis
Advice on investigations
Lots of ways to help & treat patients and families

https://t.co/wHFVXfqnn1
@timrittman @HollandNegin @PSPAssociation @CurePSP

[PROMOTUS @promotusglobal]

Important guide for all clinicians caring for patients with PSP and CBS 👇

[Jacky Ganguly @JackyGanguly]

Update on Clinical Management of PSP and CBS: A Consensus Statement of the CurePSP Centers of Care #neurotwitter @FrontNeurol @CurePSP @JoriFleisher https://t.co/ixSVvNvcPM

[Jori Fleisher @JoriFleisher]

Proud to be part of @CurePSP @MovementRush https://t.co/LMpEzmeNds

[The PSP Association @PSPAssociation]

Our What to expect from your care guides can help open discussions with health and social care professionals so you can access suitable support at the right time.

Download from our website or email [email protected] to receive a hardcopy.
https://t.co/tvgIVoQZD3

[CurePSP @CurePSP]

Thank you @JoriFleisher and @MovementRush for your leadership and the quality of care you bring to our community. Looking forward to continued collaborations!

[PROMOTUS @promotusglobal]

Today @PSPAssociation is attending this Global Advocacy Workshop from #oneneurology
@EANeurology @NeuroAlScotland - link to the proposed Global Action Plan below

[Kristophe Diaz, PhD @KristopheDiaz]

We worked with a great team at @ImageThink to illustrate the important steps of brain donations and its value for families and science - share away and let us know what you think ! #curepsp

[Ian Coyle-Gilchrist @ICoyleGilchrist]

I often wonder about the drop off in PSP diagnoses in the most elderly. Is it that it doesn’t occur so often in the elderly (seems unlikely)? That we don’t diagnose it (“just old age”) or that we don’t recognise it (because it looks different)?

[The Rainwater Charitable Foundation @RCFNeuro]

Don't miss the opportunity to highlight #discoveries and contributions to our understanding of #NeurodegenerativeDiseases. The Rainwater #Prize program is currently accepting nominations. Learn more and nominate/apply by June 30th at https://t.co/1YQxSfg1Y8. #tau #neuroscience

[James Noble @jamesamnoble]

One week to apply for the chief executive role at @PSPAssociation, where I am a trustee. Our charity already does a great job helping people affected by these diseases, and has huge potential to grow and achieve much more. This is a really exciting role: https://t.co/KzkThShVcX

[Cambridge FTD @CambridgeFTD]

Very excited to have recruited the first participants into our phase II clinical trial @NorapsTrial to treat apathy & impulsivity in progressive Supranuclear Palsy. Progress on the long road from basic science to better care
#Atomoxetine #PSP #CCPP #Apathy @CambridgeBRC @mrccbu

[PROMOTUS @promotusglobal]

Brilliant launch of a podcast series for carers from @PSPAssociation - look out for these once a month
#CarersWeek2021 #PSPaware

[The PSP Association @PSPAssociation]

Today we're really excited to be launching our PSPA Podcast for #carers.

You can download the first PSPA Podcast episode using the Anchor podcast app and also on our website at https://t.co/EfATXXGAIm #CarersWeek