🚨 Today's the deadline, April 12th! Please ensure all submissions are sent before the day ends. Your feedback is crucial to enhancing ambulance response and providing better care for Sickle Patients. Thank you for your contribution! 🏥#SickleCellCare
All Sickle Cell patients, caregivers, & relatives in London! Help improve ambulance care by sharing your experiences. Submit as a Microsoft Word doc to [email protected] by April 12. More information and questions can be found at: https://t.co/l6hDUQWg1e
Disappointed by NICE's draft decision on Exa-cel gene therapy for sickle cell. With @AnthonyNolan, we urge NICE to reconsider. Share your views in the consultation by April 11. Let's ensure NICE hears from everyone impacted. Details: https://t.co/MIuLFG9RhX
Our patient physician perspective collection continues to grow with a new article from @talentedmrso, @lnwh_nhs on proliferative sickle cell retinopathy.
Article: https://t.co/rlReQDlEke
Full collection: https://t.co/e998nVg8Xf
Our patient physician perspective collection continues to grow with a new article from @talentedmrso, @lnwh_nhs on proliferative sickle cell retinopathy.
Article: https://t.co/rlReQDlEke
Full collection: https://t.co/e998nVg8Xf
Many thanks for sharing your experience and impact with us. We look forward to the fruits of the collaboration with the Centre for Equity at Oxford to support inclusive research in eye care!
Another early start, another London-bound visit. This time Royal College of Ophthalmologists—potential UK-wide collaboration supporting inclusive practice and clinical research! @TheCfRE@OxPrimaryCare@nickpbthomas@RCOphth@ghanchif@cathyharrison00
Hope no travel problems 🙏🏽
Floretina 2024 was one for the books! Attended with a 9-strong team who presented and thoroughly enjoyed Rome.Standing room only Ang-2 symposium to crown it all! Till next time!
Researchers at King’s College London, King’s College Hospital + SCS are doing a project with young people with #sicklecell to develop tools that enable them to be involved in research. Email Jane Chudleigh ([email protected]) or Pru Holder ([email protected]) for info
I still cannot believe Westfield graciously provided a whole unit to showcase beautiful art reflecting on lived experience with sickle cell disease, retinopathy and clinical research. People lining up for OCT scans! Incredible! @SickleCellUK @NIHRCRN_NWLdn @LNWH_NHS
2 of 2 Whereas the general public has a better understanding of a disease like diabetes even if they don't have personal kowledge of someone who has diabetes
Had a really good chat with Dr Christina Dinah the Director of Research & Development for NorthWest London Hospitals Trust. Christina is leading a number of Sickle Cell Research projects some with a specific eye care focus. The art depicting Sickle Cell was great
How much do you know about Sickle Cell and eye health? The North West London Clinical Research Network are holding an art installation at Westfield Shepherds Bush from the 23-27 October, 10am - 7pm. You can also learn more about #sicklecell and get a free eye scan.
Last chance to take part in our study researching new medicine to help protect people with an impaired immune system from contracting COVID-19.
Contact us on: 0208 869 5446 or email: [email protected] to find out more about the SUPERNOVA Study. Closing date: 31/10/2023
We got our ass whooped… Good stuff Oregon.
We’ll NEVER let a loss make us forget who we are. We still gone turn up & we still gone do it our way. So rejoice & take advantage of us while we in this position - I expect nothing less.
Just Remember, We gone get up