Feeling humbled and deeply appreciative of generous donation from @welocalize who support the work of patient orgs around globe. HHT Ireland is very proud to be recent benefactor. Special thanks to @anaMirete - always advocating for HHT families.
#HHT#AlwaysRaisingAwareness
Pulmonary hypertension physicians must embrace this new and exciting aspect of clinical care of PAH patients for the benefit of our present and future patients https://t.co/FMgHakjPV1
A protein known as CDC2 enhances the proliferation of pulmonary artery smooth muscle cells in people with pulmonary arterial hypertension. https://t.co/XtEhtP5ju7
Delighted to announce the publication of my first book- Legalising Mitochondrial Donation: Enacting Ethical Futures in UK Biomedical Politics. Thanks to @DrNeilStephens , @ESRC for funding the research and @PalgraveSoc#mito https://t.co/PYCVGbTTSB
Back home from LTx after almost 25 years of severe PAH.
Thank you to my transplant team, the nurses and all other stuff. Especially also the physio therapists who gave me mobility back. A long way to go for more stamina, but every day progress.
Thanks to the donor and family!!!
This is what we patients need and deserve. What we can do to being taken serious are for example patient association owned databases. If some one is using our data, why not we as patients?! Way to be taken equally. https://t.co/BNEjbYVtkp