After my letter to @OfficeOf_MM in Dec regarding affordability of life saving drugs for Spinal Muscular Atrophy (SMA), I continue to raise questions on SMA in the current session. Urge GoI to intervene & expedite access to treatment for patients across India. @curesmaindia
Thanks Shri Pradyut Bordoloi Ji @pradyutbordoloi and ALL the 22 LOK SABHA MPs for your exceptional support and for being our voice & representative to the government, Hon’ble Union Health Minister Shri Mansukh Mandaviya JI @mansukhmandaviya 🙏.
@MamataOfficial ji @SGanguly99 ji
Kids is dying because they are suffering from Spinal Muscular Atropy disease
Medicine is Available in India but sadly to say we can't save Kids
We are requesting to you pls save to kids give some Attention on kids🙏
Pls Support 👇
@curesmaindia