Stephanie Aleite

I’m just your average girl w/ a twist-a disabling condition I'm SO passionate about bringing awareness to!#JRA #Gastroparesis 🙏🏼#faith 💑#marriage 📓#college

[Stephanie Aleite @theYoungFace_RA]

“We need the help of providers and the help of researchers to make the noise required to change public policy. If you know the patient’s lifestyle, you can offer better treatment choices.” -Catherine Ames @yp_area
Research➡️policy chng
@ACRheum @IFAiArthritis @CreakyJoints #ACR22

[Stephanie Aleite @theYoungFace_RA]

“Create space especially for youth. Space where we feel heard and where we can share our stories and insights and be vulnerable.” -Anya Khurana, BS @yp_area
Such a powerful message to researchers by AMAZING young patient advocates!
@ACRheum @CreakyJoints @IFAiArthritis #ACR22

[Stephanie Aleite @theYoungFace_RA]

“When it comes to encouraging patients to engage in research, I like to emphasize a ‘come as you are’ approach. You don’t have to be trained & you don’t have to be perfect to engage in research.” -Madison Snider
🙌🏽Wooo! Yes!
@ACRheum @CreakyJoints @IFAiArthritis #ACR22

[Stephanie Aleite @theYoungFace_RA]

Asking women about their reproductive health often helps patients to
✔️keep their disease under control
✔️prevent unwanted pregnancy
✔️plan for pregnancy safely
I love the messaging that docs should support their female patients to make their own decisions! @IFAiArthritis #ACR22

[Stephanie Aleite @theYoungFace_RA]

At the end of their presentation, they invited me to make a commitment to closing the gap.
As a Patient Advocate/SWer I’m committed to shortening the learning curve for patients by sharing resources that empowers them.#ACR22 @acrheum @creaky_joints @ifaiarthritis

[Stephanie Aleite @theYoungFace_RA]

Determi-Nation has released a FREE resource and LIVING document that helps healthcare providers navigate conversations with patients by addressing implicit and explicit bias.

YESSS!!! 🙌🏽🙌🏽🙌🏽🥳 @CreakyJoints @IFAiArthritis @ACRheum #ACR22 #healthdisparities #socialwork

[Stephanie Aleite @theYoungFace_RA]

Determi-Nation is focused on uncovering insights that validate diagnosis challenges facing POC living with psoriatic disease to inform education and tools to help improve the patient experience, focusing on shortening the time to diagnosis in all skin types. @IFAiArthritis #ACR22

[Stephanie Aleite @theYoungFace_RA]

So far, this is my favorite presentation.
Determi-Nation is a healthcare movement: one that addresses inequities in psoriatic disease among People of Color & inspires better understanding of their experiences https://t.co/8vgADl9oOQ
@ACRheum #ACR22 @IFAiArthritis @GHLForg ✊🏽

[Deb Constien @debconstien]

@CreakyJoints @realcc @SKDowling @theYoungFace_RA @chroniceileen Rock stars

[Stephanie Aleite @theYoungFace_RA]

Love that you love it! 🥰🙌🏽🙌🏽
Like Marie Kondo would say, “does it bring you joy?”
I think there in lies the secret to living well with Arthritis. And for all the other tasks we have to do (even it if doesn’t bring us joy), “What supports can we put in place to make it easier?”

[Nestorako @MaynoothNest]

Love this way of assessing if an activity is “worth it” when it comes to #ChronicIllness factoring in pain & fatigue. Great job @theYoungFace_RA #ACR22 #OT @ArthritisieYAN @Arthritisie

[Stephanie Aleite @theYoungFace_RA]

Ahh thank you sooo much!!! 😍😍🥲 You guys are the best! @GHLForg

[CreakyJoints.org @CreakyJoints]

A huge congrats and thank you to all of our wonderful CreakyJoints community members who submitted #PatientPerspective poster this year! #ACR22 @zoerothblatt @realcc @SKDowling @theYoungFace_RA @chroniceileen @venkyshilpa1

[Stephanie Aleite @theYoungFace_RA]

Yesss! @ACRheum 😁#ACR22

[Shelley Fritz @shelley_fritz1]

Patient advocates presenting at @ACRheum !!! Patients should always have a seat at the table.

[Shelley Fritz @shelley_fritz1]

Great advice from @theYoungFace_RA on how to preserve energy! #RheumTwitter

[Stephanie Aleite @theYoungFace_RA]

🙌🏽😋

[CreakyJoints.org @CreakyJoints]

Brava! We're so proud of your #ACR22 #PatientPerspective posters @realcc @SKDowling @theYoungFace_RA @chroniceileen

[Stephanie Aleite @theYoungFace_RA]

THANK YOU SO MUCH @CreakyJoints !!!!! #ACR22 @ACRheum

[CreakyJoints.org @CreakyJoints]

A huge congrats and thank you to all of our wonderful CreakyJoints community members who submitted #PatientPerspective poster this year! #ACR22 @zoerothblatt @realcc @SKDowling @theYoungFace_RA @chroniceileen @venkyshilpa1

[Stephanie Aleite @theYoungFace_RA]

Thank you! @CreakyJoints @IFAiArthritis @ACRheum #ACR22

[CreakyJoints.org @CreakyJoints]

Read Stephanie's @theYoungFace_RA #ACR22 poster here: https://t.co/jnNBykHkuk

[Stephanie Aleite @theYoungFace_RA]

@CreakyJoints @IFAiArthritis @ACRheum #ACR22 😁😁

[CreakyJoints.org @CreakyJoints]

Key takeaways from @theYoungFace_RA's #ACR22 patient poster:
✔️Going out uses #spoons which adds up quickly
✔️ Event importance ➖ needed spoons 🟰 event value for Stephanie
✔️ Making informed choices improves #mental and physical health

[Stephanie Aleite @theYoungFace_RA]

Come find my poster abstract PP17 https://t.co/OPG6OLcYwN
#ACR22 @GHLForg @IFAiArthritis

[CreakyJoints.org @CreakyJoints]

Attention all #Spoonie friends: Tomorrow at #ACR22 @theYoungFace_RA will present "Engaging with the Spoon Theory: How I Make Decisions Using a Cost-Benefit Analysis that Works to Improve My Mental Health While Living with RA”. https://t.co/ivW1bsatvT

[Stephanie Aleite @theYoungFace_RA]

Woo 😮‍💨 yes! And if you’re having trouble deciding, use my Spoon Theory Economics calculation:
Importance of Event (0-20 points) — Cost of Spoons required to attend (0-20 points) = Event Value (0-20).
The higher the event value, the higher the emotional gain! 😁 @ACRheum #acr22

[CreakyJoints.org @CreakyJoints]

A reminder for @zoerothblatt @realcc @SKDowling @theYoungFace_RA @chroniceileen @dividivigirl and all of our other patient advocates at #ACR22: Remember to pace yourself! https://t.co/l0qosBhzeH

[Eileen Davidson - Rheumatoid Arthritis Advocate @chroniceileen]

@CreakyJointsAus @CreakyJoints @zoerothblatt @realcc @SKDowling @theYoungFace_RA @Dividivigirl Time zones mean nothing when we are connected by #Arthritis