Rob Wüst

Associate Professor Muscle Metabolism at Vrije University Amsterdam, Netherlands. Interested in skeletal muscle function in health and disease

[Rob Wüst @RobWust]

1/10 I am incredibly proud to share our latest study, published today in @NatureComms, a follow-up to our 2024 paper on skeletal muscle abnormalities in long COVID. Open access:
https://t.co/llYaZq6dJR
#LongCOVID #MECFS

[Rob Wüst @RobWust]

Gisteren verscheen er een stukje in Men's Health @MensHealthMag over ons onderzoek, en waarom ook profatleten long covid kunnen ontwikkelen (en hoe je het kunt onderscheiden van overtraining/gewone vermoeidheid):
https://t.co/cAAQNyig56

#coverboy :)

[Rob Wüst @RobWust]

@ME_Vereniging @TWestphalia This is exactly why we do this research!

[Rob Wüst @RobWust]

🏃‍♂️ 42 km hardlopen voor mensen die soms nauwelijks kunnen lopen! Wat een geweldige actie! Roy en drie vrienden lopen een marathon om geld op te halen voor ons onderzoek naar spierproblemen bij ME/CVS.
Steun jij ze ook?
👉 https://t.co/bpe78CpTL2
#MECVS #MEcfs

[Rob Wüst @RobWust]

🏃‍♂️ Running 42 km for those who struggle with even the smallest physical exertion! What an amazing initiative! Four friends are running a marathon to raise funds for our research into muscle dysfunction in ME/CFS. Will you support them?
👉 https://t.co/bpe78CpTL2
#MECFS

[Rob Wüst @RobWust]

@MikeZ____ @RTHM_Health Not in the same setting. Not a lot of groups have access to muscle biopsies from bed rest studies

[Rob Wüst @RobWust]

@epkedj @PeeNee2 @Ludiekje I had 2 presentations, of which one was recorded. I talked to a fair few new people, and know some of these already.

[Rob Wüst @RobWust]

@PeeNee2 @Ludiekje ja, ik heb veel nieuwe kennis en een paar mogelijke nieuwe samenwerkingen opgedaan. Mijn presentatie voor de community is opgenomen helaas, vanwege het tijdsverschil en andere verplichtingen.

[Rob Wüst @RobWust]

@MastcellMadness @ISLCPAIS I have done my homework: I am 100% sure this comes from patients.

[Rob Wüst @RobWust]

While we had a terrific scientific @ISLCPAIS meeting this week, organizers got serious threats from patients. This is truly unacceptable and we hope that the other 99.9% of patients stand up for scientists and clinicians trying to find diagnoses and cures, and against online hate

[Michael Chapman @miketweetchap]

I have received criticism and even a threat at my home address for organizing the @ISLCPAIS conference. I pored my heart and soul into it because I believe boosting collaboration and bringing together the bright minds is fundamental for speeding up the process. What did I do wrong? It’s as genuine question after self reflection…

[Rob Wüst @RobWust]

@benh_mecfs @vagusregenerate @ISLCPAIS Their justification is that they 'represent' 1000s of patients. That's what they keep telling me, but there's no proof they represent an official patient organisation with official numbers....

[Rob Wüst @RobWust]

@loy_daniel_de @ISLCPAIS I happily make this 99.999% of course. These tweets and responses on X are clearly not 'isolated incidents', particularly if they argue that 'they represent the voice of a lot of patients'.

[Rob Wüst @RobWust]

@cstroeckw This is really true. I cannot talk at the same scientific depth to a patient as to a fellow scientist. We need clever people and deep scientific and clinical knowledge and novel techniques only few understand to find solutions.

[Rob Wüst @RobWust]

@GhostOfSocrates @doctorasadkhan @miketweetchap Remember that these “kind advices from patients” come with consequences. This is truly unacceptable from patients:

https://t.co/s1Qde5rGqB

[Michael Chapman @miketweetchap]

I have received criticism and even a threat at my home address for organizing the @ISLCPAIS conference. I pored my heart and soul into it because I believe boosting collaboration and bringing together the bright minds is fundamental for speeding up the process. What did I do wrong? It’s as genuine question after self reflection…

[ISLC-PAIS Conference @ISLCPAIS]

What did we learn at the 2026 ISLC-PAIS Conference? And what does it mean for #LongCovid #MECFS #PAIS patients? Join today’s live Patient Recap Session for an accessible summary of the most important insights, discussions and takeaways
Watch online for €15: Please share! 🧡
https://t.co/uHIx6QkbB0

[Rob Wüst @RobWust]

@CarlyJennings @amyrochlin @ISLCPAIS This was integrated with my introduction

[Rob Wüst @RobWust]

@TogetherWeMask @CoronaZeroCH @miketweetchap We have around 20 co2 sensors in all rooms. The average I have seen so far is 450. Does that sound good to you?

[Rob Wüst @RobWust]

@surf4children @Themislv_vls Yes, pacing is a way to avoid worsening but this doesn’t make patients better

[Long COVID Nederland @LongCovidNL]

ISLC-PAIS congres: tickets voor de patient recap nu beschikbaar

🗓️ Volgende week vindt het internationale PAIS congres plaats in Amsterdam. Wetenschappers van over de hele wereld delen dit weekend de meest recente inzichten uit wetenschappelijk onderzoek met elkaar.

➡️ Voor patiënten is er een samenvatting van dit congres: de patient recap livestream op zaterdag 29 augustus van 15:00-17:30. De voertaal is Engels. Je kunt de livestream op een later moment terugkijken.

💵 Koop nu je ticket voor €15,- via https://t.co/roZMJcLstA

Wil je het gehele congres in video on demand bekijken? Deze optie is voor patiënten beschikbaar voor €95,- op dezelfde webpagina (onderaan).

💪🏻 Wij wensen de betrokken wetenschappers en organisatie veel succes volgende week!

#PAIScongres #livestream #succes!

[ISLC-PAIS Conference @ISLCPAIS]

Four days of #LongCOVID, #MECFS and #PAIS science summarised for patients. Join the live Patient Recap of the ISLC-PAIS Conference from Amsterdam on 29 August, 15:00–17:30 CEST. Hear key findings, ask questions, vote in polls and upvote what matters most.
🎟️ €15 🔗 https://t.co/wJbLkXVPhB

[Rob Wüst @RobWust]

@atranscendedman send me a DM:)

[Rob Wüst @RobWust]

About to miss #ISLCPAIS2026 in Amsterdam? You don’t have to miss the science!
🎥 100+ recorded talks
🔬 Latest research on #LongCOVID #MECFS and #PAIS
🌍 Watch anywhere, anytime
💶 Lower cost than attending in person
Get Video on Demand access today:
https://t.co/XlcfA5AdCo