Susie Harris

[Susie Harris @sabg3769]

Justice For Johnny Depp - Sign the Petition! https://t.co/3Qp23Axogb via @Change

[Hande Ozdinler @DrOzdinler]

I am just so happy to be included into ALS Clinical Trials & Research group w @iamalsorg and if you are a scientist working on drug discovery efforts for motor neuron diseases pls join the wonderful FB group Nadia has initiated, join the amazing team. Thank you.

[TheRealCathyS @CathyStandish]

There are #NoWhiteFlags when you are #soultosoul. ✌🏻😇

[Sandy Morris @sandymorris333]

Day 28-I guess it’s kind of scary that my husband & kids carry me everywhere & we are so brilliant we bought not 1 but 2 cattle dogs who instinctively herd. They purposely get in our way while I’m being piggybacked. We mostly laugh. “You can’t scare me I have ALS.”

[Nancy Homan @NancyHoman5]

Sean Healey #ALS Warrior Dies-Every 90 min a #ALS warrior Dies! For 150 YEARs this has happened! @POTUS @vp ALS=needless 100% mortality if FDA clears Approval Pathways to #ALS treatments in TrialsNOW SAVE ALS LIVES @SenateGOP @GeraldoRivera @TheEllenShow @seanhannity

[Jan Mattingly @mattwoman]

ALS Caucus members. Here’s a Canadian wake up call from our American neighbours and from all Canadians with ALS! @CarolHughesMP, @tomkmiec, @anitavandenbeld @karenmccrimmon, @Francis_Drouin, @GinettePT, @JenicaAtwin, @JudySgroMP, @KevinWaugh_CPC, @MarcusPowlowski, @MHGaudreauBQ,

[ALS ACCESS @brainmatters10]

The ALS Association is nothing more than 6 figure salaries, propaganda, talking heads, zero urgency, run by those who have less than zero care or experience in the disease they represent. #Shameful #defundalsa

[Michael @mpabull]

Day 26 no idea if sporadic or not. No test done.

Day 27 Lisa passed in 14 months, enough said

Day 28 Scariest day? The day before we stsrted hospice

Day 29 spending time and being her primary caregiver

Day 30 I have become a better person

Day 31 she was the nicest person

[Dave Stanley @TheSteemer]

May is ALS Awareness Month. This is Angela’s story. Day 27. #ALSAwarenessMonth #endals

[Mike Harrington @Shankapotomas]

When I was diagnosed with ALS (at 31) the doc told me and my wife that having kids wouldn't be a great idea. She was ten weeks pregnant at the time. Now we have 2 beautiful kids, and I'm still fighting like hell. Thank you @iamalsorg and @bsw5020!

[Unite ALS @unite_ALS]

Getting treatments to more #pALS means improving clinical trial protocols and shortening the length of those trials. Happy to see this statement from @MDAorg! #ALS #Unite #clinicaltrials

[Gretchen Duffy @gretchmarliese]

Today would have been your 67th birthday.

I don't have anything poetic to say.

I just wish none of this ever happened.

💔

#endALS #iamals

[Shah Minokadeh, M.D. @MinoShah]

Although I really appreciate the MDA letter, I need to see action. The MDA has existed for 70 years. This is the 1st time I've heard this long overdue message from them.

I'm all for someone replacing the failed ALSA. I personally will decide based on who acts. IamALS, MDA, ...?

[No More Excuses ALS Watchdogs! @als_now]

RIP Larry Kramer, former HIV powerhouse. Where is ALS' version of Larry Kramer? Must see monent at :35. "I'm trying to understand why nobody cares we (HIV) are dying!" ALS needs this "anger" and action NOW. Right f@#$ now. #ALS #Endals #MND #nurown @US_FDA
https://t.co/V0ejWy7MAZ

[No More Excuses ALS Watchdogs! @als_now]

Terrible news. Thank you Sean Healey for an amazing standard of ALS excellence! https://t.co/8GAAH4ldIP

[Mandi @RunningMama0522]

ALS Awareness Month...Day 27

It happened fast. So very fast.

Feb 2, 2017...ALS was mentioned as a possibility

Feb 2, 2018...he took his last breath

12 months and he was gone.

#endALS #ALSAwarenessMonth #iamals #alstdi

[Sandy Morris @sandymorris333]

If you really want to help me. Join the fight. That’s it.

[Ice Cube @icecube]

A wolf in wolves clothing. The demons are among us. #Fightthecowards

[Shah Minokadeh, M.D. @MinoShah]

.@realdonaldtrump, @MarkMeadows, @SecAzar, @VP, @FDACBER, @SteveFDA, @JeffFortenberry, @kellyannepolls, @NIHDirector, @MrKenMitchell @HHS_ASH @DrWoodcockFDA @chriscoons @senatorbraun @lisamurkowski @KenCalvert @RepJasonCrow @SenMcSallyAZ @RepTerriSewell @RepBrianFitz