Writer, speaker, advocate, funny girl. Original RA Warrior since 2009. Grateful for 5 all-🌟 kids, God’s great grace, NFL, NASA. Creator: #rheum Founder @RheumPF
Analysis of 17,000 adults taking Vit D and/or omega-3, showing no impact on cancer and CVD but reduced incidence of autoimmune disease by 25% to 30% in older adults vs those who received neither. Supplements without adverse events. https://t.co/hO2AhY2zQe
Concerning data in our #ACR21 poster no. 1167
#RA pts whose main #goal is less #pain also report:
- not having a #treatment plan
- longer duration before Rx
- more DMARDs tried
- lower patient satisfaction
Unmet #healthcare needs for #RA persistent pain
@rawarrior@RheumPF
@EULAR_JC@zach_wallace_md@rheum_covid This (@rheum_covid) was formed on Twitter (!) from a now-legendary tweet by @LCalabreseDO in early 3/2020. The physician registry is administered jointly by UCSF and EULAR.
Physicians can voluntarily enter cases of rheumatic diseases who had COVID-19
1st partial control in 16 yrs frequently in jeopardy due to disorganized #rheum office sending scripts late. #30dayscriptssuck Too many people with rheumatoid disease (PRD) suffering unnecessarily still by improper management of the tools we do have.
We must not let control of disease be lost, even in times of drug shortages. Thank you @Garethiacobucci@bmj_latest for helping to bring this urgent topic forwards in the pursuit of protecting patients, everywhere at this time.
Unfortunately, calling this disease by "the A word" perpetuates the myths that delay treatment---for a disease that's successfully treatable only if it's caught early. #rheumdisease doesn't start or end in the joints #ACR21#rheum
"Until I was diagnosed, I thought that ‘arthritis’ was just something that old people get.”
Until you or someone close to you is diagnosed with rheumatoid arthritis (RA), unfortunately, this is most people’s perception of the disease.
To find out more https://t.co/Y4a6vNk6gI
It is always an exciting day for Team ACR when the abstracts are published! Thank you to the ~2,000+ presenters for sharing your research. We are honored to showcase your work at #ACR21.
Today I had back to back experiences in which patients for long term follow up had ongoing symptoms, explainable if others took time to mull it over rather than fit into a 15 minute visit.
Active listening is so important, even if you can't do something to 'solve' it #survonc
Usually, it takes me most of the days realize that I feel too crappy to get anything done. My goal is to learn to recognize days like that so I don't waste precious energy on trying and instead, just heal so the next day is better.
#rheum
FINCH1 RCT of filgotinib (JAKi) in RA vs. PLBO and ADA, @ARD_BMJ
Better ACR20 wk12 (77% vs 50% PLBO, NNT~4); small infxn rsk and no MACE signal
Held up @US_FDA d/t
sperm count concerns; may come to market next year?
See pics for other JAKi; network meta analysis anyone?
Shots fired! Strong letter & rebuttals in @NEJM re:UPA vs ABA RCT
I covered this on the podcast & agree w/both sides:
1. DAS28-CRP was a silly primary outcome
2. CDAI also looked better for UPA
Moral of the story: don’t play shenanigans with outcome measures!
Not all researchers have the opportunity to receive expert advice on their #clinical research projects from experienced researchers. This led us to set up the EULAR #ConsultationService.
Researchers can request the free service here:
https://t.co/gtw2ZEEBBa
#rheum#rheumatic