sj (she/her)

cbo, @hi_cleo, helping the working family, work. mama to luna & leo. recovering ALS caregiver helping team @synapticure. taking AIs for a better tomorrow.

[sj (she/her) @sacchetti]

Check out my latest article: A new chapter & lessons learned integrating my family and work. https://t.co/9HylcYZ33d via @LinkedIn

[ACCESS Newswire @AccesswireNews]

ALS Community Files Citizens’ Petition asking FDA to Approve NurOwn Stem Cell Therapy https://t.co/uYaXHmAYg5

[Charlotte Clymer 🇺🇦 @cmclymer]

@GavinNewsom @charliekirk11 You’re endorsing attacks on trans youth while in conversation with someone who dehumanizes trans people as a career.

You’re attacking trans kids to bolster your national profile for a 2028 run.

I deeply regret ever supporting you, and I genuinely hope your cowardice haunts you.

[Armand Domalewski @ArmandDoma]

I think @AOC’s argument about transgender bathroom bans is…pretty much perfect

[sj (she/her) @sacchetti]

@jack_turban @Yale @TempleUniv So glad you are 💙

[Erin Reed @erininthemorning.com on Bsky @ErinInTheMorn]

Because I am getting this question dozens of times in my DMs from trans people/parents... If you're trying to move for safety:

Countries: Australia, Canada, New Zealand, Spain, France.

States: Any blue state on my risk assessment map, which I'll update post-election.

[Nerd Girl Says @Rachael_Conrad]

Will Ferrell deciding to educate himself and others as well as supporting and loving Harper unconditionally when she came out to him really puts some other comedians to shame, huh.

[sj (she/her) @sacchetti]

@chrissyfarr Id imagine it varies dramatically by specialty. Oncology, Derm, Neuro I bet all would know quite well given the impact of drug prices and major dependence on/desperation from patients for new treatments.

[sj (she/her) @sacchetti]

@tonyadam SO many amazing stories. I think 1password is one of the most recent unbelievable success stories.

[sj (she/her) @sacchetti]

A year after I retired as an ALS caregiver, its impact on me is still felt every day. Not only does @sabrevaya bring visibility to the invisible caregivers among us, she's built a bridge to a better support system & gives me hope of transformation to come. Sandra = the best. 💙

[Sandra Abrevaya @sabrevaya]

On the last day of National Family Caregivers Month, I want to share that being a caregiver has been the single hardest experience of my life.

It is incredibly painful, overwhelming and I often feel like with Brian's illness I have lost my own identity, my freedom, my own life.

[sj (she/her) @sacchetti]

@RBatniji Oh Rajaie, my heart breaks for this unimaginable and horrific reality. Sending the love I have but wish I could send peace.

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Congrats Brian & Sandra for sacrificing so much to help so many. The #ALS community is forever changed because of all you have accomplished.

Mad respect & gratitude!
@bsw5020 @sabrevaya

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Everyone I've referred to @Synapticure has loved the ability to see their #neurologists from the comfort of home.

If you know any families with #huntingtons, please share this blog as @DrJaimeMartin has a long connection with the HD community & her patients adore her!

https://t.co/2spYBQTANW

#EndHD #neurotwitter #telehealth #telemedicine
#CarefromAnywhere #HuntingtonsDisease

[Accel @Accel]

The first episode of Spotlight On is live. Tune in to hear @YouveGotFox, @StevoLoughlin, and @SaraIttelson discuss Dylan’s journey as a solo founder, @AssemblyAI’s early challenges and triumphs, and how to cut through the noise as an #AI-native company:
https://t.co/SeZC1UiozU

[Rick Berke @rickberke]

With this story is a tender, must-watch video clip of ALS advocates Brian Wallach @bsw502 Sandra Abrevaya @sabrevaya who have led arguably "the most successful patient advocacy campaign this century.''
https://t.co/ssixvgs9ZZ via @statnews @damiangarde @levfacher #STATFuture

[sj (she/her) @sacchetti]

@bsw5020 😂 and Moon looks pretty darn good too! (cant wait to see you both manana)

[sj (she/her) @sacchetti]

NIMBYs halt progress. When one works on seemingly intractable problems, like housing, reality hits - systemic solutions mean change for people who *don't want change*. I encountered this w/ Dementia facility planning, and in one town hall meeting I realized why change is SO slow.

[Jordan Grimes (on Bluesky @cafedujord) @cafedujord]

Good evening, Twitter! I’m spending my Friday night in the affluent Bay Area suburb of Millbrae, where the county is presenting a plan to turn a hotel into ~100 homes for unhoused residents.

It appears that the entire city is here, and they are *pissed*. 🧵

[sj (she/her) @sacchetti]

@nmasc_ Congrats!!! 🤩

[sj (she/her) @sacchetti]

@timjschwartz So brutal. One thing to know the broad strokes but the personal stories are so sad/scary. Hope you feel safer asap

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

USN pilot & #Veteran dying of #ALS needs help!
#Veterans deserve #MedicalArsenal of #NurOwn

@BellinaMatthew & @BellinaDeb have been meeting w FDA & told them #NurOwnWorks in 2019.
W/o FDA approval Matt can't get more!

⬇️Public Comment of Matt's mom Deb
https://t.co/fIG4daxfyP

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Clenbuterol stabilized David's breathing for 2 yrs then @US_FDA blocked import. He died July 25

@DrCaliff_FDA @FDACDER
#RWD & clinical data show it likely works in #ALS
https://t.co/lWFiUmhwFS

Ask Dr. Bedlack of @Duke_Neurology
@NEALSConsortium

No risk is worse than ALS!