Antonia Howard

Grad dip @UTS_GC • SWAN Australia @swanaus • Support worker ☕️ (she/her)

[Antonia Howard @tanuhoward]

@Amcinerneyleo @UQDRC @UQMedicine @TRI_info You inspire us all @Amcinerneyleo !! 🙏⭐️

[Antonia Howard @tanuhoward]

@heatherrenton @krispmelb @KateHollidayRN Thank you Heather!! So blessed to work with and learn from your professional and life experience. You work so hard for families 🙏

[SWAN Australia @swanaus]

This tax time, please consider donating to SWAN Australia so we can continue to support SWAN families. We thank Sarah Strachan (SWAN mum) for sharing Hannah's story!

DONATE: https://t.co/SXm0jyz9O1
Hannah's story: https://t.co/29bGRpvXoS

#DONATE #RareDisease #PeerSupport #SWAN

[SWAN Australia @swanaus]

@MelbGenomics is interviewing parents in VIC about paediatricians ordering genetic tests. You are eligible if your child has a paediatrician and has had genetic testing before the age of 10. Reward: $50 gift voucher. Please contact Belinda McClaren on [email protected]

[SWAN Australia @swanaus]

@gsnv_info wants to know about paid participation in consumer engagement. If you are a member of the genetic, undiagnosed and rare disease community, GSNV welcomes your input via their survey: https://t.co/U0MgciMTOf. Study contact: Isaac Hockey, [email protected] #rare

[SWAN Australia @swanaus]

Our CEO @heatherrenton spoke today with #KatTheophanous, @ACarbinesMP & @gedkearney @AustralianLabor about health & disability issues of concern for our families.
Every #SWANaus child deserves a #diagnosis.
Families want #NDIS plans that support their children. #DefendOurNDIS.

[Every Australian Counts @EveryAustralian]

@Spk0ut The #NDIS is both a social and economic reform - research shows that it creates far more than it spends!

💪For every $1 spent on the NDIS, local communities benefited $2.25 💪

That’s money straight into the pockets of local support workers, manufacturers & small businesses.

[SWAN Australia @swanaus]

Sign the open letter - NDIS cuts - Every Australian Counts https://t.co/IU5E9iHdkF via @EveryAustralian. We regularly hear from families that their kid's plans are being cut by 60-70% or that the NDIA want to remove their child from the NDIS because they "don't have a diagnosis".

[Dr Jane Tiller @JaneMTiller]

MUST CLOSE 20/3: survey about life insurers' use of genetic test results. Open to anyone who has had/been offered genetic testing in Aust. Please have your say - you can be anonymous & your views will be conveyed in a report to govt. Please RT/share! 🧬💜 https://t.co/aSF5pZmssX

[SWAN Australia @swanaus]

We're now hearing from Dr Tracey Dudding-Byth, geneticist and founder of FaceMatch, a Project that uses facial recognition technology to help children and their families find a diagnosis. @DrDuddingbyth #diagnosis #technology #innovation #RareDiseaseDay2022

[SWAN Australia @swanaus]

Did you know one in five Australian children start school with a speech or language disorder? @MiyaDStJohn @MCRI_for_kids @UniMelb explains how speech and language disorders arise from genetic, neurological and environmental factors and can impact communication. #RareDiseaseDay

[SWAN Australia @swanaus]

What does it feel like for a parent to hear the words “there is something going on and I would like to do genetic testing”. To hear that is a shock for parents – it does not sink in at all. Parents ask many questions, there is endless crying and it is daunting – #JaneEllul #rare

[SWAN Australia @swanaus]

Dalal Baumgartner speaks, SWAN mum to Naomi, who lives with SATB2. She describes Naomi with great pride as a "rare ambassador" for SATB2 worldwide, and "my little hero". #rarediseaseday2022 #rare #genetics

[SWAN Australia @swanaus]

What is it like to be the parent of a #SWANaus child? #BelindaDonkinEvers, shares Maddy's story at our #RareDiseaseDay event #undiagnosed #swanaus #rare

[SWAN Australia @swanaus]

Our co-host today is Deborah Cameron from Carer Gateway - Wellways Australia. Carer Gateway is a free counselling and peer support service for carers nationwide. She speaks of #selfcare for carers. For more information, please visit https://t.co/RqveE7XijV

[SWAN Australia @swanaus]

We are Live. Rare Disease Day at @swanaus is hosted by our CEO Heather Renton. Heather speaks of using the term "rare condition", as many SWAN children are healthy, despite their challenges. @heatherrenton #RareDiseaseDay2022 #rarecondition

[Antonia Howard @tanuhoward]

@WallingfordC46 Wowee!! 🤩

[Antonia Howard @tanuhoward]

I know what I’ll be doing Sunday night 😍 #RareDiseaseDay2022

[SWAN Australia @swanaus]

This Sunday (Rare Disease Day eve), SWAN mum Jenny Downing will be hosting an art class. BYO drawing materials for a bit of creative fun from the comfort of your home. Please see the link for registration and spread the good word! https://t.co/F3do52Jy0g #RareDiseaseDay2022

[Antonia Howard @tanuhoward]

Imagine this - the NDIS provides you funding to manage your chronic spinal cord injury whilst caring for your mother and daughter with disability. They then take all of this away and more - you and your daughter are both left without crucial funding for therapy and to live…

[Heather Renton @heatherrenton]

‘Wildly unreasonable’: agency slashes mother’s NDIS funding and then her daughter’s https://t.co/llSb8lAmgv. I have personally supported Jannine through her family's NDIS ordeal and no person should have to go through the stress that Jannine has had to encounter with the NDIA.