Learning just a little more every day. Thank you to all the researchers out there that give hope to families living with #HaoFountainSyndrome and other #rarediseases.
This National Organ Donor Day, our team reflects on the purpose of improving the lives of #transplant community members. We’d like to thank those working to improve the lives of brave transplant donors and recipients. To learn more visit: https://t.co/UrW0h2Tg8C #organdonation
Excited to announce that we launched a #CMV education website that provides transplant patients and their care partners with information to help throughout their journey, from understanding exposure to CMV through post-transplant recovery. Learn more: https://t.co/hQRKAePEWp
Life with this disease can be pretty overwhelming for families. Especially on that day you first get your diagnosis. If that's you, and this is that day, you've come to the right place. #USP7#HaoFountainSyndrome https://t.co/rA15y90jjB
We are thrilled to announce that Takeda received @US_FDA approval for an antiviral treatment option for transplant patients. We are eager to support those in this underserved patient population. Read our press release here: https://t.co/gwDc94xunZ #FDA#InnovationAtTakeda
In celebration of National Cytomegalovirus (CMV) Awareness Month, we stand with the strong community of those working together to further bring to light this common, yet rarely discussed, virus. #CMVAwarenessMonth#StopCMV
Intended for a global audience outside of the UK.
There couldn't be a more fitting post for today. Ollie, who lived with FOP, fell from his wheelchair and experienced a catastrophic brain injury. He passed away, but not before becoming an organ donor for 3 families. Our entire community feels the pain; we are a family. #cureFOP