BloodFeed

Stay organized, stay sane, stay healthy! #bleedingdisorders #hemophilia #vwd

[BloodStream Media @BloodStrmMedia]

Who else gets this excited about #patientAdvocacy? Check out our very own #nonprofitnerd's story on this week's #BloodStream episode! https://t.co/gCJtyd3Auy

[BloodStream Media @BloodStrmMedia]

Why #genetherapy when you already have #factor9replacement? Let Dr. Pipe explain. Watch the whole #podcast https://t.co/02J7RHhiZV #hemophilia #bloodstream #genetherapy #factor9 #hemgenix #bleedingdisorder #blood

[Patrick James Lynch @pjlynch]

🚀 Today's #BloodStreamPod features:

🎙️ Let's Talk #mentalhealth w/ @ShuaBragg featuring Mike Hargett

🎙️ #BlackHistoryMonth & #bleedingdisorders interview of Connie Montgomery by James Maple

📲 Listen, share & subscribe: https://t.co/iPDbaIhmr6

#hemophilia #raredisease

[Global Hemophilia Report @GlobalHemReport]

🚨NEW: #Aging with #Hemophilia

Listen & share:
🍎▶️ https://t.co/lk5Rf3Zz4r
💻▶️ https://t.co/OOsEWLYmqy

Advisor/Contributors:
🎙️Barbara Konkle, MD
🎙️Gerry Dolan, MD
🎙️ @WillMcKeown
🎙️ Randy Curtis
🎙️ @jonahill

Host:
@pjlynch

Sr Advisor:
Donna DiMichele, MD

#haemophilia

[BloodFeed @thebloodfeed]

#GeneTherapy in #Hemophilia is here (kinda).

New podcast on the recent #Hemgenix approval in the USA.

Listen here: https://t.co/0koKkyRAm3

#haemophilia #raredisease #ASH22

[BloodStream Media @BloodStrmMedia]

🚨NEW EPISODE: Gene Therapy has finally arrived (kinda)

Amy & Patrick share first reactions to the approval news!
Michelle Rice shares how her work is bringing access to treatment for #raredisease patients
New segment of The Well on Relationships

Listen: https://t.co/gLZGOwYs8G

[Patrick James Lynch @pjlynch]

🚨#GeneTherapy for #Hemophilia is here!🚨

Kinda!🤔

- @boardo87 & I react to the @US_FDA's approval #Hemgenix, the first gene therapeutic for #hemophiliaB.

- then longtime @NHF_Hemophilia staffer Michelle Rice shares her current #raredisease work.

🎧: https://t.co/c5Gxf1c44k

[BloodStream Media @BloodStrmMedia]

BloodStream Media is excited for the #PKDeficiency, #thalassemia, #sicklecell, #hemophilia, and #vwd communities, as #ASH22 is about to feature the latest in #hematology, #science & #clinicalresearch!

Be sure to subscribe to the pods below to hear updates from the meeting!

[Global Hemophilia Report @GlobalHemReport]

"It's acknowledging the vast amount of experience managing #chronicpain, and saying, 'Alright, you tried all those things. What's not working, and why?'"

- Paul McLaughlin (@physio_paul) on pain

Listen: https://t.co/ty47CMshIM
#hemophilia #haemophilia

[Patrick James Lynch @pjlynch]

New animated season of https://t.co/MhaZ3SlHl3 starts Monday!

This year’s focus:

#vonWillebrandDisease

&

#girls with #bleedingdisorders

Watch and share the Stop the Bleeding! teaser trailer!

#stbhemo #hemophilia #raredisease #hemofilia #vwd #webseries

[Global Hemophilia Report @GlobalHemReport]

*NEW EPISODE!*
.
EP 9: #Hemophilia B & the story of #TsarevichAlexei - Part 2!
.
We conclude the epic story of Alexei Nikolaevich & spotlight research priorities to address #haemophilia B.
.
Listen 🎧
.
on Spotify: https://t.co/sdciaiLCx3
.
on Apple Pods: https://t.co/Vt6fZtXYi7

[BloodStream Media @BloodStrmMedia]

🚨NEW EPISODE: https://t.co/gLZGOwYs8G

- Patrick shares about life post ankle surgery
- interview w/ @HemophiliaofGA's Director of Advocacy, Michelle Conde
- Peter Z and Taylor Anne of Glanzmann's Research Foundation
- Let’s Talk #mentalhealth segment on acknowledging your past

[Patrick James Lynch @pjlynch]

1-min preview of the video featuring 4 contributors. #hemophilia #HIVAIDS #HCV Please watch:

[BloodFeed @thebloodfeed]

Like could you not, body?

#hemophilia #vWD #vonwillebrands #vonwillebranddisease #bleedingdisorders #bloodfeed

[Patrick James Lynch @pjlynch]

New episode of BloodStream features hematologist and #MedTwitter superstar @NTConnell speaking out about #LGBTQ+ health issues in #bleedingdisorders.

Plus @geniuspills (aka Smile Woman!) is back w/ the latest from The Well.

Listen, share and subscribe: https://t.co/JWvIdwmWGo

[Global Hemophilia Report @GlobalHemReport]

Ep 8 of the Global Hemophilia Report focuses on #Hemophilia B and tells the story of how #haemophilia B changed European history.

Here's a clip featuring the story of the one-and-only, Grigori #Rasputin.

[BloodStream Media @BloodStrmMedia]

“Everything is terrible, but I am feeling energized.” FLOW with Jack Teter on Abortion is Healthcare, Part 3.
Listen: https://t.co/iBgyIzBUMg
Hosts @geniuspills + @swsextherapy
Produced by @boardo87 @bloodstreaminfo
Flow is supported by @TakedaPharma

[BloodFeed @thebloodfeed]

Same but different... #hemophilia #vWD #vonwillebrands #vonwillebranddisease #bleedingdisorders #bloodfeed

[BloodFeed @thebloodfeed]

Til next Annual Meeting...or chapter meeting or WFH... What else am I missing?!

#hemophilia #vWD #vonwillebrands #vonwillebranddisease #bleedingdisorders #bloodfeed #NHF2022 #NHF

[Global Hemophilia Report @GlobalHemReport]

EP 6: Women w/ #Hemophilia

Contributors:
@acweyand (+ advisor)
@nashgreenie (+ advisor)
@andrajames
@DRotellini
@TBuckTN
@KristinPNunez
Andra James, MD, MPH
Connie Miller, PhD
Maureen Baldwin, MD, MPH

Senior Advisor:
Donna DiMichele, MD

Listen & share:
https://t.co/IYqnLK5Q9w

[BloodStream Media @BloodStrmMedia]

Brand spanking NEW modules, y'all!
..
Don't miss The Science Fair LIVE at #NHF2022 in Houston, TX!