Rebekah Petrolle

[Rebekah Petrolle @rpetrolle]

.@US_FDA the #ALS community delivered you a petition to grant #NurOwn a transparent and informative AdCom 85 days ago. My husband died from ALS 93 days ago sg the age of 40, leaving a 4 yr old daughter. Provide the flexibility & speed you promised for ALS. Schedule. The. AdCom.

[Rebekah Petrolle @rpetrolle]

.@Cigna, your flawed decision to deny people on your insurance coverage for Relyvrio is inhumane. Your decision impacts real people who are trying to fight ALS, a 100% fatal disease. They don’t have time to wait. Reverse your decision now. @RepFranklin

[Rebekah Petrolle @rpetrolle]

.@Cigna, your flawed decision to deny people on your insurance coverage for Relyvrio is inhumane. Your decision impacts real people who are trying to fight ALS, a 100% fatal disease. They don’t have time to wait. Reverse your decision now. @SenRickScott

[Rebekah Petrolle @rpetrolle]

.@Cigna, your flawed decision to deny people on your insurance coverage for Relyvrio is inhumane. Your decision impacts real people who are trying to fight ALS, a 100% fatal disease. They don’t have time to wait. Reverse your decision now. @SenRubioPress

[Rebekah Petrolle @rpetrolle]

@sabrevaya Sending you love also. Thank you for all you do.

[Rebekah Petrolle @rpetrolle]

@sabrevaya You are amazing and a role model to so many of us other caregiving als wives. I am grateful that wade into the trenches of advocacy that some of us don't have the bandwidth for.

[Rebekah Petrolle @rpetrolle]

@sabrevaya Exactly. Now my family, (husband with advanced als and daughter too young to be vaccinated), won't be able to safely travel by air. I will never understand the selfishness we've seen in the last 2 years. Unfortunately, we live in Florida so we have a front row seat.

[Rebekah Petrolle @rpetrolle]

@bsw5020 What is wrong with people!?! I am so sorry. My husband is less than 10% vital capacity. People just don't understand how serious this virus is for als patients. Keep fighting!

[Rebekah Petrolle @rpetrolle]

As your constituent & someone impacted by #ALS, I urge @senrubiopress to support new and increased federal investments in #ALSresearch that will lead to more clinical trials to help find effective treatments, prevent new cases and find a cure for ALS. #ALSAdvocacy

[Rebekah Petrolle @rpetrolle]

As your constituent & someone impacted by #ALS, I urge @SenRickScott to support new and increased federal investments in #ALSresearch that will lead to more clinical trials to help find effective treatments, prevent new cases and find a cure for ALS. #ALSAdvocacy

[Robin Williams Adams @ledgerROBIN]

I wish people refusing COVID-19 vaccination had been there to hear Dr. Timothy Regan’s sadness & frustration as he talked about taking children ages 8 & 10 into the ICU to say “their last goodbyes” to a parent. And his worry about his 11-year-old who’s too young for vaccination.

[Rebekah Petrolle @rpetrolle]

@FriArielle @GovRonDeSantis @HealthyFla @EducationFL Exactly! Where are the rights of those who don’t want to ever get covid?

[Rebekah Petrolle @rpetrolle]

@AbbyJohnson I’m so disappointed to hear that you made fun of those who wear masks at a pro-life event last night. Masks that would protect fragile disabled people like my husband. Shameful. I pray that God will change your heart once again to value all life made in God’s image.

[Rebekah Petrolle @rpetrolle]

As your constituent & someone impacted by #ALS, I urge @RepGregSteube to support #ALSResearch. Add your name to the FY2022 ALS Appropriations Dear Colleague letter today: https://t.co/NEwsYBh9V2 #ALSAdvocacy

[Rebekah Petrolle @rpetrolle]

@bsw5020 🙌🏼🙌🏼 yes. I literally had to go on the 6 pm news to get the vaccine for my 38 yr old husband who has been at home for a year and has als. First it’s “we don’t have to wear masks for you, just stay home” and now people are not prioritizing these high risk groups for the vaccine.

[Rebekah Petrolle @rpetrolle]

@Mike_Pence Trump needs to be removed from office immediately. Our nation can’t handle 13 more days with this lunatic. Please invoke the #25thAmendment immediately! @VP

[Rebekah Petrolle @rpetrolle]

@RonDeSantisFL when are you going to issue the stay at home order? This is negligence and a lot of people are going to be sick and dying because of this continued delay #StayHomeSaveLives