Susanne Driffield

Mum to my DMD superhero Joe. All views are my own.

[Susanne Driffield @s_driffield]

@ClarksonsFarm1 Buy a house

[Susanne Driffield @s_driffield]

Having safely made it to Dover following his 87 mile run from Marble Arch, Sam is now swimming the English Channel and will then jump on his bike at Calais for the 181 mile trip to Paris! You can read more about his incredible challenge for @MDUK_News here https://t.co/4C8pUiVo5a

[Susanne Driffield @s_driffield]

#NewProfilePic

[Susanne Driffield @s_driffield]

@RevRichardColes Love Cote but our local one in Harrogate closed down!

[Aamer Anwar✊🏾🏳️‍🌈#BlackLivesMatter @AamerAnwar]

We wrote to the Health Secretary @neilcgray some 2 weeks ago pleading on behalf of these young boys for a drug that will give them some quality of life, before it is too late- We were ignored, it is beyond cruelty to ignore these children, when the drug is available @ScotGovFM

[Susanne Driffield @s_driffield]

@Weggster We are all great thanks! How are you guys? x

[Susanne Driffield @s_driffield]

@sarajcox I only put this up yesterday in our downstairs loo but suspect it could be a contender! 🤣

[Susanne Driffield @s_driffield]

@RaeA_Smith @MotabilityOps It isn’t down to Motability, it is a car lease which is affected by interest rates, car supply along with the vehicle manufacturer. Frustrating nonetheless.

[Muscular Dystrophy UK @MDUK_News]

🧵Over half of people with muscle wasting and weakening conditions receive Personal Independence Payments (PIP).

It's a lifeline.

1/7

[Susanne Driffield @s_driffield]

You only regret the chances you didn’t take! Arran & Ailsa Craig ⛰️ ❤️

[Muscular Dystrophy UK @MDUK_News]

🗣️ Have your say!

Help shape our 10-year vision to transform the lives of people with muscle wasting and weakening conditions 🌍.

📋 Take our short survey and share your views: https://t.co/sRu3zwTxF3
⏳ Closes Monday, 17 February.

#HaveYourSay

[Muscular Dystrophy UK @MDUK_News]

"The social care system is broken", says Graham.

He lives with MD and his social care was reduced last year. This story shows the devastating reality of social care cuts — leaving people feeling invisible and unsupported.

This isn't just numbers on a budget - it's lives.

[Muscular Dystrophy UK @MDUK_News]

Looking for support? 🧡

Our Muscle Groups connect people living with muscle wasting or weakening conditions. Find one near you.

These groups offer a supportive space to connect, share experiences & meet others who understand your journey.

Read more: https://t.co/A4ntozwcUb

[Muscular Dystrophy UK @MDUK_News]

We’re delighted that @NICEComms has recommended vamorolone (Agamree) for people aged four and over with Duchenne muscular dystrophy in England. 👏

1/5

[Susanne Driffield @s_driffield]

What @RonJichardson said!

[Muscular Dystrophy UK @MDUK_News]

🚨 Your donation has double the power this week! Every £ you donate will be doubled by our donors.

Over 110,000 people in the UK live with muscle wasting conditions. It can be exhausting and lonely.

Make a difference: https://t.co/P1e3bXcaAX

#GivingTuesday

[Susanne Driffield @s_driffield]

@KayBurley @thewhitecompany Fir Tree room spray!

[@victoriamary @Victoriamary]

Shane’s original lyrics for #fairytaleofnewyork

[Disability Rights UK @DisRightsUK]

🚨NEWS🚨

Government to consider increasing £30k limit for Disabled Facilities Grant following a claim for judicial review from a 6-year-old Disabled child and his family

https://t.co/8Fj7Whkday