cbo, @hi_cleo, helping the working family, work. mama to luna & leo. recovering ALS caregiver helping team @synapticure. taking AIs for a better tomorrow.
@GavinNewsom@charliekirk11 You’re endorsing attacks on trans youth while in conversation with someone who dehumanizes trans people as a career.
You’re attacking trans kids to bolster your national profile for a 2028 run.
I deeply regret ever supporting you, and I genuinely hope your cowardice haunts you.
Because I am getting this question dozens of times in my DMs from trans people/parents... If you're trying to move for safety:
Countries: Australia, Canada, New Zealand, Spain, France.
States: Any blue state on my risk assessment map, which I'll update post-election.
Will Ferrell deciding to educate himself and others as well as supporting and loving Harper unconditionally when she came out to him really puts some other comedians to shame, huh.
@chrissyfarr Id imagine it varies dramatically by specialty. Oncology, Derm, Neuro I bet all would know quite well given the impact of drug prices and major dependence on/desperation from patients for new treatments.
A year after I retired as an ALS caregiver, its impact on me is still felt every day. Not only does @sabrevaya bring visibility to the invisible caregivers among us, she's built a bridge to a better support system & gives me hope of transformation to come. Sandra = the best. 💙
On the last day of National Family Caregivers Month, I want to share that being a caregiver has been the single hardest experience of my life.
It is incredibly painful, overwhelming and I often feel like with Brian's illness I have lost my own identity, my freedom, my own life.
Congrats Brian & Sandra for sacrificing so much to help so many. The #ALS community is forever changed because of all you have accomplished.
Mad respect & gratitude!
@bsw5020@sabrevaya
Everyone I've referred to @Synapticure has loved the ability to see their #neurologists from the comfort of home.
If you know any families with #huntingtons, please share this blog as @DrJaimeMartin has a long connection with the HD community & her patients adore her!
https://t.co/2spYBQTANW
#EndHD #neurotwitter #telehealth #telemedicine
#CarefromAnywhere #HuntingtonsDisease
The first episode of Spotlight On is live. Tune in to hear @YouveGotFox, @StevoLoughlin, and @SaraIttelson discuss Dylan’s journey as a solo founder, @AssemblyAI’s early challenges and triumphs, and how to cut through the noise as an #AI-native company:
https://t.co/SeZC1UiozU
With this story is a tender, must-watch video clip of ALS advocates Brian Wallach @bsw502 Sandra Abrevaya @sabrevaya who have led arguably "the most successful patient advocacy campaign this century.''
https://t.co/ssixvgs9ZZ via @statnews@damiangarde @levfacher #STATFuture
NIMBYs halt progress. When one works on seemingly intractable problems, like housing, reality hits - systemic solutions mean change for people who *don't want change*. I encountered this w/ Dementia facility planning, and in one town hall meeting I realized why change is SO slow.
Good evening, Twitter! I’m spending my Friday night in the affluent Bay Area suburb of Millbrae, where the county is presenting a plan to turn a hotel into ~100 homes for unhoused residents.
It appears that the entire city is here, and they are *pissed*. 🧵
Clenbuterol stabilized David's breathing for 2 yrs then @US_FDA blocked import. He died July 25
@DrCaliff_FDA@FDACDER#RWD & clinical data show it likely works in #ALS
https://t.co/lWFiUmhwFS
Ask Dr. Bedlack of @Duke_Neurology@NEALSConsortium
No risk is worse than ALS!