PSP Society of Canada

Serving Canadian patients & families dealing with Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) & Corticobasal Degeneration (CBD)

[PSP Society of Canada @PSPSocietyCDA]

PSP RECIPE PROGRAM:

Avocado 🥑 Chocolate 🍫 Pudding

For those with advanced swallowing symptoms. Be sure to blend very well!

Please see our YouTube channel for more Recipes! (Search PSP Society Canada on YT).

[PSP Society of Canada @PSPSocietyCDA]

PSP PHYSICAL THERAPY PROGRAM:

Triceps Extensions

For those is the later stages of movement and rigidity symptoms.

Please see our YouTube channel for more exercises (Search PSP Society Canada on YT).

[PSP Society of Canada @PSPSocietyCDA]

PSP EXERCISE PROGRAM:

Try these very bicep curls that can be done without any props. We can take a range of motion like this for granted under normal circumstances. Thanks @kaelanewman at @woolwhichp for these exercises 🙏.

Find more exercises on our YouTube channel! Link in

[PSP Society of Canada @PSPSocietyCDA]

PSP RECIPE PROGRAM:

A nice alternative to thickened liquids with endless opportunities to customize to your own taste! Thank you @christinetherd for the tip.

Please ensure that the seeds are adequately softened and that the pudding has gelatinized sufficiently before serving.

[PSP Society of Canada @PSPSocietyCDA]

SIGNS & SYMPTOMS

The sooner we recognize what PSP is doing the sooner we can act.

[PROMOTUS @promotusglobal]

More good news in the #PSP community - this time from France @PSPFrance -clinical trials for AZP2006 (ALZPROTECT biotech) involving 36 patients has finally started - find out more at https://t.co/zGxYe4v8Et

[PROMOTUS @promotusglobal]

News!! An event by PSP India - supported by @CurePSP
- a Q & A Session on Speech and Swallowing issues in PSP on Sept 27th -
- for more details see https://t.co/r3AB8aIXey or register by visiting https://t.co/xBpinovpXx

[PSP Society of Canada @PSPSocietyCDA]

PSP Exercise Program: Episode 6 (Wall Push Ups)

Thank you Kaela at Wollwhich Physio for this exercise which can be helpful for maintaining the strength to help yourself up after a fall.

More exercises on the PSP Society YouTube channel accessible through the link in our bio.

[PSP Society of Canada @PSPSocietyCDA]

RECENTLY DIAGNOSED with PSP, CBD or MSA? Follow the link in our bio for help on things to consider.

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#progressivesupranuclearpalsy #progressivesupranuclearpalsyassociation #progressivesupranuclearpalsyproblems #progressivesupranuclearpalsyawareness

[PSP Society of Canada @PSPSocietyCDA]

A quick read. Everything helps!

[C. Roy Lin, MD, MPH, FAAN @RoyCLinMD]

#Hummingbird or not, have you found it difficult to call in #PSP? A simple measurement of midbrain 9.35 mm and midbrain/pons 0.52 might help clinicians to further decide. https://t.co/mBrbSRhj98 @GreenJournal @PSP_CBD_MSA @CurePSP #MovDisord #NeuroTwitter #MedTwitter

[PSP Society of Canada @PSPSocietyCDA]

PSP Recipe Program: Épisode 5 (Vegetable Egg Bites)

Suitable for those with moderate to advanced swallowing symptoms

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#progressivesupranuclearpalsy

[Ontario Caregiver Organization (OCO) @CaregiverON]

#YoungCaregivers can experience feelings of anger, isolation, loneliness and grief — some suffer from depression or anxiety. @CMHAOntario offers mental health support services specifically for youth https://t.co/opHLuGm7RK #YouthDay @yngcaregivers

[PSP Society of Canada @PSPSocietyCDA]

Thanks @raredisorders for the share!

[PSP Society of Canada @PSPSocietyCDA]

Join Us for our ASK THE NEUROLOGIST SESSION

Dr. Carmela Tartaglia, a scientific advisor to the organization will be attending the session.

Please submit questions in advance via the link in our bio!

[The PSP Association @PSPAssociation]

Have you signed up to become a PSPA member yet?

By joining PSPA you will strengthen our voice as we strive to ensure people living with PSP & CBD, their families and carers receive the best possible care and support.

Sign up on our website at: https://t.co/lqITfJfGhI

[PSP Society of Canada @PSPSocietyCDA]

PSP Recipe Program - Episode 4

Thanks once again to @christinetherd for the great recommendation!

And to @nourishedbynic for the recipe :)

Very important that this come out solid, soft and moist and not crumbly!

[PSP Society of Canada @PSPSocietyCDA]

@Pop4Parkinsons Always so helpful to hear from others experiencing rare conditions. Thanks for sharing.

[MDS @movedisorder]

In 1969, Graham and Oppanheimer established the name Multiple Systems Atrophy, to reduce confusion and encompass many different neuronal atrophy disorders that had previously each been given their own name.   https://t.co/MzXUhiwNnR

[PSP Society of Canada @PSPSocietyCDA]

Newly diagnosed patients & families -> WHAT DO I DO NOW??

1. Understand the illness
2. Canadian treatment research
3. Provincial healthcare opportunities
4. PSP Society Programs
5. Advanced financial planning
6. Advanced care planning
7. Brain donations in Canada

Online now