thalmv

Adult thal from Maldives frustrated about the years of negligence from the authorities

[bolurodhi @imookhaleel]

@MoHmv @MBS_mv ތެލެސީމިއާ ސެންޓަރު އުފެދުނީއްސުރެ އެތަނުން ދޫކުރާ ބޭސްތަށް މިހާރު ފަމަސީއިން ދޫކުރާގޮތަށް ހެދުން އެއީ އަޅުގަޑުމެންގެ ފަރުވާއަށް އެޅިގެންދިޔަ ބޮޑު ހުރަހެއް. މިކަން މިގޮތަށްބަދަލު ނުކުރުމަށް ބެލެނިވެރިން އަދީ ކުދިންވެސް އެދުނު އަދި އެއްވެސް ކަމެއް ބަދަލު ނުކުރާނެމޭ ބުނެ އޮޅުވާލީ؟

[bolurodhi @imookhaleel]

@AliAman1988 Last 20 years we have been advocating to governments to improve our health service. Nothing much improved and day by day things gets difficult like todays situation. We hoped alot from the newly elected government as said they included our concerns in the campaign.

[Aman @AliAman1988]

It is high time that this government or any government give a proper attention to the people/citizens suffering from THALASSEMIA.

Having included them in the campaign to gain votes has become normal without giving a proper solution after.

I dont think these kids/ppl are asking for an allowance/money or fancy hospital treatment center.

They seek a proper inclusion & management at MBS which can provide the most needed item at ease and in a place designated to them and thats MBS as of now.

I believe this can be done without having to drag the thalassemia kids here and there all over the capital.

[Shanyz 🇲🇻🇵🇸🔻 @Neocytis]

Why on earth would anyone think that adding unnecessary complexity into the once simple process of obtaining medicine for thalassemia patients is a brilliant strategy for enhancing service efficiency?

For the past 30 years, thalassemia patients enjoyed a seamless process receiving iron chelation medicine from thal center during doctor consultations on the same floor. Given that this medication is exclusive to thals and provided by the government, there was no need for it to be available elsewhere. However, the recent decision to centralize all medicines and consumables through STO has needlessly complicated the process, burdening patients for the sake of administrative efficiency. The rationale to expedite the distribution process to the Thal center seems unwarranted, as it shouldn't compromise patient convenience. Instead of downgrading our service, addressing staff incompetence should be the focus. Moreover, forcing immune-compromised patients to queue at STO alongside those with viral infections is unacceptable.

Left with no alternative, we were compelled to voice our concerns on Twitter, given the adamant stance of both the thalassemia center's management and the state minister, who asserted that the situation could not be altered despite our earnest pleas. Therefore, we urge the government to reconsider and revert to the previous, more patient-friendly system at the Thal center.

@MoHmv @MMuizzu @abkhaleel @presidencymv @HucenSembe
@thalsmv @abdulmuizhassan @vamp_ali @imookhaleel @faibe10 @laamaseal @AbdulNoorHassan @whysooooooo

[bolurodhi @imookhaleel]

@vamp_ali Parents and patients mikan kuran dhekolhu hedhyma nukurane kama bune olhuvaaly. Eves engumaka nulaa badhalu kolafa . Kury saru kaaru kuri kamekey mi kiyany..

[thalmv @thalsmv]

@imookhaleel @MoHmv @MMuizzu @presidencymv @Banafsaa @abkhaleel @7Dhath @abdulmuizhassan @Neocytis @whysooooooo Faruva rangalhu kuran beynun nama compliance dhahvaane mikahala kanthah nukuraane. Thimanna ah kohdheveyne evves kameh nethey akee balaiganeveyne javaabeh noon hinguma havaalu ve huri state minister ge faraathun. Iklaas theri nama badhalu kohdheyn masakkaiy kuraane @7Dhath

[bolurodhi @imookhaleel]

@thalsmv @MoHmv @MMuizzu @presidencymv @Banafsaa @abkhaleel @7Dhath @abdulmuizhassan @Neocytis @whysooooooo MBS (thalassemia center) akee thal ge faruvaa ah haasa kofaivaa center. Ehn kamu ley elhuma desferol fadha beynun vaa beystha mihurihaa zamaan vandhen balahatum kudhina forukedhumu aee. Miadhu eh faseyha geluvaly .. kudhin ge faruvaa ah elhunu bodu hurahe
@MMuizzu @abkhaleel

[thalmv @thalsmv]

@imookhaleel @MoHmv @MMuizzu @presidencymv @Banafsaa @abkhaleel Thalassaemia patients aa @abkhaleel meet kurevey dhuvahu e patients ves mi issue raise kureema vidhaalhuvi evves kamakee badhalu nukureveyne kan kameh nooney genna change rangalhu nooniyya. @7Dhath @abdulmuizhassan @Neocytis @whysooooooo

[thalmv @thalsmv]

@whysooooooo @7Dhath @MMuizzu @abkhaleel .@7Dhath patients ah mihaa dhathivaa kanthah koffa, kuree sarukaarun kuri kamekey alhugandu ai iruves nimifa oiy kamekey buenfa evves thaneh dhoreh nubalaa MOE ehgga sign koffa, kureveyne kameh neiy kamah bunanya SM ehgge haisiyyathun MBS aa havaaluve mihiree keeh kurantho?

[vamp.ali manik @vamp_ali]

@imookhaleel Mee dheravaru kan kan dho, ibu havafa dhiya hadieh misarukaarun nujehey dho thanfeezu kuraakah. Dhashun dedicated centre eh hadhaa 1 furaalhegge dhashun huriha hidhumatheh dhemun ais miharu STO ah dhuvan mijeheny komme mahaku 1 faharu beys nagan.

[bolurodhi @imookhaleel]

Veema mikan eves thal patient eh adi parent balai nuganane . Mee patients ah kuri udhagule . @MoHmv @MMuizzu @presidencymv @Banafsaa @abkhaleel

[bolurodhi @imookhaleel]

Mikan nukurane kame meetings ga bunefa mikan miadhu mi kury. Eh thaakun thal patients beynunva faruvage kan kan libumaky hidhumai ragalhu vun. Thal center vujoodha aisuren mi beystha mi dheny thal center in.

[bolurodhi @imookhaleel]

Thalassemia ge kan kan ragalhu kurumah genai sarukaaru miadhu zamaanusuren thal center (MBS) dhookuramun ais desferol fadha beystha mihaaru pharmacy in dhookura gotha hedhumaky kan kan ragalhu vume noon. Patient and parents mikama dhekolhu hedhymaves olhuvalaigen