Naomi and Max

Doctor of Education. Chronically Ill Caregiver. Spoonie. Zebra. Dismissed.

[a tired human @saffronandsky]

When people with severe chronic illnesses say they want to die, they almost always do not actually want to die. They want so terribly badly to live, but have lost their quality of life and autonomy after having been abandoned by the medical establishment and often family/friends/society. It's usually only after trying and failing to find better treatment or support, when they can see no way forward, that they wish for death.

[Naomi and Max @rotide64]

@thecahoonfamily Oh wow. I didn't know that either. I believe it. I worked at Saint Francis in the lab in the 80s. I would help phlebotomy from time-to-time. They'd use a hot pack on NICU babies. I just never figured I would end up being such a hard draw.

[Naomi and Max @rotide64]

@DiaryofaSickGrl 🙌

[George Monks, M.D. @GeorgeMonks11]

The Oklahoma Health Department finally issues a health alert tonight at 553pm, weeks after knowing they had 11 cases of explosive diarrhea in our state.

[Naomi and Max @rotide64]

@KelliBruer @CoachBrown8 Well, it appears so.

[Naomi and Max @rotide64]

@crena06 Started at $5.20 and earned shift diff at SFH in the 80s.

[Naomi and Max @rotide64]

@DiaryofaSickGrl Dentist left a drill bit in y canal #19. This was in 1995. Cascade effect and now I only have 10 left. Will lose two more in August. Had an oral surgeon grope me in 2000. So, yeah. Those are just two incidents, so many moore.

[Naomi and Max @rotide64]

@Svengoolie KOCO in OKC usually runs MeTV on 5.2. For whatever reason they are airing OKC baseball. Ugh.

[Princess, The Tower @APainPrincess]

“People who are #chronicallyill have learned to put up with the symptoms of illness, including terrible pain… Please don’t assume a person who’s laughing is pain-free or otherwise feeling good physically.” Misconceptions About #ChronicIllness https://t.co/dA1676Jrhy

[Naomi and Max @rotide64]

Bff was telling me her daughter's new boyfriend took her 6 year old grandson to a shooting range. How is that legal? I asked if he had ear protection. She assumes so. And what did the kid do afterward? Took his toy pew pee and shot the dog. Yeah, this isn't going to end well.

[Naomi and Max @rotide64]

@AChVoice It's a slow death. Nor resources, no help, no support. Why even keep pushing?

[A Chronic Voice @AChVoice]

"There are more #carers with physical #disabilities, carers on waiting lists for #surgery & carers whose #health & wellbeing is already lower than the general population. They're expected to keep #caring when there own bodies are giving out.": https://t.co/2rgmBDsdBf #society

[Naomi and Max @rotide64]

@Ashleywingender Just saw this. Yes, crazy day Sunday. FB has the scoop. Most likely repairing damaged relays from Friday's storm.

[Nele @NeleHelena]

It makes such a difference if healthcare workers are kind or even just polite when you’re at your most vulnerable, instead of acting like you’re asking for their kidney just because you need their help. I don't know maybe I'm too sensitive but such behavior really gets to me.

[Princess, The Tower @APainPrincess]

“Not a single person in my family can accept that I had to save up my energy for two days in order to make it to that doctor appointment. And they certainly can’t believe that it will take another three…to recover.” https://t.co/Ggu1HktNjP #ChronicIllness #POTS #ChronicPain #PEM

[Sarah O'Connell @SarahOC_MECFS]

I hate when ppl praise patients with terminal/#chronicillness with 'they never complained'
As if it's a good thing for your mental health to suffer in silence & shove it all down so your family/friends don't have to listen to you share your experience for 5 mins.
Feck that.
#pwME

[BrooklynDad_Defiant!☮️ @mmpadellan]

"See you… Never.”
Wow, what a bad look.

So, not only is Wemby a dirty ass player, but he's a no class, sore loser too.

I guess the Knicks are in his head.

[Naomi and Max @rotide64]

@envidreamz @thecahoonfamily It just seemed so similar to what my friend experienced in her 40s. She's now 81, have dealt with blurred vision, migraines and more pain than she should have. She told me her first symptoms were eye-related. But, no one had been able to piece the symptom puzzle together.

[Naomi and Max @rotide64]

@envidreamz @thecahoonfamily Have you been checked for MS?