Tessa Pinto

missing from my own life since 2021 due to severe ME/CFS. now over at bluesky under tessapinto

[Jack | amatica health @JackHadfield14]

A year ago today I was diagnosed with FND by a neurologist who knew nothing about long covid. Reasoning: no blood test abnormalities

I now have blood tests showing I have raised Arginase 1, HIF1a, PINK1, and Activin B

Amazing what shows when you actually test relevant pathways

[Karen Hargrave @karenlhargrave.🦋.social @KarenLHargrave]

Today we've sent a #ThereForME letter, co-signed by 28 organisations and smaller initiatives, to @LaylaMoran @CommonsHealth

The letter points to inadequacies, present and historic, in care for people with ME and Long Covid, and calls on the committee to undertake an inquiry.

[Tessa Pinto @tessapint0]

@GeorgeMonbiot thank you from the bottom
of my heart for continuing to use your platform to talk about this

[Tessa Pinto @tessapint0]

thank god for george monbiot. to finally have a respected journalist with a big platform shedding light on the ongoing and monumental suffering and injustice that ME patients continue to face is so affirming and so desperately needed

[George Monbiot @GeorgeMonbiot]

This story is one of the most disturbing I've ever covered. It's about how the views of a deeply weird ideological sect affected science, medicine and the media, with devastating impacts on patients. Please read and pass on. This horror has to stop. https://t.co/qVjkbiGQY3

[Tessa Pinto @tessapint0]

my amazing friends are meeting on the 9th December at 8pm to watch Unrest, an award winning documentary about ME/CFS by ME patient and advocate @jenbrea. we invite everyone to join and watch along, then or at any time convenient for you - it's available for free on youtube

[Celia Silvani @celia_silvani]

My wonderful friend @tessapint0 has been extremely unwell for many years now. She last walked in July 2023.

ME/CFS is a largely misunderstood and invisible condition, leaving many to suffer in silence with little access to treatment or support.

https://t.co/m3EtlQmAup (1)

[Tessa Pinto @tessapint0]

Anything you can do to help raise awareness of this condition, or help support Tessa financially in accessing specialist care, would be greatly appreciated.

[Tessa Pinto @tessapint0]

https://t.co/eE2WpuqgKw

Please visit this link to raise awareness about severe ME/CFS and to help Tessa to access specialist care

[Tessa Pinto @tessapint0]

Tessa has been completely bedbound and unable to walk since July 2023 - over a year. She has experienced long periods of being unable to talk, tolerate light and sound, or eat solid food. She has recieved almost no healthcare from the NHS

[Tessa Pinto @tessapint0]

@chydorina @remissionbiome @ales_frost @IsabelRamirezRD wonderful thank you!

[Tessa Pinto @tessapint0]

@chydorina @remissionbiome I'm so interested in your research and would really love the opportunity to learn from you, but I can't see the option to DM @remissionbiome even though I do follow. Is there somewhere else I could make a submission? Thanks!

[Tessa Pinto @tessapint0]

@AnnaSavory 😂finally all those years of library visits have paid off

[Tessa Pinto @tessapint0]

@AnnaSavory @DeansKevin you made it to the BL! i think you're on humanities 1 floor.. so floor 1?

[Tessa Pinto @tessapint0]

@angryhacademic I had the flu jab a few days before the Pfizer booster which made me ill, I’ve always felt like that wasn’t a coincidence.

[Tessa Pinto @tessapint0]

@GayKiwiDan DLPA really helped with mine, an amino acid the body converts into dopamine. It’s been hugely helpful!

[Tessa Pinto @tessapint0]

@wastelessme @AbrahamAubry Hi PJ, what was your dosage and how long did you take it for?

[Tessa Pinto @tessapint0]

@EwanMHarrison @hol__smith ahh thanks Ewan 🥹

[Tessa Pinto @tessapint0]

@AnnaSavory ❤️❤️❤️

[Tessa Pinto @tessapint0]

@_netflixandill @drclairetaylor @1goodtern This. Tests aren’t sensitive enough, it’s a huge problem and leads to chronic UTI which are misdiagnosed as ‘interstitial cystitis’ which is in itself a non diagnosis.

[Tessa Pinto @tessapint0]

@angryhacademic I'm so sorry, you can't catch a break can you?! hope you recover from this as quickly as you possibly can.